Stolen From A friend For Invisable Illness Week

Admittedly this has been stolen but of course with my answers. It truly shows that to be poorly, disabled or struggling it doesnt have to be usually seen... 1. The illness I live with is: Asthma - to define it a little more, Brittle asthma. This is very similar to asthma but its more severe. I have regular attacks, rediculous amount of medications and frequent trips to hoapital. 2. I was diagnosed with it in the year: 1991. I was 3 months old 3. But I had symptoms since: a few days old that then gradually got worse and worse 4. The biggest adjustment I’ve had to make is: realising that I cant do the things I use to and I shouldnt be embarrassed if I need to take my meds in public. 5. Most people assume: "That it's just Asthma" - I cant breathe and I have a few puffs of the blue and im sorted. They dont see the devestation of watching your friends die or needing people to actually look after u because your lung function is below half of what it should be. 6. The hardest part about mornings are: waking up and it taking 2 hours to get ready. Know not just getting washed and dressed. But also eating, taking tablets and doing and hours worth of.nebulisers before I can move. 7. My favorite medical TV show is: Casualty and Holby city 8. A gadget I couldn’t live without is: I want to be greedy.as I have three...my camera, photography is my passion...my mobile, it literally never leaves my side.and my kindle, not being able to.read, play games and.browse thee net whilst doing my meds is a nightmare. 9. The hardest part about nights are: not actually sleeping. Being led there with ur girlfriend to ur right and ur puppy to ur left taking it in turns to snore and u literally just cant sleep. 10. Each day I take : far to much to write here but.4 different types.of nebulisers, a draw full of tablets and a bit more 11. Regarding alternative treatments I: personally I would never stop my current treatments to try thwm. There is no guaranty that they would work and im.not about to risk my life over it. 12. If I had to choose between an invisible illness or visible I would choose: visible, no questioning that. Id get more respect for a dibilitating illness. 13. Regarding working and career: I use to.work.in.bristol childrens hospital and my dream was to become a.paramedic...asthma.stole.that from.me. 14. People would be surprised to know: that not every pwrson with the same illness ends up in the same situation of poorly co trolled health. Not everyone takes the exact.same.meds.and not everyone.has to be exactly how the medical textbooks say its meant to be. 15. The hardest thing to accept about my illness is: im not the.person I use to be. I cant do what I use to. I cant eat what I use to. Adaptions have to.be made 16. Something I never thought I could do with my illness that I did was: find someone to love who loves me for who I am and who doesnt allow my health needs to get in the way between us. 17. The commercials/adverts about my illness: sadly there arnt any. Adverts cost to.much mo.ey for awarness.to be raised. Its all down to AUK and sufferers. 18. Something I really miss doing since I was diagnosed is: being active. I was the sportiest person I know and I cant even walk up a.flight of.stairs anymore. 19. It was really hard to have to give up; Dairy , if I.eat any form.I get super poorly...though sometimes I just cant resiat it. 20. A new hobby I have taken up since my diagnosis is: knitting 21. If I could have one day of feeling normal again I would:go on holiday abroad. Be able to pass a.fit to fly test and go on the holiday to florida that I had to miss this year with my.best friend 22. My illness has taught me: To stay positive. Never let a day pass with out telling the ones u love that u love them. Treat every day as if it was ur last and enjoy yourself. 23. Want to know a secret? My other half has no link to my blog at all, she never reads anything on.here as this is a.space for.me to.rant about life without it having to upset her. 24. But I love it when people: share things with voth myself and my.other half. We are a.team and stick together. 25. My favorite motto, scripture, quote that gets me through tough times is: live life, love laughter. Keep smilling. Never regret. 26. When someone is diagnosed I’d like to tell them:this isnt a.life sentence, u control ir asthma, not ur asthma control u. 27. Something that has surprised me about living with an illness is: the lack of empathy from people who know nothing.about ur daily living with this disease. 28. The nicest thing someone did for me when I wasn’t feeling well was: send my girlfriend up to me.as a.suprise visit when I was on.a.breathing machine 200 miles.away from her. 29. I’m involved with Invisible Illness Awarness week because: people need to be made aware. An understanding needs to.be given and taught. 30. The fact that you read this list makes me feel: like im.teaching people. Giving an insight into my life. Proving there is life after a diagnosis and that there are many people out there.suffering with a disease that cannot be seen TTFN XXXX

Reasoning

Why does everything in life have to have a reason behind it. Why cant you just be doing something because you want to, because it will bring you happiness.

Rules should be broken, it brings you the adventures within your life, tests your personality and the way your mind works. It gets you thinking.

Everything in life you should think about, there could be drastic consequnces if you dont.

For example if i didnt think about taking my asthma medications i would be dead. If i didnt think about putting on my seat belt when i set off to drive and then didnt think about hitting the breaks when the lights turn red i would be dead.

Not everything needs a reasoning for it to be done, but everything needs a purpose.

I hate having to explain to people what im doing, how long im going to be etc etc

I moved out from my parents when i was 17 so i managed to lead my life without telling someone my every move.
Recently since ive moved in with my other half it seems like everything we do has to be explained and reasoned to her mum. I feel like i need to explain to her why i go to the toilet as well its that bad. Having had 5 years of freedom so to speak from constant questioning i now feel like im a convict on parole explaining my tag.

It sucks

Surly as an adult we shouldnt have to.

The purpose of this post is because my partner is currently shitting her pants about what her parents are going to say about a delivery we will be having in the next 2 days. We have ordered a pram and car seat. It was a fantastic deal that we got offered and didnt want to miss the opportunity of having it as its the pram weve always wanted. My partner now seems to think we have to be prepared for 50 million questions for when it arrives as her mum will be nosey and want to watch the delivery be opened and then will most definatly have something to say about it.

I really cant wait to get out of this friggin house. To be our own people again. For my partner to actually be thet adult she is.

Rant over.

TTFN

XXXX

Good News Today

Only one thing happened to day really and thats was...

Myself and my partner have been given the ok to get married.

We have proved that we are not related, we prove we are who we say we are and we answered every question correctly.

We also paid the 2nd part off.

Our paperwork has now been sent off to Truro for 15 days so that anyone who objects for us to get married can do so in this time.

If they dont, then our original plan goes the way we planned.

We will be getting married on Thursday 13th November 2014 at 1330!!

Excited isnt the word.

Weve also officially sent 5 invites out today. We have to get 6 more stamps tomorrow and the rest can be sent.

TTFN

XXXX