Life Recent Events

Thankfully life is doing fantastically at my other halfs in Cornwall and her family are fantastic, they are so supportive and just want to help me with everything. Im not used to all this care and help.

Ive had an appointment at my old local hospital and shes pleased with how things are going, and she said she will contact Plymouth hospital to see if they will take on my care as she knows the consultant there and aparently he manages difficult asthma also. Though this doesnt mean that Im going to stop going to Birmingham as they have been amazing.

Talking of Birmingham, I have also been to see them. Physio saw me first and done a few tests on me and confirmed that I dont have dyafunctional breathing nor do I have hyperventilation syndrome so I am absolutly over the moon with that. She also taught me a few more gunk moving chest physio moves which is super helpful. She also said that if this doesnt work by the time she rings me in a few weeks, she will see about getting me a device to help increase my lung function and shift a bit more gunk!!

Dr M is please that I have managed to stay on 10mg of pred, though when I asked if I could reduce it more or come off it altogether he said no, so thats a bit of a downer. He also says that im not allowed to reduce any of my other maintenance meds either. I guess the only good way of looking at this positivly is that I dont need any more meds currently. He wants to see me again in 3 months time to keep a close eye on me.

So life has been full of hospital appointments and driving up and down the country.

Im still waiting for an "urgent" mri scan at the request of my hip consultant to see how advanced my avascular necrosis is...who knows how long thatll be!!

Im travelling back to Cornwall tomorrow as I have an appointment at my new GP surgery to fill them in about me.

I am so shatterdd though, I tried driving today after going to Birmingham today and my legs just didnt want to work, theu were shaking all over the place, I really do hate the way things have ended up!!

Well thats my bit of excitement for the last week!!

TTFN

XXXX

The Call

Yesterday I had the call from Birmingham telling us there was a bed free on the respiratory ward.

Five hours later and we arrive. The traffic was hell, from post holiday drivers to accidents to road works to pure phantom traffic.

Mums new boyfriend came with us, and although I was pissed off at first for mum not asking me and also telling me that my girlfriend couldnt come coz the hospital wouldnt allow it, he was great, made me chuckle and really relaxed the whole situation. I have to admit its great that he is being so involved and supportive and helpful, the complete opposite to what mum old partner was like.

The doc came and said that basically all they are doing is increasing my steroids and giving me oxygen if I need it.

Have to admit im a little narcked off that ive been admitted 4 days pre op just to up my steroids.

They still insistes on cannulating me and it took 6 attempt. I was meant to be having a picc line but the doc said that wouldnt happen over the weekend.

Altogether I think its pretty shabby how the whole situation has gone, but I am bow here so I have to sit and wait.

I am on day 13 of my liquid diet and weirdly Ive lost no weight at all this week, really bizarre considering im only having 1000 calories if that a day.

Well I should stop ranting now but ill keep you all updated.

TTFN

XXXX

Ps the pictures are of my lovely photo frame that I have of my and my girlfriend and hanging off it is the special healing stones she purchased me as a gift. Also of my new spongebob pjs and my injuries already.

When It Comes To An End

Since my last admission from Bristol hospital I have had my lovely lady staying with me and helping me out. We have been through so much it has been a little hectic. We have stayed for a little while at my mums whilst I recovered initially, then we had to dash back to Cornwall as the other half had an appointment. As you know I had to come back to my mums as she fell poorly, but of course I braught the other half back with me again. all of these times we were chilling and movie watching waiting for my body to pick back up again. which seems to be taking a while. During the last 1 or 2 weeks we have been to a charity fun day where I did my first stint of being a photographer. I have to say it was a little scary but I loved it and cant wait to get stuck in doing more challenges like it. A day later we then drove to bristol where we stayed at my dads for a little while. On the Monday we went to Bristol Zoo as the other half has never been there and I havent been there in so many years that it all changed. Her face was amazing throughout it all, she had seen so many new animals that she hasnt seen before that it make me feel great knowing that she has done something new. Tuesday came round and we had to drive to Birmingham as I had an appointment. This appointment sucked a little though as I got told that my body has become allergic to itself which is why I am having so many allergic reaction. End result being, I have to take another drug, and the other half got taught how to use and Epi pen just incase I couldnt manage to do it myslef. Wednesday arrived and we went and met up with some of my firends and their new little baby. My beautiful lady loved meeting them and has said they are definatly coming to the wedding *Result* c: A day of Gromit hunting on the Thursday. Something both myself and the other half has never done before, we were both knackered by the end of the day but managed to fine 30 out of the 80 Gromits, have a picnic at Cabot tower and generally have a lush time exploring Bristol together. Ever been to Brighton...well we drove their with two of our other friends and we landed in the worst hotel imaginable, we had to park 10 mins away in a shopping centre car park which we didnt have any money back on. We were on the fourth floor and the beds where like sleeping on newspaper. ok this was crap, but I was with my lady and that was AMAZING!! Brighton pride took place on the Saturday which was the reason why we went to Brighton in the first place. We had a great day, the weater was nice to us and we got to see Lucy Spraggon performing live...absolutly epic she was!! Sadly though I had an allergic reation so had to go to the medical tent to get checked over. Only two antihistamines were needed though thankfully. Sunday...the dread day of them all. I ended up driving 14 hours from Brighton to Cornwall, to Bristol and then back to Bridgwater. It massively killed me to the point I was vomitting non stop from a massive migrane. Ended up having to go to my local hospital to get IM anti sickness just so I could keep all my asthma treatment medicine down. So all in all a massively hectic week. I am now back home on my own...untill tomorrow when my lovely lady is catching the train back to me as we are going to pay a visting to Bristol International Balloon Fiesta as she has never been before. lets hope the weather stays nice for us...else we will be going in the rain!! Well makes a change having a nice blog for once hey!! TTFN XXXX