Wow, what a month, and it seems I haven't posted in a very long time!!
I will try my best to keep this post, erm a little smaller than what my head and fingers want it to be :)
So since I last wrote, I have been in hospital yet another time with my stupid lungs, what a challenge that was. I tried to do what my consultant has been nagging me to do such as try and get into my Respiratory team first before rocking up at A&E. 11am came and I was still struggling following a really rubbish night at my dads, 3 hours later and I had no job with emails and phone calls, so I rang my GP, by which point there was no appointments at my GP surgery either (great), so I rang my mum in a complete state not knowing what to do as my consultant told my to not rock up at A&E. she rang GP and they said just turn up at the surgery and then the GP will have to see me...Fantastic!! By the time all this happened it was not 1630, GP took one look at me and rang the hospital for advise...he too failed to get through to my Respiratory team (so thats a whole day with no help from them at all) so he rang the Medical Registrar on call. I was reluctant to go to A&E because of what my consultant said, so they told me to do two hourly nebs and increase my steroids, and also said that if my Peak Flow was to drop any more I had a bed ready for me at the hospital...Well, sadly my Peak flow hit the floor and mum was not letting me suffer all night so took me to hospital. After a load of IV treatment I started to pick up a little! AMAZING...a nice short stay...wasn't I mistaken, by Friday I was starting to crash again, so my consultant told my to have more IV aminophylline for 24hours (this was in one breath, in the second breath she for some reason told me it wasn't asthma...erm so why you shoving all these poisonous drugs into my veins?!) she then came back and said it was asthma again...talk about confusing the brain. after 24hours I got reviewed by the docs again who still wasn't happy with the lack of air moving in my lungs (I wouldn't be happy either, so got put on another 24 hours worth) unfortunately the Doc on call on the Sunday wasn't a respiratory one, so after checking my levels at pm, then decided I could have it taken down at 2200 that night and give me my tablet form straight away...I started vomiting and having a massive headache and told them they needed to check my lunchtime bloods to see if ive now not been given to much aminophylline...and scarily enough they had and my level was nearly 30!!! WHAT?!?!?!?!
Any-who, my Consultant decided she was then keeping me in to do a medication sort out! fantastic!! - All she did was reduce my steroids by 20 over 2 weeks...hmmm now I'm lost.
Then on my discharge letter, she wrote I had been admitted for a medication sort out, and didnt include any of the three asthma attacks I had nor the poisoning etc etc!! So it was a trip to the GP for me to explain what had actually happened!!!
On a positive note, whilst in hospital, a good friend of mine decided to visit and bring me to lush flowers and it cheered me up, he then came down to visit on the day I was discharged and took me back to the hospital to collect the medication that the hospital forgot to give me...he also revisited me on the Wednesday and my good old friend...became my boyfriend!!! Happiness is on the horizon...
... Until...
Wednesday 21st March!!! I had a meeting at work to go over my employment, and I lost my job as there was no actual date for return...So for every up in the world, it seems there has to be a down along the road also!
So, I get straight onto the job centre to let them know the change of circumstance for my ESA, to which they told me that they haven't been paying me since December anyway as my past employer hadn't been sending in my sick notes...BLOOD GREAT, could any more go wrong!?
Yes!!
I then Ring my GP to get the sick notes again and they say they cant provide as I wasn't a patient with them at that time, so I now have to wait till I see my consultant in a weeks time and pray she gives me one.
As a result, I check my bank to get some money out for petrol to go see my friend in Bristol, and the bank says NIL...in yet another emotional state, I ring my mum and have to borrow money for the first time EVER!! not a habit I'm getting into!
As I think I have now suffered enough for one week...I start to look on the ups again.
What a fol I was, the coolant pipe on my car decided it wanted to explode and I cna no longer drive my car...nor can I purchase the part to fix it!!!
Any way, that has been my month so far...many little downers, and one amazing up with the MAN!!
Until next time!!
TTFN
xxxx
Saturday, 24 March 2012
Sunday, 26 February 2012
Ive Heard Of It, Now Ive Witnessed It!!
So, we all hear the tales of the craziness that rocks up into A and E and i thought I would share mine from my last trip to the emergency room...and lets just say whilst struggling to breathe, chuckling with the docs about these rubbish people thats rocked up really did prove a challeneg!!
So here they are:
1.Man calls an ambulance and tells them he has difficulty breathing,so naturally he will get a ambulanceon flashy lights and trained paramedics...the crew bring him in and whilst in the cubicle he then tell the doc 'oh I dint actually have difficulty breathing, my eyes are blurry and it was annoying me, doc response 'go and see an optician then,they are trained in eyes better than me'
2. This man didnt call an ambulance thank god...but he rocks up and said 'I had a nose bleed three hours ago and I thought I should get checked out' docs response 'three hours later...couldnt have been that bad!!'
wow it makes me chuckle what people turn up with...and this was within and hour,I hate to think what turned up for the rest of that shift!!!
xx
So here they are:
1.Man calls an ambulance and tells them he has difficulty breathing,so naturally he will get a ambulanceon flashy lights and trained paramedics...the crew bring him in and whilst in the cubicle he then tell the doc 'oh I dint actually have difficulty breathing, my eyes are blurry and it was annoying me, doc response 'go and see an optician then,they are trained in eyes better than me'
2. This man didnt call an ambulance thank god...but he rocks up and said 'I had a nose bleed three hours ago and I thought I should get checked out' docs response 'three hours later...couldnt have been that bad!!'
wow it makes me chuckle what people turn up with...and this was within and hour,I hate to think what turned up for the rest of that shift!!!
xx
Thursday, 23 February 2012
Life And Death As We Know It
Ive had enough
i want it to end
ive done it before
ill do it again!!!!!
so, this is what i put last night as again for the third night in a row i have had no sleep and before that i have only had a few hours of sleep. and this is all because of infections and crappy asthma. i am ultimatly fed up with rubbish lungs, why cant they just behave for a little bit. a day or a night or even both. i would be happy then. im just not seeing light at the end of the tunnel and cant see my lungs getting better anymore. i tell people im not depressed and put this nice big smiley face on so my family can be happy as i dont want them suffering but see how down it is getting me and i have literally had enough...i currently hate my life right now... and to top it off i got turned down from uni becuase of my health...
...got another meeting at work on tuesday with hr and it doesnt look good at all. just wish that there was a cure for asthma right now..
xx
i want it to end
ive done it before
ill do it again!!!!!
so, this is what i put last night as again for the third night in a row i have had no sleep and before that i have only had a few hours of sleep. and this is all because of infections and crappy asthma. i am ultimatly fed up with rubbish lungs, why cant they just behave for a little bit. a day or a night or even both. i would be happy then. im just not seeing light at the end of the tunnel and cant see my lungs getting better anymore. i tell people im not depressed and put this nice big smiley face on so my family can be happy as i dont want them suffering but see how down it is getting me and i have literally had enough...i currently hate my life right now... and to top it off i got turned down from uni becuase of my health...
...got another meeting at work on tuesday with hr and it doesnt look good at all. just wish that there was a cure for asthma right now..
xx
Sunday, 12 February 2012
21 At Last!!
So, it was my Birthday yesterday, and I have to say It was pretty cool!!!
Some how, my did and step dad still managed to take the lime light for half the day by either announcing to the rest of the family about his and my mums engagement and my sis by causing an argument with her boyfriend...oh yeah geeze thanks guys, but none the less it was fantastic...
Woke up at 0900, and fell back asleep doing my meds...of course!!
Then strolled downstairs and opened my presents from my mum and ll my cards and has to say although I asked for nothing, I got some bloody amazing gifts...thank you muchly mummy!!
Left at 12 for family professional photography which was great, and the kids had fun so I'm over the moon!!
Unfortunately by 4pm I was needing a nap as my lungs were getting a little stressy with all the walking about. Thankfully it only lasted just over an hour and I was up ready to get dolled up for a huge meal with friends and family and a fair few drinks...
... Far few drinks, yeah right!! Got to 2130 and the bar was propping me up so I ended up heading home, Yes sad I know, 21st Birthday and heading home at 2130, but I would have rather this than landing back in Hospital on my Birthday itself!!!
Absolutely knackered today though and have stayed in my PJ's all day...I guess you could call it an extended birthday lol!!!
Off to see my Daddykins next week so will be an extra long extended Birthday!!!
Missing my Nan very much though who sadly died on my 13th Birthday!!! Been a long time, but always in my thoughts!!!!
xx
What An Experience!!
Admitted: 24th Jan
Moved beds: 8 times
Number of times treated like crap: lost count
Number of time nurse says getting a doc then you find out they couldnt be arsed: 5
So I was admitted two weeks ago, most of which ive not be allowed visitors because the hospital has been shut because of norovirus. Because of this I also had to stay on MAU for a week as my resp ward has been shut.
When I finally get to my resp ward they aim to get me home last Thursday but unfortunatly my peak flow dipped and they refused to let me go and increase my steroids even more. By the evening I as struggling and I was needing regular nebs overnight, which my nurse was rappidly getting cheesed off wiith...sorry I thought you job was to care?? must of been mistaken!!!
Friday care, got reviewed by my cons and told for safety resons and to get me better for my 21st (on 11th) they are keeping me for the weekend and they are writng a plan in my notes that if my sats or peak flow dip anymore and I start struggling I am to have the doc come straight away and I am to have back 2 back nebs and straight back onto the iv amino...
...Saturday was reasonable managing 2 hourly nebs...Sun I had a good day, no probs untill bout 1930 at night and I started having a random attack out the blue...ONE, yes ONE neb later an the nurse abondons me, night staff come onto the ward, and says there not getting a doc as there on call and wont change anything (hmm what happend to the plan in my notes)...needing losts of nebs overnight, 0630 comes and I ask for another (lets just say was still waiting for that neb a fair few hours later)
Mum rings up the ward in the am to ask how I am as I tell her was poorly pre bed...nurse tells mum I had a really good night and slept well... WTF DO THEY HAVE THE RIGHT PATIENT???
I have to say the care has been utterly disgusting.
Moved beds: 8 times
Number of times treated like crap: lost count
Number of time nurse says getting a doc then you find out they couldnt be arsed: 5
So I was admitted two weeks ago, most of which ive not be allowed visitors because the hospital has been shut because of norovirus. Because of this I also had to stay on MAU for a week as my resp ward has been shut.
When I finally get to my resp ward they aim to get me home last Thursday but unfortunatly my peak flow dipped and they refused to let me go and increase my steroids even more. By the evening I as struggling and I was needing regular nebs overnight, which my nurse was rappidly getting cheesed off wiith...sorry I thought you job was to care?? must of been mistaken!!!
Friday care, got reviewed by my cons and told for safety resons and to get me better for my 21st (on 11th) they are keeping me for the weekend and they are writng a plan in my notes that if my sats or peak flow dip anymore and I start struggling I am to have the doc come straight away and I am to have back 2 back nebs and straight back onto the iv amino...
...Saturday was reasonable managing 2 hourly nebs...Sun I had a good day, no probs untill bout 1930 at night and I started having a random attack out the blue...ONE, yes ONE neb later an the nurse abondons me, night staff come onto the ward, and says there not getting a doc as there on call and wont change anything (hmm what happend to the plan in my notes)...needing losts of nebs overnight, 0630 comes and I ask for another (lets just say was still waiting for that neb a fair few hours later)
Mum rings up the ward in the am to ask how I am as I tell her was poorly pre bed...nurse tells mum I had a really good night and slept well... WTF DO THEY HAVE THE RIGHT PATIENT???
I have to say the care has been utterly disgusting.
On day 16, getting massivly depresses, had to have the iv amino
stop at lunch time today as my heart was going way to fast. Had a massive attack
last night and had to have several back to back nebs, and magnesium again.
Thankfully I had a blinking amazing nurse who was with me nearly all night, got
doc straight away who also had itu re review me.
Cons seems to not be
listening to me, though and is more interested in just getting me home for
my bday, dont get me wrong, that would be lush, but pretty pointless if I cant
breathe...
Was also rather shocked...was so upset I walked of the
ward...nurses hadn't even realised I went missing...bit silly considering I was
on hourly obs and wasnt allowed to leave my bed....aparently according to the
patient next to me, the nurses and docs kacked it....yet...when they spoke to me
afterwards and told me to stop getting upset, I asked them if they have asthma,
resp probs or struggle daily to breathe (all of which was no) I then said I wish
just for one day they could have my body and feel my suffering,.to which they
apologised and walked away from me...still no where, still struggling, cant have
any more iv treatment because of my heart so is left with nothing...again...god I actually hate asthma and my life right now!!!
Thursday, 19 January 2012
One Expensive Companion!
So, I have this rabbit called Spice, and last week I took him to the vets because he had poorly eyes, and then got told he needed to have an operation as it was his teeth that was causing the problem.
Tuesday came and it was time to take him for the operations, I dropped him off at 0900 and didnt get him back untill 1630, wow what a long day that was when it is something you love so dearly!
The vet tld me that becuase he was so mistreated from the people I rescued him from, his teeth were in such a bad condition, she was suprised he could eat at all. Poor little sod, so helpless yet gets treated like crap, just glad I rescued him when I did!
Sadly it cost me a grand total of £140, but that is £140 well spent and wouldnt have it any other way!!
Since he had been runing around like a happy little chappy, so his teeth must have been really hurting him!
In the mean time I have had to feed him through a syringe, what job that has been...who know how messy you (and the rabbit and the sofa and the carpet and the cushions) sould actually get!
Took him back to the vets today and they are really happy with his progress, said that they can tell he is very much loved and cared for now (put a smile on my face to know I was doing right!)
Have to take him back again in a weeks time to make sure all is good, and fingers crossed that is the last vets trip for a few months!
Think he just wants to kee up with his owner for having the Doctors look at him...Well they do say that our pets are like their owners dont they!!
TTFN
xxxx
Tuesday came and it was time to take him for the operations, I dropped him off at 0900 and didnt get him back untill 1630, wow what a long day that was when it is something you love so dearly!
The vet tld me that becuase he was so mistreated from the people I rescued him from, his teeth were in such a bad condition, she was suprised he could eat at all. Poor little sod, so helpless yet gets treated like crap, just glad I rescued him when I did!
Sadly it cost me a grand total of £140, but that is £140 well spent and wouldnt have it any other way!!
Since he had been runing around like a happy little chappy, so his teeth must have been really hurting him!
In the mean time I have had to feed him through a syringe, what job that has been...who know how messy you (and the rabbit and the sofa and the carpet and the cushions) sould actually get!
Took him back to the vets today and they are really happy with his progress, said that they can tell he is very much loved and cared for now (put a smile on my face to know I was doing right!)
Have to take him back again in a weeks time to make sure all is good, and fingers crossed that is the last vets trip for a few months!
Think he just wants to kee up with his owner for having the Doctors look at him...Well they do say that our pets are like their owners dont they!!
TTFN
xxxx
Saturday, 14 January 2012
What An Outstanding Week!!
With an eventful week I think im due a holiday, only fair, right?!
Monday was a lush day, I met with a nice man called Chris, Realy nice looking, Chats for England and certainly knows how to treat a lady right. BUT for some reason, I dont know whether being with him is the right choice.
Tuesday was reasonably good, had Occupational Health and the loveRly man agreed for me to return to work on a set plan. GREAT so happy, although a little scared as I havnt actually worked since April 2011 now so a little worries about how my chest may be and whether I would be able to do my job as well as what I used to. Following this, I then had to run to Weston hospital for a load of tests on my eyes to see why I have blurred vision.
Wednesday Consisted of my two weekly Asthma cheek up, and I was saved by the fire alarm. Literally. Had all my usual ENO and Spiro done which I have to say was pretty ok this week, not sure if this is because it was on a different machine or not though?! Then just as I sat in the next room and started discussing the future with my Asthma and being refered to Birmingham, and trying to reduce back to maintenance meds, and was about to have my chest listened to as Ive had an infection for 2 weeks now, the alarm went off. Kindly I told the resp team that I would leave them to it as it would be a long wait, and I would email them if anything went wrong or I needed their help. Result, otherwise I think I was on the verge of being captured again!
Thursday on the other hand was a little different. Went back to Weston hospital for another eye appointment, had even more tests, two lots of drops and a 2 hour wait, to then be told I have cataracts as a result of the long term steroids that Ive been on. Thankfully, there not to bad at the moment, but im upset because with only being 20 its not nice knowing my vision could be effect in the next few months/years unless I can get off these steroids. Shame they cant find a cure for Asthma hey!
Friday was horrible. Had to take my rabbit Spice to the vets as I suspected he had an eye infection. £30 later, 3 times daily eye drops and and very scared rabbit after the vet was checking him all over, oh and an operation on Tuesday to fix his teeth that are wanting to grow in the wrong direction, and I should have a very nice an content Rabbit! Well, Ill let you know about that on Tuesday!
Today has been a lush relaxing day, Ive been doing a puzzle and had a walk to the pet shop to buy some stuff for Spice and then to the supermarket to buy stuff for me...yummy!!!
Well Thats my week so far :) lets hope next week is a little better!!
TTFN!!!
xxx
Monday was a lush day, I met with a nice man called Chris, Realy nice looking, Chats for England and certainly knows how to treat a lady right. BUT for some reason, I dont know whether being with him is the right choice.
Tuesday was reasonably good, had Occupational Health and the loveRly man agreed for me to return to work on a set plan. GREAT so happy, although a little scared as I havnt actually worked since April 2011 now so a little worries about how my chest may be and whether I would be able to do my job as well as what I used to. Following this, I then had to run to Weston hospital for a load of tests on my eyes to see why I have blurred vision.
Wednesday Consisted of my two weekly Asthma cheek up, and I was saved by the fire alarm. Literally. Had all my usual ENO and Spiro done which I have to say was pretty ok this week, not sure if this is because it was on a different machine or not though?! Then just as I sat in the next room and started discussing the future with my Asthma and being refered to Birmingham, and trying to reduce back to maintenance meds, and was about to have my chest listened to as Ive had an infection for 2 weeks now, the alarm went off. Kindly I told the resp team that I would leave them to it as it would be a long wait, and I would email them if anything went wrong or I needed their help. Result, otherwise I think I was on the verge of being captured again!
Thursday on the other hand was a little different. Went back to Weston hospital for another eye appointment, had even more tests, two lots of drops and a 2 hour wait, to then be told I have cataracts as a result of the long term steroids that Ive been on. Thankfully, there not to bad at the moment, but im upset because with only being 20 its not nice knowing my vision could be effect in the next few months/years unless I can get off these steroids. Shame they cant find a cure for Asthma hey!
Friday was horrible. Had to take my rabbit Spice to the vets as I suspected he had an eye infection. £30 later, 3 times daily eye drops and and very scared rabbit after the vet was checking him all over, oh and an operation on Tuesday to fix his teeth that are wanting to grow in the wrong direction, and I should have a very nice an content Rabbit! Well, Ill let you know about that on Tuesday!
Today has been a lush relaxing day, Ive been doing a puzzle and had a walk to the pet shop to buy some stuff for Spice and then to the supermarket to buy stuff for me...yummy!!!
Well Thats my week so far :) lets hope next week is a little better!!
TTFN!!!
xxx
Subscribe to:
Posts (Atom)