Showing posts with label deteriorating. Show all posts
Showing posts with label deteriorating. Show all posts

Tuesday, 29 July 2014

Not The Best

Yesterday I had an appointment to see a hip surgeon to see whether or not he qas brave enough to operate on my stupid hip. The night before i was shitting my pants as ive stopped breathing on the last 2 surgeries ive had and they struggled to bring me back so i was meantally working out whether this is a wise choice.

My other half didnt come with me as i said there was no point in her not going to her volunteering as i knew what was wrong with my hip so it was just a yes or no to surgery.

Boy was i wrong.

The consultant asked me what I knew about my hip and what i had done so i said i had a plain xray that stated i had deterioration of my femeral hip AKA AVN. I then had a plain MRI that showed nothing more so they gave me a steroid injection into my hip in theatre. This increased my pain so they done an MRI that showed I had a laberal tear in my joint. And then i got told i needed surgery and here we are.

His face dropped...and then i started to worry.

He then said he was sorry but i havnt been told the full degree or extent of my hip. He then went onto inform me that i had an inpingement. I thought thats ok, wheres the worry in that I had one in my shoulder, i still have it as i refused shoulder...i can live with that.

But that wasnt all of it...

He then went onto explain that not only do i have the other 3 problems but i also have backwards hips. In other words, they are facing the wrong way. Erm hello, why is it i am 23 and this has never been picked up on before!?

Thats not all, he then went onto explain that along with the other 4 issues, my femurs are also protruding into my pelvis.

Fuck...i just wanted to cry...but sadly he had more to tell me.

He explained that my AVN is minor at the moment so hes not all that concerned and itll be a while before that needs surgical intervention ...  amazing, finally some good news!!

WRONG!!

As i also need surgery on my backwards facing femur proturding hip. He has orgered an urgebt CT scan to see how much bone is actually in the wrong place. I will then be seeing him in 8 weeks which is September 22nd because depending on how much bone is deformed will decided on how quickly and where i have surgery. He is about 80% sure though that i will needs the specialist surgery which he cant do as its to complex for him and hes never seen it in someone of my age before. So he will be refering me to the specialist. Wait for it...who is in London. I will have to go to the other side of the UK from where i live to have surgery.

But wait, theres still more...he also told me, my left hip is identical to the right hip (which is the painful one) so very soon i will be in extreme pain with that hip too and i will need surgery on this hip also.

im gutted. Not only should this have been picked up on at birth but i will be alone on the day of my surgery unless we cam save up a hell of a lot of money to pay for my other half to be in a hotel the whole time im in hospital.

Im absolutly devested and pissed off all on one.

I dont get why the last hospital i was under didnt tell me that my hips were facing the wrong wag and that my femurs were sat in my pelvis. Why didnt they see this as an urgent thing like this consultant in Cornwall has.

I got told in april that the pain is in my head and that there was nothing wrong...yet actually there is severe problems wrong.

I potentially cant have anyone with me during my surgery. What if this time they cant actually get my breathing going again!?

I cant wait for all this medical shit to leave me alone. I want it all to stop. I dont think i cant cope with much more

TTFN

XXXX

Saturday, 11 January 2014

Thinking, Dreaming, Making

Both myself and my partner have been searching and searching for many months for the right place, and we have finally found it.

I then had the issue that I had just needed a new set of blood tests to see if I had certain genetic disorders.

Now that we have finally found the place we feel suites us, we are going to go for it the minute we get the results of my blood test.

Ok that may be another couple of months but that can help me mentally prepare, right!?

The place that we have found is in Wales though so it will take us roughly 3 hours to get there but we currently feel like we fit in with that clinic and that they have helped us massively, yet we havnt even met them yet.

We have decided to also do egg sharing so that we can help someone who is struggling to have a family just like we are.

We are hoping 2014 will be a great year.

I just hope that my sister doesnt get as pissed with me wanting to start a family as much as she did because I got engaged before her. She needs to realise that my health is deteriorating and not only do I want to be able to carry a baby but I also want to be able to give our child as much as I can physically.

My family hasnt been that supportive for me as of yet so I guess I should realise that they may never be all that happy for me.

I just have to be tough

TTFN

XXXX