Showing posts with label government. Show all posts
Showing posts with label government. Show all posts

Sunday, 23 November 2014

My Life In A Nutshell

MONDAY 2ND JULY 2012.

Dont worry, im not expecting you to know why this date is of any significant value to anyone as it doesnt have one. This date though is the last time i blogged about my medication. The treatment that keeps me going. In 2012 i was with consultants that really wanted to start from scratch. Reduce nearly all my meds and find out the best ones from me. That didnt happen. Instead, they started adding more in.

Today things are worse than before.

During a 24 hour period i take on average 64 tablets a day, 16 nebulisers minimum. A salbutamol inhaler. A nasal spray. A tablet inhaler twice a day. A TENS machine, morphine patch. Supplements and im also now on sub cut IgG infusions of 60mls a week.

I wish my life was counting other things instead of drugs, oxygen reading, pulse reading and peak flow reading.

I guess being in the UK i am extremely lucky, my medications get funded by the NHS and the government. I really feel for those in other countries that have to pay for their treatments and its in the thousands. If their insurance wont cover it, how does the government expect them to get the vital medication they need!?

I know one things for sure, if i didnt have this list of medications, i would be dead. If any asthmatic didnt have one single inhaler, they would be dead.

Asthma needs to be more recognised. I have been doing this blog now for near on 2 years and in those 2 years. Ive literallt have my blog viewed thousands of time. I just pray that just 10 of those thousands of people have gained a little more knowledge into the life of an asthmatic. That they can see its not just a few puffs of a blue inhaler. Its time consuming, mind and bodily draining, its demanding and most of all its life threatening.

Asthma needs a cure, can you help find it!?

_____

On a different note, depression, this also is very life threatening and not enough people know about it. This week, Tuesday infact is my wifes 21st birthday and suffers from severe depression. With our housing situation this has meant that things have been getting worse again. I didnt know what to do, how to help her so,i gave her an early birthday present that she can focus on, and give a purpose of living for. I got her a guinea pig. We still dont have a name for her but she is 9 weeks old and such a character. Today is her first day with us and in ta time, she has climbed the curtain 3 times and climbed up the inside of my trouser leg twice. Shes blinking fast thats for sure

Well, i better be off, i have those drugs to go take so i can make it through the night as i am currently suffering yet another chest infection.

TTFN
XXXX

Here is a visual look into my medications and below is our latest family member, the nameless guinespig class="separator" style="clear: both; text-align: center;">

Friday, 21 February 2014

Money, Money, Money

Everything lately involves money. Earlier this month, we found out that we have infact been paid £200 less each month from the job centre than what we thought as they failed to inform us. We had been wondering why each month we seemed to be dipping into my DLA payout from last February. And now we know why. The pain in the ass thing about this is that not only has christmas just passed, but it was also my birthday, plus valentines day, plus a years anniversary from me and my partner having been engaged. We also had to change over my car insurance which cost extra for the initial payment, plus we had double pet insurance for it being the initial payment, then Dixie became poorly and we had to rush her to the vets, and we also had to go to Birmingham twice for my appointments. Ontop of all this, because I am struggling each month, im cancelling my storage unit and selling everything thats in it. Last year to drop my unit it cost £25, now they want to take £120. I told them the reason im cancelling my storage is because I dont have the mo thly £53 let alone the amount they want today. They werent impressed so have given me till the 7th March to pay it off. It is literally all about money. Everyone wants it when we dont have it. Thankfully I have been a little OCD with saving because me and my partner desperately want a baby, so now we have needed to start dipping into this. Were not best pleased, but what else can we do!? The government dont want to help us, and the bills need to be paid. More stress to add to what we have. TTFN XXXX