Just Another Day

Up nice and early today because I had OT coming to measure me up for the stair lift im having fitted. Thankfully thatll stop me falling on the stairs like I done yet again tonight. After all the measuring I then dropped my lovely girlfriend off at Bernados for her 3 hours of volunteering. Whilst she was there, I filled my time with walking Dixie, sorting our flowers out and chucking the dead ones, eating some diinner, nebbing and sleeping. When I woke I felt like absolute shit and rather puffed. As a result I had a quick (ish) dash to the mirror, noticed my lips were blue, so went and got my sats monitor...90%. Bollocks. Quick nebbing session before I had to get my lovely lady again. Thankfully im feeling a little better this afternoon and evening so ill see how I go before I ram any more steroids down my neck. Weve also found another feild to which we are allowed to walk Dixie and blinking heck she blinking loved being back in a feild again chasing a ball. For a squidgy puppy she aint half blinking adorable. Other random things about my life today...my GP receptionist rang me because my GP wants to see me so the had to arrange and appointnent. Its planned for the 28th. When I asked if she knew what it was with regards to, she thinks he said it was because I need to start a new medication. Im baffled as to what for so it should be interesting. And final news for the day to put a smile on your face...today ive lost another 2lb and a quarter in weight so since 6th January this year I have now lots 1stone and a quater and a grand total since the start of my weight loss last August of 3stone and a quarter. I just have another 2 stone to go and im at my healthy weight. Really hope I can do it. Hope your all well. TTFN XXXX

Todays Adventure

Last night I was 100% worried that Dixies body clock wouldnt be able to be adjusted to the time change and I feared she would be awake at 0630. Suprisingly though, she woke up at her usual 0730. Not only was I pleased but I was also mega shocked. Straight after breakfast we took her for a walk. It wasnt all that successful though as my partners mum came with her puppy and Dixie just got to distracted and was running around the feild like mental. Towards the afternoon though, I took her for a walk by herself just to get some call back training in for the day. Every 20 steps I walked, I called her name and gave her a treat (dont worry, the treats are smaller than my little finger nail). She done really well though and I was happy that shes starting to pick up on the call back altogether. Once all our camping washing had finally finished, I decided to sit and chill whilst reading up on more photography stuff. Ive managed to find roughly 5 more projects to keep my busy!! Myself and my partner booked a tabled at pizza hut tonight for the four of us to go out for mothers day. My girlfriends parents have never been to pizza hut before and the mega enjoyed it. Infact we all enjoyed it. There was so much laughing going on which was great as we havnt had that now for a very very long time. I know it wont last long before then next downer but im glad that my girlfriend and her mother managed to have a great day between the two of them. It was lush to see. I thought I done extremly well at pizza hut also as when I felt full, I stopped eating. I didnt overdo things so im hoping on weigh day tomorrow I will have lost weight so keep your fingers crossed. Just before bed we managed to get Dixie in the show to get the sand and camping mud out from her skin and fur as it was really starting to irritate her. The shower, towel and hair dryer no longer scares her anymore though so it makes the whole process a little less stressful. Though it clearly made her tired as shes now snuggled up next to me in bed dozed to the world. Its been yet another very bust day for me. Cant wait to have a day where I can just sit and relax again as im getting beyond exhausted. TTFN XXXX

Such A Nit Wit

As you can tell from the title, I still havnt learnt from my mistakes. Last night I had to put my steroids up because I was struggling so much, and today my lung function still isnt good, but that still didnt get me to sit on my arse and chill. I had to take my other half to volunteering at lunch time, but because we wetevearly, we decided to walk around the local park with the puppy. That initially killed me espevially as I decided to walk tjis time instead of using my wheelchair. Once I got back home, I had to sort all the pets foods out and get the rabbits in the run. I then had to have some dinner, do my meds and then try and sort my pc out, all before I had to then go pick the other half from work. Stupidly though, I promise my other half that we could go to a place called Cardinham woods and go for a walk with the pup and also have a 'naughty hot chocolate' because it is so hilly though I refused to have someone push me in my chair so ended up walking again. Safly though we only got about 5 minutes in and my legs were giving way and I couldnt breathe, so we had to turn around and go sit gown. I was gutted. Steroid myopathy and brittle asthma are so dibitating and is slowly killing my independance and freedom. My flash back are also flaring back up again. More than the usual daily stuff. I think its because my body is struggling again and its scaring me for what might happen. Im hoping they will settle down again soon!! My pain has also gone ridiculous. This is my fault though. Because of trying for a baby, I have stopped taking my morphine as I dont want it risking causing any harm to the foetus at all. Im considering asking my GP to refer me to rhe pain team to get things back under control. In happy news though, this week I lost another pound in weight. That means I have one pound and three quaters to loose and ive lost another stone in weight which totaled up, thats three stone since last August, im so chuffed with regards to that!! Well, sorry for the depressing post, I just had to talk to someone and you guys seem perfect. TTFN XXXX

New Achievements!!

What an early start it was this morning, one I wasnt wanting one bit, sadly though it had to be done because my other half had a hospital appointment which I was taking her to. Nothing major, just the tightening if her braces, the adding of two more blocks and the adding of a thicker wire all in preperation for her surgery towards the end of the year. I also had a doctors appointment this afternoon because im still worried about my low phostphate level. Im pretty sure something should be being done about it. Thankfully I pre book this appointment a week ago to guarantee it bein with the doctore I get on with. Whilst with him, he dictated a letter to my new local cons asking for his support re my phosphate just to see if there was a link between that dropping and my asthma. He also told me he has wrote on my behalf to the ambulance service so that the next time I have an attack, they dont sit and play. He also gave me a letter from my new cons explaining I had a pisitive test to the mannitol challenge I done a few weeks back, also that he wants me to start a different pill in the hope it may help my asthma...to which my gp at first was confused as in his words "he thought I was in a gay relationship" lol, I had to explain a little bless. All in all im pleased though I also lost another 3lb in weight this week, which gi es a grand total of 8 and 3/4 lb this year altogether. I know its coming off slowly, but im pleased with that, ive not gain any weight at all this year and the slower it comes of the higher chance of it stating off. Right!? Me and my other half also took our little puppy Dixie for a walk down the camel trail today. It was her first time down there where she was allowed to walk and we had her on the stretchy lead so that she could wander where she liked. She absolutly loved it. When she got tired though, she made us chuckle because she just sat there and looked back the way we came. Such a little character she is. Im off for my hip procedure tomorrow so you may not hear from me. Wish me luck!! TTFN XXXX

Todays Activities!!

With starting to crack down on my weight this week (to which was spurred on by my 2 stone weight loss last year) I have totally changed my diet and reduced my meal portions by half.

Annoyingly though because of my muscles, joints & lungs I cant do a lot of exercise. Actually pretty much none. So today, me and the other half plus her mum decided to bite the bullet and go swimming. This swimming pool is fantastic, you pay £3 each (which is rediculously cheap) and we seem to always be there on our own which is lush also.

I only managed 8 lengths and then sat there kicking my legs. But the other two enjoyed their selves and done a lot more lengths.

Im hoping that with having a bit  of exercise in my life now, itll help to maintain my muscles and also help to burn this extra bagadge that im carrying around.

Watch this space though, I could be in agony tomorrow and not be able to move anywhere.

For now...

TTFN

XXXX