Fear

Unfortunatly things still havnt improved the way nyself and my CPN would have liked. I have had HTT (Home Treatment Team) visiting me at home every other day to also try and get me extra support through this difficult period of my life again. I just cant seem to get my head around everything that is going on, i cant seen to accept the deterioration nor the fact i am never going to be the same again. My bigget fear is being readmitted to a secure mental health unit but equally i knot that there becomes a stage where i have no say in whether i stay at home or get admitted. Everyday that HTT came to visit they kept hinting towards an admission and as of late so has my CPN. They have both bow decided to do a joint visit this Thursday as they have been discussing me and now what to tell me their plans. I cant help the way i feel. I cant help being depressed. I cant help feeling dissconnecred from my body. This isnt the way i wanted my life to be, its how my life choose to be and unfortunatly its not something that i myself is going to change on my own. The last two weeks have literally mimiced to how i was in January and February time and that ultimately led me to the admission in the first place so i guess you can understand why im worried. I could lie, say everything is better. I have no suicidal ideation at all anymore but then i would be left with no support. No one would trust me with what i said in the future and then equally i could be making things worse for myself. Mental health is more confusing than my physical health. We shall see by Friday hey!! TTFN XXXX

Not Much To Say

At the moment it doesnt look like i can say a lot, literally because it looks like someone is watching what i am saying and being a complete and utter prick and sending stuff to my wife. If you have noticed, i never mention any names as i dont want my family to know about what i write in my blog. They all know i have one. They all know im depressed. The all know im finding it hard to accept the live i have been given with illnesses and disabilities and THEY ALL KNOW IM SUICIDAL!! Thats nothing different to anyone meber or my family so before anyone decides to copy and paste any part of my blog and add shit into it and remove stuff that i have written fucking jog on. I have this blog as a way to release things from my head. I purposly chose to write it in a blog rather than writing it on pen and paper SO THAT MY FRIENDS AND FAMILY CAN NOT READ WHAT I HAVE WROTE SO STOP BEING A GOD DAMN FUCKING PRICK AND STICKING YOUR NOSE WHERE IT DOESNT BELONG. Little did you know but you caused an argument between me and my wife and at the weong time because of the bullshit you had said!! I also dont need any nasty remarks from this blog. A lot and i mean A LOT has happened since the weekend and i an lucky to be here for more than one reason. And at this present moment in time, i dont mean lucky for me. I mean lucky for those around me . I am having top intervention that i can have at home because my mental health has taken a steap decline backwards. Its nothing new to my friends and family and its nothing they themselves with ever be able to change. I have grown to being this way because the deterioration in my physical health and sadly that has taken a very steap decline backwards. Thats no excuse for me trying to end my life nor is it an excuse for anyone else, but this is who i am. The people who do care for me and love me regardsless know this. Its the risk they take when they accept me into their lives or choose to keep me a part of their lives. I dont ask to be within the circle of social activity, they choose to keep me. What you done on Saturday night doesnt change how i feel myself. It does however change the fact i no longer trust anyone on face value!! Cheers for that!! TTFN XXXX

Still fighting On

Not sure if you can remember from my last blog but a lot has been happening since i have been admitted to the Mental Health unit.

Ive finally managed to drop my twat of a consultant and have one who actually give a flying feck abd has actually got the ball rolling on things

2 weeks ago he started me on a medication callee sertraline. Sadly after 2 doses i had to stop as  it really messaed my heart up. I have though been put on another mesication called matazapien! (Sorry about spelling,dyslexia sucks). At the beginning it was great, really noticed a difference in my sleep pattern in particular but annoyingly its no longer happening. Thankfully ive a ward round tomorrow and i can see what else can be done.

Whilst ive been in hospital, which has been since 30th January, ive felt beywond suicidal and sadly attepted to take my own life. To which i was extremly close o  all 6 occasion.

Thankfully though although i still dont want to live im not actually trying to take my life any more. So i guess theres a slight increase in my mood.

Things r getting tough though and my restraint for not self harming is getting redoculously hard but i have to keep remind myself to stop. Not just for me but because my nephews chrestening on may 10th and i need to b off line od sight before i can go anywhere. I also need to get leave from the ward off the doctor because annoying, through the lack of doctoriness from the previous ass. It was too risky to keep me informal.

I really hope that things will start changing soon.

Sorry its a short update but im starting to feel a little shit just writing this. Fingers cross a few more weeks and ill be reborn.

Hope your all well

TTFN

XXXX

My Last Hope

Since being told in January that there was nothing left for me, nothing left trestment wise to help my asthma i was preparing for each year that went by for ny life to get worse. My lungs to get worse. Thankfully ive been given a lifeline. I change my local consultant when i move to Cornwall and they have done tests that show i have PID which is primary immune deficiency. As i have this, they have said this is the reason to which i am getting around 15 infections there abouts a year which is not only causing my asthma to flare but also my lung function to permenantly be done and ive now built up huge amounts of irreversable scar tissue in and around my lungs. It suck. The worst thing about it all is this could have been solved years ago. I first had this picked uo 4 years ago but was told there was no treatment when in fact therevwas and there still is. Im just so glad I moved to Cornwall as it now means ive been given hope. So my new treatment IgG transfusion. Its pretty technical stuff and again as I said before, without wonderful blood donors, my life wouldnt be able to have this. Each 20ml of my treatment is a few thousands worth of donors bloods and each week I will be recieving 60ml and that is for the next year alone. If the treatment shows improvement I will be staying on this untill they find an alternative. This could be life. For my first ever treatment, me and my wife watched the nurses set everything up and put the needle in my belly. Next week though its our turn. We will be taking a hands on aproach so that the quicker we learn how to set up the pumps and do everything in a safe manor, the quicker I wont have to keep coming to derriford hospital. Each infusion takes an hour to go through. I can only have a maximum of 20mls through each pump at a time into that specific area of my tummy to prevent damage. Yes it take a long time to go through but once its running, youre free to do what you like, well withing reason. On this occasion, I did have a reaction to the blood product but this was to be expected as it was a foreign body being placed into the skin surface of my belly. Today it is still pretty red, sore and bruised but itll settle. Im just praying this is the miracle treatment that could give me some form of life back. Im not banking on my life to be exactly the same as 5 years ago as thats impossible, I have far to much damage, but even if im semi there I will be impressed. Here is a picture of my treatment

TTFN XXXX

Suprises!!

I know its super early for a blog but I figured I would use the clocks going back to my advantage. The lovely lady is still asleep and this blog is about her and I cant risk her seeing it!!

A few weeks ago my other half had said whilst watching Janie Olivers fifteen minute meals that she would love to go to his resturaunt as shes heard its amazing and top quality food. (I agreed as ive been to one). She said "if only we could afford it for my 21st Birthday". Told her that unfortunatly that more than likely wouldnt be possible simply because it cost so much and we can nooooo way afford it.

Hehe

Well, a few days ago I have just made it happen.

I got in contact with the reservations team through email (as when your other half is with you 24/7 because they look after you, it makes ringing very difficul) and they have been amazing.

They told me of everything that was available and what I could do.

Sooo, on the 25th of Novemember (which is her actual birthday) we have a table book at the Cornwall resturaunt for 7pm. as I told her it was for her 21st birthday, they said that on their plates during pudding etc and other little occasions, they will write birthday messages to her from the chefs. (Amazing!!!!!). Ive also had it arranged that they will be baking 12 cupcakes that will be displayed on a lush cake stand and brought over to our table at the end of the meal hehe.

They are amazing there. They have gone all out and really made her Birthday seem that little bit amazing.

Now all I have to do is try and keep it a secret for another 30 days else itll all be ruined.

TTFN

XXXX

Beyond The Imaginable

Just to warn you this post will be as scatty as they come.

Firstly, randomness; ever seen a cow nebuliser machine, i have and thanks to my addiction to ebay i am now the proud owner of a new cow shaped nebuliser machine that i have named Daisy. She lives next to my seat in the living room so i now no longer need to have to walk backwards and forwards to the bedroom just to have a neb

Secondly, joy and excitment; as you are all aware, we had a sperm donor who was helping us loads to try and have a child, sadly though the funds for travelling back and forth from Cornwall to Dorset was coming near to the end, and the donor had decided the only day he could do to help us was a Monday, which is near on impossible to have every month when you aim to go on your highest fertility peak, so we began the hunt for a new donor, who we have found. Or shall i say they found us. They libe in Plymouth so far closer and he seems very nice. Been chatting to him on facebook and he has a nice manner about him and hes agreed to help us as he feels we will be fantastic parents.

Thirdly, anger; the council tried to pull a fast one on us again, but believe me they are messing with the wrong person. Yesterday i had rang them to add a new local connection to our file. When i logged in last night we found out that our account had been closed and we needed to reapply. I done this to be on the safe side and today i contacted them to ask them what they were playing at. Their answer then was that because we had moved address we had a change in situation and that our banding would drop. Well, i asnt going to let it as i told them this address is an emeergency home given by them because we are homeless, 3 emails later full of massive comments of how inappropriate this flat is and how they are screwing us around and the higher ranking team contacted me back. Suprise suprise, they wont now change our banding. We will remain at a band B. Good!!

Finally, familied; on wednesday i mentioned to my other half that maybe she needed to arrange a meet up in a nuteral place for her and her sister to talk as its getting rediculous and sometime in the future they will need each other and they would want eachother in their lives. It seems to have gone well from what i can gather, just my other half is upset that not only will her sister still not come to the wedding, but she said we will look silly because were not wearing wedding dressing. She also said that my other half should get a job and that she shouldnt be looking after me and to top it off she said its stupid us having a child when we cant afford it. Thankfully my other half had said that actually infact us moving out on our own has made us better off with money. It soo shut her up.

Well i best be back to my knitting, got a fair fetw amount of nicu hats that still need making

TTFN

Xxxx

Skywire

So being subborn and not letting my health control my life, I saw a voucher on Groupon to go on a Skywire. This particular one is at the Eden Project and is 660m long and goes 60mph. perfection. it was amazing. I felt free and unrestricted. though I had to have help because of my rubbish muscles because I couldnt get into the Harness very well. I hope the video works as it was great and if you ever get the chance you should do it

TTFN XXXX

Experiences

With us still not having Dixie to keep us company, weve been trying to keep ourselves busy.

At the weekend i saw a voucher to have a skywire experience in the eden project.

So naturally i got us both a ticket lol.

The skywire is 660m long and you go at 60mph. Epic

It was fantastic, ive always wanted to do a skydive but couldnt because of my lungs so this is the next best thing.

My other half of course screamed the whole way down and may the instructor chuckle. I on the other hand got stuck trying to shuffle into the superman suite because of my muscle weakness. Oh the joys.

Well when we were there i paid for us to have a head cam...now we just need to find the laptop power cable within the flat to put it onto the pc lol.

TTFN

XXXX

Mixed

Now that ive got internet back for a little while and can catch up on lifes happenigs over the last 5 days i figured i would update u all.

On Saturday, our friends came over to help mover our rabbits and their homes over to the new flat. First stop tho was lidl as we needed a much. After all this i was so tired i could barely do anything so my job was to look after their son. Figured it was good enough and not to intense as i was beyond tired.

On sunday we had a very early start. This was the day we sadly had to say goodbye to Dixie as she was off ot her foster mum. To whom is absolutly lovely and has kept us updated daily. Sadly dixie has cired on the evenings and her foster mum aparently went and slept on the sofa with her. Feel so bad for her having to do that.

Amongst this on Sunday, we went via my sister to have snuggles with the nephew and to give him hes halloween outfit and also went via mums for a roast mmmm good stuff.

We had to go to the old house on sunday evening when we finally got back to cornwall to fill the last few bits of or kit and take them over to the flat. I think we got to sleep at 1am and had to be up by 730 as we had to go via the house on the way to my hospital appointment.

My appointment was with regards to the lump in my mouth. Aparently it is very similar to the one i had on my lip last christmas but much bigger. For healthy people they would be out under a general and have the whole gland taken out but because i stop breathing with generals hes going to try a different version. He is putting local in my mouth and taking off the top layer of my lump in the hope itll cause it to stop growing and even shrink. This is happening on the 22nd of this month. sadly though if this doesnt work ive no choice but to be put under.

With regards to the council we have finally been put up to a band be as they have decied weare and urgent priority to needing a home. Perfect

For now though we are settled in the flat and a lot happier than we were in the house.

im offski now though ready for pride of britain.

TTFN

XXXX

Happiness

Just flying by to say

WEVE GOT A HOME!!!!!!!!!!

Ok its only a temporary emergency accomadation but it means that we wont be homeless by the 6th October as weve been given the keys today

Happy

Downside, we cant bring our puppy with us to this temporary place so were trying to get her fostered untill we can have her back.

Sad

TTFN

XXXX

Bloody Council

Today was the day that i was getting arsy with the council if they hadnt started responding to me with answers about whats happening with us with regards to being rehomes.

By about 11am i had a phone, when they said it was the council i was think; great about bloody time...boy wasnt i mistaken. It was the council saying that they wont accept the paperwork that got sent to them last week by the homeless team. As always i questioned why and blinking heck it made me boil and they certainly knew about it. The reason the wont accept it is because we "just have asthma and just have depression" so it doesnt make us a priority and they more than likely wont get us a home by the 6th of October. By this point i was near on screaming down the phone asking if there was medical professionals on the panel, and guess what, there isnt. Finding out this then made me scream at her about how would they know what my BRITTLE asthma was like and what my SEVERE PTSD and my other halfs SEVERE DEPRESSION AND ANXIETY was like. I asked her if she was one of the panels members to which she said yes, so my next question was, have u ever heard of proximal myopathy and know what it does...and guess what, her answer was no. So i told her we should not all be tarred with the same brush, for one BRITTLE asthma is nowhere near anything like WORK RELATED asthma.

So all in all, myself and my girlfriend wont be getting a home by the 6th October and despite the fact im on higher rate DLA for both componants and the support section of ESA,  it means nothing because our illnessesare basic.

We then thought find, screw you council will go private...but wait...we cant. Because we dont work, wet need a guarantor and we dont have one.

All in alm we are fucked!!!!!!!!!!!

TTFN

XXXX

Quick Update

Ok in short, im still very much depressed, if not worse, im still packing and we still have no where to live in 2.5 weeks.

To top things off, out middly rabbit has now come down with a respiratory infection so hes now onnantibiotics twice a day. Something we really didnt need right now.

There has been progress though, tomorrow at 2pm we are having an interview with the homeless team. We blinking hope that they can actually do something for us. So far they seem great though. Today after the appointment was made they faxed my GP asking for a full report about my health which sounds positive though annoyingly theyve not received the update from immunology about my new treatment which we really could of done with. Though ive left the secretary a message and i just pray they can help us out also.

TTFN

XXXX

Its Official

We had the council man come around at 10am as planned today to check over out current home...during this meeting my partners parents had to decide on whether they wanted to take the bungalow they had been offered. Up untill the moment the council man her parents were still not convinced they wanted to move...and then once he left, they came up and told us they are moving into the bungalow. This now means that myself and my partner have to be out of our current home with in 4 weeks.

We r then officially homless.

Were going to start packing because either way we have to go.

Ive so many emotions right now. Im also scared for my health.

TTFN

XXXX

Still ... Blurgh

Soooooo Things are still crap here. The council have stated they wont help us any sooner untill we are actually homeless because there are a total of 28000 people that need homing and aparently we arnt a priority. Something isnt right here. Not only are we not being helped whilst we have being mentally abused but my health needs dont help us for anything. Not only this but because of my vunerability, according to the charty shelter, were meant to be priority but we arnt we just dont get it. On top of this, i woke up this morning dripping wet but freezing and and giess what my temperature was 38.1 and my peak flow is 280 post neb. Gp says ive got another infection so higher dose steroids and more antibiotics And lastly todah for shit news...the lump that started in my mouth under my tongue over the weekend is now about the size of a golf ball and the dental hospital who i was under last december for the lump on my lip for some reason wont give me an appointment Im so worried as ive had 2 tumors in my body now and it looks like this is a 3rd. Im worried that this lump could be the big c...know idea where i go from here if they wont get me an appointment in the dental hospital. On a good note though, i have the CT scan for my hips last night and will get the results on the 22nd I leave u with the yummy picture of my lump.yum.

TTFN XXXX

Wowzers

What a few days it has been.

As youve guess it, the stress we had a few weeks ago through my other halfs parents has started back up again.

As of yesterday the was now moaning that we took OUR coffee upstairs. Yup you got it, it wasnt even their yet theyve gotten arsey over it, so kicked off.

Today we pop out to get Dixies flea abd worm treatment, we litterally step one foot through the door and we are bombarded with the fact that they have found a bungalow on cornwall housing, they went and viewed it today and have applied for it, so we could be moving in 2 weeks time.
Yay great, they get a lovely home to live in,we on the other hand become homless.

What the fuck are we going to do.

Why are they doing this to us, all along theyve said we will move first and them after to ensure no one is without a home. Then they go and do this to us.

So i distract myself from all of this and start preparing our dinner. I can only do the non dangerous prep as i cant risk doing any more. Ive hurt myself far to many times...but wait, even doing our dinner was wrong. They wanted to use the appliances we were using...yet theyve been sat on their arse doing nothing and the minute we start cooking we are now in their way. But, this isnt all, we are then being dictated to for how this meal should be cooked. Bareing in mind,theyve never cooked it and me hve the recipe book in front of us to which we are following.

I literally cant wait to get the hell out of here.

On a good note though, me.and my.other half are off to bristol for the next 3 days as we are seeing shrek in theatre. We are also flying by my sisters to have squigy cuddles with our nephew. Cute!!

TTFN

XXXX

Frustraition

Today has been the highs of bollocks.

Starting with...going swimming. Figured it would be great to start the day with exercise, that was untill i got to the pool and had a huge allergic reaction as they had put far to much chlorine in the pool.

After that, we get home to find the post man had been abd instantly from the envelope i knew it was the decision for our welfare appeal. They wont grant us a 2nd bedroom despite all our reasonings behind needing it for me and they wont increase our banding as they dont feel that tje mental abuse that we are getting is bad enough to need to move out quicker. They also dont feel i need to be closer to a hospital and they also dont feel that we are isolated within the countryside that doesnt even have a village shop.

Following all this, tonight we have a message from my other half saying that they wont be coming to the wedding despite her being made to go to theirs. their excuse is having a meal at 1730 is to late for them to be out for their son who would be 11 months. Its a joke, all this shit within our house is because we didnt originally invite people to the wedding yet the bit they have been invited to they dont want to fucking come to.

Im feel like shit and just want to cry.

Should have done wat my girlfriend had originally said, just take our two best friends to the ceremony and fuck everyone else as at the moment no one seems to give a damn about how we feel!!

TTFN

XXXX

Busy, Excited, Tired...All In One

These last few days have been very hecric but amazing at the same time.

We did manage to go away which i am so pleased about.

First off we paid a visit to my sister as my other half baked her the most amazing birthday cake ever so we went and had tea with her, gave her all her presents and webt and seen the finished nursery. So excited as theres literally on 2 or 3 weeks left and the baby should be here.

Following my sister we went off to Dorset, Sunday night was just a chill night with a few dvds, relaxing ready for our big day.

Our donor text us saying he was early but it was ok as we were ready and excited. He is so funny as he fitted us in between a trip to the tip and shopping at morrisons before picking up his son from school. Im so glad that he found us as we couldnt have found a better man to "father" our child.

Post doing the deed, we decided to take a random trip to Glastonbury to go charity shop shopping where we baught 8 baby items for £4. I absolutly love charity shops. We then went and had a proper realy banana milkshake with ice cream. Yum...well my girlfriend had a banoffee one but it was still uber lush.
To top off our amazing day, we then went and had a meal at the pub next to our hotel. I really do love spending these little days out with my lady.

On Tuesday I decided to take my other half to Clarks Village as shes never been there before either. We had a lush bit of retail therapy and i really treated her. She deserves it after all hehe.

Over the last few days ive been waking up with really bad migraines again. Thankfully though because i have been doing the over night oxygen readings its been showing that its clearly low oxygen levels that is causing it as they dropped down to 82% most nights.

In other good news, 4 weeks later ive finally cleared my chest infection so i am super pleased. I hate the fact it takes so long to shift but i guess thats just my crappy body.

Well, we find out if we have had any luck with our donor around the 25th July so if you could all keep your fingers and toes crossed for us I would be super pleased as i really cant wait to have a child with the most beautiful girl in the world.

TTFN

XXXX

Uncertainty

Its been a few chilled days here in our house hold as weve had a a bit of a rough time health wise for me and weve had a lot of paperwork to fill in.

With regards to health, since Alton towers ive had an infection *suprise suprise*. Sky high temperatures, chest flaring, sats and peak flow down. So i went to the doctors last week to catch it early, steroids went straight up and i got put on strong course of doxy for antibiotice. I done a sputum sample to catch which bug it was and although i got told i just know its a type of pneumonia again. Today i woke up gasping to breathe and sats were back to 93%. I dropped my steroids on Monday as it had been 7 days and i didnt want them high again but with an emergency visit to the gp again today they put them back up for a further 7 days and given me amoxicillin and another course of doxy so fingers crossed i start feeling better again soon. Ill do another sputum sample as sokn as my airways are open enough to cough a reasonable amount up.

With regards to paperwork, since my partner had the carers service team out for her last week, weve filled in a form to apply for another grant to be able to have holidays or hobbies whilst im in the state i am. So fingers crossed we can get this.

Weve also had the paper work through from the council for a welfare assessment. It was 4 pages long and i also sent in an addition a4 piece of paper of extra evidence as they didnt provide enough space...talking of rubbish space, they asked for a list of my nedication but only gave one line...an i had to provide another piece of a4 paper filled from top to bottom with my drugs...think they will have learnt their lesson there!!

Well, tomorrow we are going to try and venture out to Liskeard to meet onet of our very good friends and their son. I wanted to get some more fluffy wool for a personal project im knitting and we decided to meet up with them too. Ive warned them i have an infection especially as her sokn is only 11 months so to be nice i will be wearing a mask so that heres no risk of me passing on my pneumonia!!

Aside from all that paperwork, i have yet another form to fill out for a grant through the charity called the muscular dystrophy campaign. I had a re referal done with regards to my self propelling wheelchair but sadly i dont tick all the boxes to get any form of electricalness for my current chair so theyve put me through to the charity. I just need an assessment and letter wrote on headed paper saying i would be a suitable candidate to be given a grant to and i can fill in the rest of the form. Really praying i can do this by the end of july as their next meeting is augst 8th.

Well, fingers crossed i can get out tomorrow and i get my assessment.

TTFN

Fresh Air

With the weather being a little better today with respect to not actually raining we decided to do a random day out.

Our first port of call was to the Looe Food Festival. Our friend randomly told us about it last night so we decided why not. We purchased some pina colada curd (which we got around christmas from the same company and its REALLY good so we had to get more), we also got 1 apple and walnut bun. Its basically like a chelsea bun but dofferent flavours and because it was literally the size of my head we got one and shared it. Didnt want to eat more for the hell of it.
We also got a crepe each, but because we are cute, we got one sweet and one savory and shared them. Saves on money and calories ha.

Following the festival, we found a carboot sale so decided to make an random stop to have a nosey. We didnt get anything though as it was all a little cruddy.

As we had Dixie with us we decided to tae her to a place called Respryn which is part of a national trust place. She loves ot here as she can run in and out of the river and of her lead. Though my girlfriend spoke to soon. Just as she said "im so proud of Dixie, swimming and being so good in the water" - Dixie got stuck on a branch in a current by her harness. Thankfully she managed to wriggle out of her harness and get away. As i saw the harness still on the branch, i took of my shoes and socks and trousers and jumped (not literally) in the river to retrieve her harness. But by the time i got there it had literally vanished so a new harness has just been ordered. Typical!!

After all this though, i was so exhausted and have literally slept from the minute i got back which was about 3pm untill about an hour ago.

A bit or normality and im pooped!!

TTFN

XXXX

...

This post in my mind shouldnt have a title...theres nothing in this post that deserves a great name, thought or mention as its all crap.

Following our trip to Alton towers, my migraine stayed untill Tuesday and was making me feel so poorly. I spoke to the doctors and theyve now increased my Amytriptoline tablets to 50mg to see if its going to make any difference, so far not though as as of yesterday, i have another one arriving.

I also had to speak to the doctor because i have yet another chest infection. By sunday night my oxygen levels were 93%, my temperature was 38, coughing up lots again and have really bad pain in the back of my lungs. Ive sent a sputum sample again but for now my steroids are back up and im on doxy for the next 2 weeks. This is all in the hope that weve caught it early, attacked it hard and can avoid an admission.

Weve also had the community carers team out for my other half to see what extra help she can get. Whilst they were here weve expressed out conserns for living here with the way her parents remain to treat us. She has put in a urgent message to the council as its putting us both in danager...this being because my other halfs mental state is deteriorating again because of the mental games that her parents are playing with her and as a result on 3 different occasions now shes made errors with my medications.

We also found out that suprise suprise, weve been lost in the system for my community physio, occupational therapy and also hydrotherapy so ive had the critcal care team from Trelisk hospital ring me to state that theyve been made aware and will chace and call me back by Tuesday.

Ive also had to put in for a re referal for the wheelchair services. Sadly i can no longer push myself in my wheelchair because my muscles have deteriorated again. So now they are going to see wether any electrical modifications can be made to my current chair and if not what else they can do for me.

I guess one good thing about this week is that ive completed another 90 knitted hats for the NICU units and they are all boxed ready and waiting to be posted.

TTFN

XXXX