Busy And Excited All In One

Today has been one of those up and down emotional days

It started off with anger. My partner woke up super early knowing she had an order for a cake. 2 hours after she had been awake and the cake was cooked, the lady who ordered the cake sent a message saying she no longer had the money to pay for it and wondered if she could pay on friday but still have the cake tomorrow. Straight away i said no, it doesnt work like that. Weve taken the decision to not give her the cake. She said she would let us know of she could get the money from someone at 7pm tonight. I have no idea hpw she expected my girlfriend to turn over a peppa pig model cake at 7pm tonight. Crazy springs to mind.

After all that curfuffle, my respiratory consultants secretary got back to me after i left a message yesterday and has made an appointment for me in August to give him my over night sats recornings. I really praying something can be done about them as i woke up again with a huge headache and it puts me in a foul mood.

I then tried to have a snooze this afternoon as i was physically and mentally exhausted and my partners parents decided they would be as loud as possible. Bearing in mind we live in the countryside where theres no traffic or noise, they decided that instead of talking to each other in the garden, they would shout at each other. Pissed me right off as i got no sleep. So not only am i not sleeping on the night time but im being stopped during the day. I wouldnt mind but they knew i was asleep as my partners mum decided she would come in our room and start talking to my partner whilst i was led there with my eyes closed. Actually thinking about it...pissed off doesnt describe in detail enough how i was feeling.

Then ofcourse we had excitment...the pram and car seat we ordered on the weekend arrived. Its so amazing and very well padded for the child. best of all. It didnt have pictures on the side of the boxes so there was no chance any one could see what they were so our worries about the hell we were going to get werent needed yay.

I then on the other hand dropped the bomb shell to my partner for how much money since saturday i spent on baby stuff...and ot came to £159 whoops. Not buying anymore for now then hehe.

TTFN

XXXX

Busy, Excited, Tired...All In One

These last few days have been very hecric but amazing at the same time.

We did manage to go away which i am so pleased about.

First off we paid a visit to my sister as my other half baked her the most amazing birthday cake ever so we went and had tea with her, gave her all her presents and webt and seen the finished nursery. So excited as theres literally on 2 or 3 weeks left and the baby should be here.

Following my sister we went off to Dorset, Sunday night was just a chill night with a few dvds, relaxing ready for our big day.

Our donor text us saying he was early but it was ok as we were ready and excited. He is so funny as he fitted us in between a trip to the tip and shopping at morrisons before picking up his son from school. Im so glad that he found us as we couldnt have found a better man to "father" our child.

Post doing the deed, we decided to take a random trip to Glastonbury to go charity shop shopping where we baught 8 baby items for £4. I absolutly love charity shops. We then went and had a proper realy banana milkshake with ice cream. Yum...well my girlfriend had a banoffee one but it was still uber lush.
To top off our amazing day, we then went and had a meal at the pub next to our hotel. I really do love spending these little days out with my lady.

On Tuesday I decided to take my other half to Clarks Village as shes never been there before either. We had a lush bit of retail therapy and i really treated her. She deserves it after all hehe.

Over the last few days ive been waking up with really bad migraines again. Thankfully though because i have been doing the over night oxygen readings its been showing that its clearly low oxygen levels that is causing it as they dropped down to 82% most nights.

In other good news, 4 weeks later ive finally cleared my chest infection so i am super pleased. I hate the fact it takes so long to shift but i guess thats just my crappy body.

Well, we find out if we have had any luck with our donor around the 25th July so if you could all keep your fingers and toes crossed for us I would be super pleased as i really cant wait to have a child with the most beautiful girl in the world.

TTFN

XXXX

Waiting For A Change

Sadly im still pretty much in the same mental state, no better but also no worse. Though i do wish that it would get better as its really playing on my mind.

On Thursday it was my best friends birthday and both myself and my oher half with my best friend went to alton towers. I drove us up there as im not a huge fan of coaches.

I was in my wheelchair all day as I just couldnt cope out of it. Because we got disability passes we were also allowed "special" passes which meant that we got to que jump and go straight to the front of every ride. With having this is meant we got on ever ride which was amazing.

By about 5pm i decided to stand up and stretch my legs for 5 minutes ready for the 6 hour drive home. Sadly though because another migraine had started hitting me, as i stood up i ended up collapsing straight down to the floor. Was out for the count on the floor of alton towers for an hour. When i woke up i felt really week, breathless, was shivering and generally felt like crap. I started driving us home but within an hour i had to stop at the services as i just couldnt cope anymore. After a good rest we set off again.

Thankfully my dad lives 10 minutes from my best friends house in bristol so i rang hime up telling him we were crashing at his house for the night. I literally felt like crap.

On friday, we set off home again stopping near on every hour and when we got home i literally went straight upstairs and slept for hours.

Something really took it out of me. My temperature has been sky high since and i am feeling chesty so ill be sending another sputum sample on monday in the hope itll give answers.

My other half has been making her owl cake that someone has ordered and it looks blinking amazing, ill have to show u all a picture once its complete.

TTFN

XXXX

Busy Bees!!

Rise and shine...nice an early again, but this time not because of Dixie, but because we had to run around and then go to a hospital appointment. First stop though was our usual walk around the field, but we only walked around once this morning as we were running a little late. Our next stop was pets at home as we needed to get Dixie some more meat, milk and sausages. We also had a sneaky treat for her and got her the most amazing coat. Its pink and has little reflectirs on, is waterproof on the outer shell and has a fleecy lining underneath. Weve got this because weve noticed recently that she is shivering so much out on walks because shes cold. When we took her on her walk this afternoon, we put on her coat and then her new harness (which arrived in the post also today) and went for our afternoon stroll. Heres a picture:

Afters the shopping we had to quickly dash around to St Austell as the other half had a hospital appointment about her bladder. All went ok, but it turns out that she has very small wee tubes so thats why it takes her sssssoooo long to go for a wee. She has been asked to do a wee diary for a day and for this she has to measure and document every bit of fluid in and out of her body...yum Our next adventure was to Trago. If you dont know what this is, its basically a huge discount store, they sell anything you could think of at a much cheaper price. We had to come here to buy a mass load of wood and chicken wire as my girlfriends dad has kindly said he will build us a run for our three rabbits. I cant wait to see the finish product. Lastly (for running around and appointments) my lovely lady had a home vist from the cornwall carers team to see if they can provide any extra support for her because she looks after me full time. I left them to it as this was for her, not me. Lots of great thing have been suggested to her like doing this group that has been set up specifically for young carers who meet regularly and go on outings like for meals or bowling etc. I rekon this would be fantastic for her, but although sh would love to, shes worried about leaving me. Im in the midst of persuading her ill be ok for a few hours, make me a hot drink and leave it for me and im sorted ha. The lady also suggested to her and gave her forms to fill in for us to get grants to go on holiday or on outings for day trips. So weve filled them in tonight and they will be popped into the post box tomorrow. Other than all that really, weve just been chilling. I also got myself making a fruity kebab for our bird kiwi. Hes a red rumped parakeet and were currently experimenting different veggies with him to munch and play with as a boredom breaker, healthy style...ill keep you updated on that. So, finally, I have four photos here from the naming ceremony I dont the other week. Now that the family have seen them, ive been able to copywrite them and put them on my facebook page, and now ill upload them here for you to see. Let me know what you think as I love feed back, nothing is never negetive, but constructive so ill always appreciate it.

This cake by the way was made by the most amazingly talented person I know...my girlfriend!! TTFN XXXX

Overdone It Again!!

I knew today was going to not only but busy but also hectic and stressful. Thanks to our darling pup, we were awake at 7am so just decided the day may aswell begin. After sorting out the rest of our pets and eating breakfast we headed off to the swimming pool. I told myself I was doing 100 lengths as punishment for eating rubbish food yesterday, and, I done it but it killed me. As a result tonight both my lungs and muscles have officially given up. When we left the swimming pool we had to drive round to the tip and unload a car full of crap that I just can no longer keep since moving in with my other half. It was sad to see many things go, but heres to the future right!? We finally manged to get home at lunch to which my other half set off for doing the final touches to the cake ready for the naming ceremony tomorrow. I on the other hand, read up on some photography and downloaded a new software onto my computer that my sisters in laws purchased me. Eventually this evening I did start helping with the cake though as time was pushing on and I didnt want my other half stressing. I wanted to leave the majority to her though, as shes amazing at these sorts of thinfs and its only fairvas im doing my part on the actual day by creating the memories through photography. As I mentioned, we started the cake at lunch time which was roughly around one ish, and we finished all of half and our ago which was roughly 2230. Ill try and get a picture of the cake to upload for you all to esee over the next few days. Suspiciously, (dont want to build my hopes up) but today and yesterday I have been feeling so hugry and wanting to eat everything insight. Im just craving food soooo much. Im not sure if this is a sign of a positive note, or just because ive had my steroids up again. Lets just say im hoping its not the second thought. Complete change of subject now, but, I never understand why I put my body through so much. Every day thus week weve been busy with something, and now after tiday ive completly screwef my body up again. Im hoping I havnt screwed it up to beyond movement tomorrow meaning ill end up letting my friends down. This and fir next week when me and my other half are having our official first un hotel holiday break with just us...oh and Dixie!! Ive always loved camping and other than camping in the back garden for a tester experience last year, my other half has never done it. I was determind that this year it was finally going to be ticked off my bucket list again as since my illnesses become so bad, ive not been able to go, but this year ive decided to say sod it, I could be dead by the end off the year, I need to start living for today...so thats what im doing. Right, I better go, got a blinking lit to do tomorrow and ive got physio and nebs to do now!! TTFN XXXX

My Lovely Events

Today hasnt been the most of exciting days at all if im honest. Ive had rather a lot of pain and literally just cant get comfy, ive been led down, sat up, walking around and in any other position that is possible to try. My other half has been decorating her many cakes to which is going to finalised into one big cake in the end. Its for our friends naming ceremony in a few weeks time. She is so excited and it looks amazing considering shes never done anything like this at all. Ok shes done many of cakes, but not done anything to this level before. Im so proud of her!! I on the other hand has been reading more photography stuff and hunting for a perfect place for sunday to go take this perfect photo for my next competition. So far. The four ive entered have got me silver awards which I never in a million years thought id achieve. Once all our daily hobbies were done, we took our puppy to the field which is literally a house away. She absolutly loved it and couldnt get enough of it, and luckily for us, shes slept since shes got back. I on the other hand is in more pain than before. Because of it being soggy grass, I couldnt go in my wheelchair, so went with my crutches, but it still left me off worse, so have been in bed since. Myself and my partner are still continuing our healthy eating diet in the hope to keep loosing more weight. Our meal tonight was blinking scrummy. It was a sausage omelette with pan warmed pepper slices. Was blinking amazing, ive never trialed with so many different food and flavours before and its really getting me stuck in. Fingers crossed for weigh day on monday. In other news, last night at 8pm, I found out that my bank card had been blocked. So I had to ring the bank and was told that because ive changed my last name, I now cant access funds untill I get my new card. That or go to my local branch with photographic ID and draw out cash over the counter thing. They couldnt understand the whole no ID as ive changed my name and that has also been sent away. They also couldnt u derstand that my nearest branch is over 30 miles away and dont have enough petrol to get there and cant get petrol as cant use my card. They have also left us screwed food wise. We were meant to go shopping tomorrow after ive picked up my prescription as we have no food and my drugs run out tomoorow. We now cant do any of that. I really kicked off with the bank and they said id have the manager ring me back within the whole...11 hours later and im still waiting for that phone call. As a result, last night I sent an email to the bank destressing how much I need my money, they responded which is great, but they said, they were putting my complaint through the right team, and not actually dealing with the need of my money by tomorrow, so I replied in a very stern manner. I am awaiting their result. Dont think im going to get money by tomorrow though which really isnt helpful. Well, theres my non exciting day. TTFN XXXX