Thursday 12 September 2013

Could Any More Shit Possibly Happen!?

A day out of hospital and there I was casually relaxing on the sofa trying to recover. Untill my mum comes home.

She didnt ask me how I was or what I had been up to just "did you still have money to give me as Im short"

Lets go back a few steps and Ill fill you in. My mum moved her new boyfirend in a little over two weeks ago, so I told mum I was giving her less money as I should be payong thirds as thats fair. Her response to me for that was you can fuck off. Charming hey. Little did she know I was being deadly serious.

So reverting back to yesterday, I responded to mum about me being serious about not giving her as much money and that of her new boyfriend is giving her money also there was no need.

This kicked off a massive argument of her calling me a selfish cow, an ungreatful bitch and a few more nastiness. She also told me I should be paying her more for her having to run me up and down the country to my hospital appointments. I reminded her that mentally im not coping with yet another diagnosis (to which she said oh ok to) and also about my friend Dawn passing away-her answer to this was we all have friends that die. This argument went on for about 45 minutes to which I was crying my eyes out and devestated my mum gave more of a shit about me not paying her an extra £150 over my physical and mental well being. At the end of this argument mum told me to get the fuck out of the house.

Little did she know I would actually go also!!

5 minutes later her boyfriend come back and they went for a walk with the dog.

In that time I had pack all my medications and a few bits of clothes, grabbed my rabbits in their hutches (bearing in mind I shouldnt be lifting after my surgery) and I filled the car with as much as possible. I rang my girlfriend in a right state with what just happened and because her family are so bloody amazing they have allowed me to move in with them.

This is going to be a struggle hospital wise as itll take 5 hours to get to my birmingham appointments and im going to have to try and find a decent hospital now in cornwall.

I cant believe that not only have I got to deal with a rapidly deteriorating shit health but I now have to try and move all my stuff out. So much from recovering from surgery with major complications. Im just glad that I now have a lovely relaxed new home with great support and care so I can atleast try and recover a little bit.

Well thats it for the dramatic life of me!!

TTFN

XXXX

Wednesday 11 September 2013

The Return

Finally 10 days later and I have come home from hospital.

Before I left, I had my tummy holes re steri stripped back up as there are still massive holes compared to wat they should be.

I also got told that they think the operation may not have worked. The reason theu think this is because I still cant keep food and drinking down properly. I am a little dissapointed with this but I guess what can I do!?

Before I left I also told the asthma team that I really not coping mentally, with the reason tragedy of Dawn who was such a fantastic friend to me along with all my itu admissions, poor hospital treatment and all the new diagosis its just all getting on top of me and I just want to end everything. So if figured maybe its about time I got things sorted.

Today I had my gp ring me with the results of my xray that I had before my operation and suprise suprise I have yet another bomb shell. I have a deteriorated femoral head which basically in simple terms, I have avascular necrosis. Which has added to my depression and hit me hard

I havnt told mum how Im feeling as we dont seem to be as close anymore. She seems so much more interested in her new boyfriend than me so I guess its another thing im going to have to keep on my shoulders!!

Well thats enough sadness for one hour.

TTFN

XXXX

Sunday 8 September 2013

My Recent Adventures

8 days ago I got admitted to heartlands in preperation for my operation which was on Tuesday.

I went down at 1230 and got told I would be 45 minutes. 3 hours later the finally take me off the ventilator. The reasons for this was because my lungs had a massive disagreement dropped their sats and started to struggle. So as you can tell I worried a lot of people.

I finally got back to the ward at 6pm or there after and wasnt really with it at all.

The pain was so bad I really didnt know what to do with myself. It doesnt help that I couldnt have local in my tummy because Im allergic to it.

The next day was still pretty much the same, still loads of pain, unable to breath properly or cough so they upped all my pain releif in the hope it would sort things.

Thursday was going good. Pain was starting to get sorted and I started to be able to cough again but sadly I had developed a chest infection so had to stay yet another night and be started on antibiotics.

Around 5pm on Thursday, everything I was drinking I was bring back up. Which wasnt good as aparently this operation is supposed to stop me from being able to vommit. So they done an urgent xray to find out what was going on...I had a bowel obsturction - twist in my bowel so I was put nil by mouth and given fluids. To top things off my pain releif was reduced as they needed to wake my bowel up as it had gone to sleep.

So not only have I got operation pain but also have my agonising hip pain back.

The weekend has been pretty uneventful other than me being depressed and thinking about everything and also being in far to much pain.

I am hoping to leave tomorrow but currently I am still vomiting everything I try to eat/drink which isnt right.

My consultant in Birmingham has also requested and MRI scan of my hip to find out what is going on as they think its highly likely to be linked to my steroids. Perfect!!

Well thats my ramble for now.

TTFN

XXXX

Wednesday 4 September 2013

All Done

Well yesterday at 1230 lunchtime I had the call to go down to theatre to have my fundoplication.

We got told that the op would take 45 mins and that I may need to go to HDU afterwards.

3 hours later and everyone worrying sick, I finally came out of theatre, the oporation went smoothly and they found a heria so fixed that whilst they were in there.

Sadly my lungs couldnt cope 100% and my oxygen levels dropped so they kept me on the ventilator for a little bit longer to help my lungs. Once they picked up I went to recovery and I slowly improved.

I was allowed to get back to the ward at around 1830 so altogether I was out for 6 hours. A lot longer than I was told.

I have 5 holes and a swollen tummy but thats the least of my worries.

Currently im still on oxygen as my oxygen levels keep dipping off it but thatll soon get better.

Im not allowed any food at all for ayleast 2 days so it is pure liquid for me which to be honest isnt bothering me much as even swolling my tablets is hard.

Im hoping to either go hone later tonight or tomorrow depends on how the respiratory team are with me

All is well for now and ill keep you posted.

TTFN

XXXX

Sunday 1 September 2013

Struggling

With another admission luming to hospital I cant help but keep getting flash backs from my last admission and previous admissions.

Ok this time there is a difference as its not an emergency and its not an asthma attack. Im going in for surgery.

Im struggling to sleep again because it seems that everytime I close my eyes im reliving the terrible times ive had and its scaring the poop out of me.

I dont know what to do, the relationship with my mum has changed because she has a new man in her life so I dont feel I can talk to her and my other half is back in her home town so I dont want to worry her when there is over 100 miles between us.

Shall I mention things to one of my link nurses when in Birmingham to see whether they can help at all or do anything or am I just being daft.

Whats also not helping is being on this silly diet and only getting about 1000 calories a day. I have no energy and just feel drained. Surely this also inst good for surgery.

Well theres my worries for now!!

Ill keep you posted for how I get on

TTFN

XXXX

The Call

Yesterday I had the call from Birmingham telling us there was a bed free on the respiratory ward.

Five hours later and we arrive. The traffic was hell, from post holiday drivers to accidents to road works to pure phantom traffic.

Mums new boyfriend came with us, and although I was pissed off at first for mum not asking me and also telling me that my girlfriend couldnt come coz the hospital wouldnt allow it, he was great, made me chuckle and really relaxed the whole situation. I have to admit its great that he is being so involved and supportive and helpful, the complete opposite to what mum old partner was like.

The doc came and said that basically all they are doing is increasing my steroids and giving me oxygen if I need it.

Have to admit im a little narcked off that ive been admitted 4 days pre op just to up my steroids.

They still insistes on cannulating me and it took 6 attempt. I was meant to be having a picc line but the doc said that wouldnt happen over the weekend.

Altogether I think its pretty shabby how the whole situation has gone, but I am bow here so I have to sit and wait.

I am on day 13 of my liquid diet and weirdly Ive lost no weight at all this week, really bizarre considering im only having 1000 calories if that a day.

Well I should stop ranting now but ill keep you all updated.

TTFN

XXXX

Ps the pictures are of my lovely photo frame that I have of my and my girlfriend and hanging off it is the special healing stones she purchased me as a gift. Also of my new spongebob pjs and my injuries already.