Skywire

So being subborn and not letting my health control my life, I saw a voucher on Groupon to go on a Skywire. This particular one is at the Eden Project and is 660m long and goes 60mph. perfection. it was amazing. I felt free and unrestricted. though I had to have help because of my rubbish muscles because I couldnt get into the Harness very well. I hope the video works as it was great and if you ever get the chance you should do it

TTFN XXXX

Finally A Smile Has Broken Through

The simple things in life really do come for freet.

Today i have been unable to get out of bed at all, my muscles have been so weak and i just cant breathe because of this infection so instead ive knitted 8 more hats for my NICU units challenge.

Whilst upstairs doing this, my beautiful other half has been up with me keeping me company doing her wood art ready for the craft fair we are going to.

The meaning behind my title is that all day weve just been chilling listening to my itunes list and my lush girlfriend has been singing away...and she is a bloody good singer.

This has literally just gave me both and internal and external smile.

She really is the reason i push to live. If it wasnt for her, her talents and her general love for everything and everyone i would have given up ages ago.

TTFN

XXXX

Because my lady is so talented (im praying this works) ive uploaded her singing...i love her voice!!

Justgiving

In a few previous posts i have told you about a challenge i have set myself.

Because i have become a lot worse both muscles wise and lung wise i am pretty much stuck in bed unless its for an appointment and then im stuck in wheelchair.

So instead of sitting here feeling more sorry for myself i decided to set my set a challenge of knitting 4950 baby hats. 30 for every NICU unit throughout England.

I have so far knitted 12. 4 today alone.

Although they are hats for NICU units I have decided I want to raise money for a charity very close to my heart. Thisll be my second time raising money for them...

ASTHMA UK

Are my choose charity.

Your support will do me wonders. I have set up a just giving page so please please please support me by donating and sharing my page amongst your friends.

You could save my life by finding research to give me a better medication. You could chanhe my life around!!

Here is my page, keep sharing and please donate. It only has to be a small amount

Your page: http://www.justgiving.com/Charlie-Hockaday-Williams

TTFN

XXXX

Typical Day

For me the weekend doesnt really change from any other day of the week. Other than the shops being busy and you see more people walking about the village, its all just another day for me.

I decided last night that it was time for my hair to have a change again. I jeeded a fresh look. Make myself feel good.

So, me being me the minute i woke, i done my usual routine and then we headed off to asda to buy dye.

Although me hair is blonde, i decided i wanted it blonder so we go a bright bleacg blonde. I also wanted to add some colour too so we got a bright pink too. My partner got black. Talk about complete opposites lol.

Once all my hair was dyed blonde, my partner cut it for me, re done my shaven patch and upon my request i got her to put two zig zag lines across my shaven patch. When the pink was ready to b applied, we done my usual fringe bit and also the zig zags. With having pre lightened my hair it now looks friggin amazing. Nice an bright and colourful. Although my partner used the same pink, because she dyed her hair black initially, hers turned out a plum colour which for her looks stunning.

Just doing this though completly exhausted me so i had to go back to bed...three hours later im awake not realising how exhausted i must of been. I do get annoyed by this. For the average person, they would dye and cut their hair after a 6 hour day at work or something very similar and not be anywhere near as tired as me. I do wish some days that my life wasnt like this.

When i eventually woke up properly, i was extremly itchy, so i put on my glasses and i could see why. I was having yet another full blown reaction. I was as red as a beetroot and my lips were double to size. Eventually after 6 antihistames, things started to return to their usual self, and no epi pen was needed but i think if these antihistamines hadnt of kicked in, i would have been stabbing myself in the leg again!!

Ive also managed to knit another 2 hats today so i now have 5 in total ready to send to my first NICU unit. Only another 25 to go and thre gift box will be off to the post!!

Untill next time...

TTFN

XXXX

Really!?

For me today has been reasonably ok. Ive literally only been able to get out of bed twice though literally today. On the second occasion i collapsed also which was a gutting blow.

Myself and my partner had a great zebra baby grow arrive today for our future child. Its blinking lush. Yes you may say but your not pregnant, but for us, because we cant work, our theory is if we start buying things gradually over the months, our baby will have everything they need and deserve and can have the best start in life.

I also had my birthday present arrive. My DIY 35mm slr camera.

After just under 2 hours, I had completed the challenge of my big build and it absolutly shattered me...I ended up falling asleep for an hour and a half afterwards just to recover but im pleased with the end result. Now just to get 35mm film.

In other news though my lady has had terrible period pains. Ok i suffer from other sorts of pains but ive been lucky in the sense ive never had period pains. She was in tears and i had no idea what to do to help her other than drug her up on pain releif. She ended up curled up next to me with a hot water bottle and thankfully a few hours later everything had settled down again. God knows what shes going to be like during labour if this was painful for her though ha. Ive gotta try and get my arse out of bed tomorrow though as Dixie has the vets so untill tomorrow... TTFN XXXX

Goals And Challenges

After my shit news yesterday about potentially not being able to have children, I decided to set my self a challenge. Whilst I was in hospital last week, a very good friend of mind suggested I start knitting, it doesnt take much muscle mass to do and certainly doesnt take and lung power, so off I pop to youtube and have so far self taught myself how to make baby hats. I have currently made 2 for mine and my partners future children, I am hust waiting for more wool to arrive in the mail and ill be making my sisters baby a hat and ive also currently made two others of different sizes. These extra two hats are going towards my challenge. My challenge being that im going to make 30 baby hats for every NICU unit in England to which there are 165. So that roughly 4950 little baby hats I have set my self to knit. This for me would be an ace goal to achieve, not only because its keeping me busy but also, I cant do things like donate blood or stem cells any more because of my deterioration in gealrh so doing this will make me feel mentally great about being able to help both the tiny little babies who are poorly and also their families because not many clothes fit such small children. On average at the moment im making one hat a day as it does cause me cramps so I fear it could take me a little while to achieve my challenge, but im sure I will feel fantastic when not only the first box is done but also the 165th box just like I felt great after I made the first hat. I will keep you all up to date with my progress of course. In other news today Ive not been to great. I went down stairs briefly today as we purchased Dixie a paddling pool because she loves water, but that small amount for "doing somethinf" totally exhausted me and ive been asleep all afternoon as a result. In good news though, myself and my partner have been in contact the the local registry office in Bodmin about booking our wedding. They are just sorting a few things put and will be getting back to us. Marriage for us is super important as it means that legalky when we have children, because we are married we are both legally allowed on the birth certificate so both play an equal, fair and legal role withing any future childs life. So, theres a lot to keep you posted with...untill next time... TTFN XXXX

All Puppied Out!!

Yesterday me and the other half went out for a trip to Exeter with the parents as they were off looking at puppies for themselves.

When we got there, the lady decided to bring out her last two remaining bitch dogs and we all instantly fell in love with them both!!

Their mum is a sprocker (for those who dont know what that is, its a mixture between and cocker and a springer spaniel) and their dad...well we dont know. The mum decided she wanted to jump the wall and erm was pregnant.

We are so excited to have our new little girl with us, whos name is Dixie by the way.
She has given us so much love already, I didnt think it was humanly possible.

Our first night with her was different lets say that. We were up roughly every 3-4 hours with her either needing to take her outside for a wee or because she wanted to chew on her teething bone.

Shes only 6 weeks and is the smallest little madame ever!! Going to be so weirs this time next year as shell be about 4 times bigger.

TTFN

XXXX

Todays Activities!!

With starting to crack down on my weight this week (to which was spurred on by my 2 stone weight loss last year) I have totally changed my diet and reduced my meal portions by half.

Annoyingly though because of my muscles, joints & lungs I cant do a lot of exercise. Actually pretty much none. So today, me and the other half plus her mum decided to bite the bullet and go swimming. This swimming pool is fantastic, you pay £3 each (which is rediculously cheap) and we seem to always be there on our own which is lush also.

I only managed 8 lengths and then sat there kicking my legs. But the other two enjoyed their selves and done a lot more lengths.

Im hoping that with having a bit  of exercise in my life now, itll help to maintain my muscles and also help to burn this extra bagadge that im carrying around.

Watch this space though, I could be in agony tomorrow and not be able to move anywhere.

For now...

TTFN

XXXX

A Few Weeks In!!

A little hectic has to be said for this first few days of 2014 BUT I have enjoyed it - kind of.

Day one started off not so good as my lovely lady had suddenly picked up a tummy bug and from 3 am for a good 12-14 hours she was vomming none stop, felt so sorry for her as she was stuck in bed all day being poorly. Thankfully by the nexy day though she was a lot better.

To start off the new year, we decided that we wanted a fresh start so we have redecorated our room. Annoyingly it has taken a week and me ending up being poorly myself and in bed for a day,but it now looks stunning. We have a paint called malibu beach on three of the walls and on the fourth we have patterend wall paper that is of a charcal colour and has a variety of different birdcages on with yellow birds within them. Ok, it sounds a little strange but it looks stunning. We also now have our lush new canvas painting on the wall that our lovely sister in in law and her girlfriend has made for us for christmas and we also have a butterfly lapshade with very similar bedding that my other halfs parents got us for christmas. So our room is now set up nicely for when im having my rough days and cant leave my bed and it also just generally looks stunning to walk in and see.

I had an appointment today with the maxifacial team again, was meant to be getting my biopsy results but sadly because of the time of year that I had then done, they have been delayed a little. I have to say, not what I was expecting to hear when I walked in there so sadly have to wait around another week or two before I know what the lump was that I had growing in my mouth.

Generally all else in my little life has been great so far this year...touch wood. I have an appointment with ny new lung team in Plymouth on Wednesday so that could be a challenge, to which im sure youll hear about!!

I also completed the start of my photography portfolio today, the 9 photos that I have in there really do look stunning and for once I am proud of the work I have done.

Oh and its official, my sister is pregnant, and I am going to be the best aunty EVER of course lol.

TTFN

XXXX