My Life In A Nutshell

MONDAY 2ND JULY 2012.

Dont worry, im not expecting you to know why this date is of any significant value to anyone as it doesnt have one. This date though is the last time i blogged about my medication. The treatment that keeps me going. In 2012 i was with consultants that really wanted to start from scratch. Reduce nearly all my meds and find out the best ones from me. That didnt happen. Instead, they started adding more in.

Today things are worse than before.

During a 24 hour period i take on average 64 tablets a day, 16 nebulisers minimum. A salbutamol inhaler. A nasal spray. A tablet inhaler twice a day. A TENS machine, morphine patch. Supplements and im also now on sub cut IgG infusions of 60mls a week.

I wish my life was counting other things instead of drugs, oxygen reading, pulse reading and peak flow reading.

I guess being in the UK i am extremely lucky, my medications get funded by the NHS and the government. I really feel for those in other countries that have to pay for their treatments and its in the thousands. If their insurance wont cover it, how does the government expect them to get the vital medication they need!?

I know one things for sure, if i didnt have this list of medications, i would be dead. If any asthmatic didnt have one single inhaler, they would be dead.

Asthma needs to be more recognised. I have been doing this blog now for near on 2 years and in those 2 years. Ive literallt have my blog viewed thousands of time. I just pray that just 10 of those thousands of people have gained a little more knowledge into the life of an asthmatic. That they can see its not just a few puffs of a blue inhaler. Its time consuming, mind and bodily draining, its demanding and most of all its life threatening.

Asthma needs a cure, can you help find it!?

_____

On a different note, depression, this also is very life threatening and not enough people know about it. This week, Tuesday infact is my wifes 21st birthday and suffers from severe depression. With our housing situation this has meant that things have been getting worse again. I didnt know what to do, how to help her so,i gave her an early birthday present that she can focus on, and give a purpose of living for. I got her a guinea pig. We still dont have a name for her but she is 9 weeks old and such a character. Today is her first day with us and in ta time, she has climbed the curtain 3 times and climbed up the inside of my trouser leg twice. Shes blinking fast thats for sure

Well, i better be off, i have those drugs to go take so i can make it through the night as i am currently suffering yet another chest infection.

TTFN
XXXX

Here is a visual look into my medications and below is our latest family member, the nameless guinespig class="separator" style="clear: both; text-align: center;">

Camping

Ok so firstly here is our pooch Dixie, loving the camera of course.

This was our first ever cooking episode whilst camping, toast for our toasted marmite sarnies.

Dixie having a good old sun bathing session

Dixie and my lovely lady at Harlyn bay beach for the first time, and the first time in the sea too.

A random stripy shell in the water

Dixie stealing my wheelchair whilst having a coffevat The Lost Gardens Of Heligan

A random man made insect colony at the gardens of heligan

A tree had recently been cut down and I took the perfect oportunity to capture its inner beauty

Another inner beauty of the tree

My beautiful girlie cooking our marshmallows to make our smores

Having a casual strol through the nature trail at Wheal-Martyn

Our makeshift home, with Dixie standing proud ofcourse

Our bed that literally just fit within the sleeping compartment So, thats a few photos from our camping trip as promised, not many but they capture each part of our adventure TTFN XXXX

Here, There and Everywhere!!

Life has been a little hectic over the past few weeks with having different hospital appointments and travelling up and down the country. Hospital appointments have consisted of going to Plymouth hospital to have over an hours worth of lung function tests so that they can get a good idea of how my lungs dont work, and then I am seeing the new Consultant in January at some point so that should be interesting. I have also have a fracture clinic appointment following my fall a few weeks ago and breaking my wrist. The consultant there isnt to happy with my xray results so has requested that I have a CT scan which is in just over a weeks time. so thats slightly annoying that this has happened. I have also had my second appointment with the other hip doctor who was a little bit annoying actually as he didnt really have a clue and is referring me to yet another doctor and has suggested that I have the steroid injections again in my hip (which didnt work the first time) and then if that doesnt work they will then look at what else can be done before the route of a hip replacement. I have also been back up to see mum recently as it was her birthday and well, it was slightly awkward to say the least and I came away a little upset. firstly, she opened the present that we gave her whilst I was in the toilet and then just put it on the side and didnt even say thanks, where as with my sisters she opened it all whilst everyone was there and said a massive thank you. secondly, she didnt even really speak to my other half which is really starting to hack me off as it has been well over a year now and she still cant seem to come to terms with things and accept who I am engaged to. Thirdly, I have found out that my sister has been going around mums and having little drinking sessions with her and that they have been going out shopping and generally having a good time, Im gutted with this as me and mum never really done anything like this and now that I have moved away she seems to be getting on really well with my sister. And finally, my mum in front of everyone asked my sister if she wanted to come around for christmas day and completely ignored me, so as a result I have decided that Im not going to see any of my family at christmas because I dont feel like they want me to see them, I no longer feel accepted by them and that they want me to be in their lives let alone my partner as well. On happy notes, myself and my partner have officially been together for just over a year now and it is exciting. We decided to treat ourselves, and spend two nights away in Newquay. Whilst away we went to the cinema and seen Gravity which is a pretty amazing film, we also went to the seal sanctuary which although was cold, was really amazing to see all the different seals and also the poorly ones in the hospital who are being really well looked after. We also went and had a MASSIVE chinese which was lush, but we ate far to much. My other half also introduced me to the hunger games which is a great film, very well put together!! so we had a busy couple of days, just us enjoying each others company. My other half also had her 20th birthday which was great. She was ultimatly spoiled by both her parents and myself with lots of different gifts to keep her busy some of which included pyrography (which shes done one already and it looks amazing, ive never seen it before and I really like how its turned out!!) and she also got an air brushing machine to be able to decorate her cakes with. We also went out for a meal, both of us and her parents which was great as weve never actually done that before so it was a nice treat for us all. On sad news though, Ive had yet another assessment with the community physio team and they have now decided that Im going to have to have a wheelchair when out in the community as my muscles have gotten far to weak and im having to many falls which is compromising my safety. I am a little gutted by this but I guess it had to come at some point hey. My photography is coming along great, I recently entered a photo into a competition and im awaiting the results so ill let you all know when that happens. These photos were taken with the help of my lovely lady dressing up in a stunning dress and having some nice make up on. One of our friends have also asked me to take photos of her and her baby in a few weeks time also so although im a little nervous about it, im also excited as itll be my first official shoot with people and not of still life. So, thats my life for now. TTFN XXXX

Ubber Cool Weekend!!

Recently myself and the mother have been spending lots and lots of time together which so super lush!!

This weekend we went to Cadbury Garden Centre, had a gander around all their Christmas decorations (spent far to much money yet again) and then shared a scone and had a yummy toffee nut latte from starbucks...mmmmmmm

Once that little adventure was over we went and paid a visit to a friend of my mums who she hasnt seen in a blinking long time, and from what I could tell, she had a thoroughly good day which is great!!

Well, then it was an early night for me as I had to be up at a crazy hour to drive to Exeter to meet the other half!!

Although it was crappy weather the day was bloody amazing, I started the day off.by deciding not to use my sat nav and got lost *twit*. Then I could fond the right car park, and low ans behold, I then got re lost trying to fins the museum, *DoubleTwit* to which I finally found, half hour later.

The whole day consisted of visiting the museum, having a walk around a stunning park *RaindropDodging*, having lunch in Marks and Sparks and then shopping!! A great day that I really did enjoy, yay!!

Well that sums up my little weekend, Im all smilies and super happy, life couldnt be better (forgetting about my cruddy health of course)

TTFN

XXXX

My Memories Suite - www.MyMemories.com

I have been contacted by a company called "My Memories Suite",  and it is a fantastic software, where you can make Scrapbook Layouts, Photo Books, Card, Videos and More. It really is a fantastic software. 

With being a little bit of a technical geek, and really loving any opportunity to edit and play with any of my photos, I thought this was a fantastic chance to sit back and explore, and man didn't I love it, I was hooked!!

Here are some screen shots of me using the software to actually show you how simple and easy it was to use and make a pretty nifty unique Birthday Card using one of the set designs within the software.

First, using the huge amount of choice, select any template that you find will match your idea.

You can then add and remove any similar templates that you can play around with if you don't like your initial design.

Take the opportunity to choose either manual or automatic photo upload.

At the bottom of the screen you can flick through each of the designs to look on big screen which one appeals to you the most.

On the right hand side, click the little camera icon to upload bring forward all your photos in your desktop folder. Than click on each empty photo shadow on your template and click on the photo you would like to go in there, and wow your photo has transferred over.

Finally on the right hand side you can then edit any photos (straighten up the photo into the box, change it from square to circle and move any extra wispy bits), text or colourings to suite you and  template is then customised.

Make sure you save your template and you can access it in the future!!

 I hope that these simple easy steps persuade you to get the software just like I did!!

Any queries, please leave me a comment below!!

If you would like to get this software I have a link to the right of my blog, simply just click on it and you will go straight to the official and genuine website where you can browse and explore the whole range of fantastic products!!

TTFN

XXXX