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This post in my mind shouldnt have a title...theres nothing in this post that deserves a great name, thought or mention as its all crap.

Following our trip to Alton towers, my migraine stayed untill Tuesday and was making me feel so poorly. I spoke to the doctors and theyve now increased my Amytriptoline tablets to 50mg to see if its going to make any difference, so far not though as as of yesterday, i have another one arriving.

I also had to speak to the doctor because i have yet another chest infection. By sunday night my oxygen levels were 93%, my temperature was 38, coughing up lots again and have really bad pain in the back of my lungs. Ive sent a sputum sample again but for now my steroids are back up and im on doxy for the next 2 weeks. This is all in the hope that weve caught it early, attacked it hard and can avoid an admission.

Weve also had the community carers team out for my other half to see what extra help she can get. Whilst they were here weve expressed out conserns for living here with the way her parents remain to treat us. She has put in a urgent message to the council as its putting us both in danager...this being because my other halfs mental state is deteriorating again because of the mental games that her parents are playing with her and as a result on 3 different occasions now shes made errors with my medications.

We also found out that suprise suprise, weve been lost in the system for my community physio, occupational therapy and also hydrotherapy so ive had the critcal care team from Trelisk hospital ring me to state that theyve been made aware and will chace and call me back by Tuesday.

Ive also had to put in for a re referal for the wheelchair services. Sadly i can no longer push myself in my wheelchair because my muscles have deteriorated again. So now they are going to see wether any electrical modifications can be made to my current chair and if not what else they can do for me.

I guess one good thing about this week is that ive completed another 90 knitted hats for the NICU units and they are all boxed ready and waiting to be posted.

TTFN

XXXX

Something New

When I went to asda yesterday, I was gutted to find out that they had sold out of easter biscuits...I mean come on, its still a week away. To resolve this, my lovely girlfriend said that as shes never made them before, she would love to give them a try and blinking heck they tasted good. We have been controlled though. Weve only shared one between us for today andvwe have four more between us ove the next few days. I was mega impressed with how they turned out as shes never made them before. What do you think?! :

Even though it was only half a biscuit that I have eaten, I felt really bad so punished myself...and todays punishment is that I walked around the feild 4 times at three different stages of the day. To be ho esr, I think I have the beginnings of an obsession going on. Im so fixated on loosing weight and its now got to the point im now weighing at the beginning and end of everyday. I really dont know what to do. I think its started because I had climbed up to 16 and a half stone and so many doctors have told me that my weight would make my asthma worse. For me that was enough to scare me so I guess I have to loose it. After our second walk of the day, I was in agony so had some more morphine, snuggled with my lady and our pooch on the sofa and watched a film. Todays film was "exit himanity". Although at the beginning I though it was a really bizarre film, I soon came to liking it. Its weird because it has a narrator ever now and then. But it explained the in depths if what was going on just incase you didnt pick it out whilst it was made visually the first time. So for me its a film with a thumbs up. In crappy news...I think I have another infection brewing. Im getting a lot more puffed out, I have pain in my left lung and I am rather bubbly with my lungs. My temperature has only raised a small amount so id feel like a fraud going to the GP at this stage. Just hope it doesnt get to bad by next weekend as we r supposed to have a friend staying down and visiting is. Only time would tell I guess. TTFN XXXX