Anything Else Want To Come My Way?!

Sorry for not posting yesterday but I was so overwhelmed with information I just couldnt bring myself to sharing it.

I was at Musgrove park hospital in Taunton for a MRI on my hip.

I had to be there for 0920 in the morning as first up i had to have a massive needle poked into my hip joint again to have dye pumped straight into it. This was done under xray guidance. Initially all was going ok, then suddenly I felt very sick, went mega dizzy and from what i can gather, the colour drained from me and i went spaced out. Next thing i know both the nurse at my head and the consultant injecting me was asking if i was ok.

The whole team on this first stage was fantastic.

Following this i then went round to the MRI scanner. I got told that i would only be about 10 minutes...2 and a half hours later im finally back with my other half who had been going frantic and worrying mega because i had been so long.

off we toddled to the cafe though where i had a coffee to wake me up again for the journey back home. Fingers crossed itll only be a few weeks and ill have the result and find out what treatment i need.

Once home i had to ring my GP to update them on the new drugs ive started and i also wanted to check both my sputum and blood tests that i had done on Monday.

I was so pissed. The receptionst told me that yes the result were in but i had to physically come in to see the doc to discuss the result...and the next nearest appointment was 3 weeks away. I obviously refused this and said ill sort something, but in the meantime could the doctor ring me so i can tell them about my new medications...cheeky me then mentioned the blood results to the doctor when they rang me back and bloody hell im friggin glad i did. It was with regards to my phosphate again...and it remain critically low. Ulyour levels are meant to be 2.4 and above...mine was 0.6 so its no wonder im struggling so much so ive now been started on phosphate supplements and need regualr blood tests

As youve probable guessed following all this had 100% exhausted me so i went off to sleep...only to be woken up at midnight having a massive allergic reaction...gradually throughout the day i had been getting itchier and itchier and then by midnight i also had a full body rash. I could put my finger on what was causing it annd initially i thought it might have been the uniphylin...with taking this mornings dose and having no reaction it then clicked, it started straight after i had the dye put in my hip...and had been getting worse throughout the evening making me feel shit, so i guess thats another drug i can no longer have. Perfect.

I woke up this morning in agony though. I know the consultant warned me that with certain people, depending on what hip injury they have they can have bad pains through out the whole leg for the next few days..mand boy was he right. I could barly walk to day and i cant bend my knee without crying out in pain. I just hope it doesnt hang around.

Today i have officially made 35 baby hats so my first NICU box is complete. Im going to do another fair few amounts of hats though before i send them off as i want to get a great picture to send into asthma uk to show them the progress...please look through my previous blogs to find my just giving page...we really need more donation!!

TTFN

XXXX

Busy Bee

Alarms should not have been inveted. I hate them. I had to wake up early this morning because I had to go to the GP to have blood taken. I initially thought this day was going to be hell because the steroid nasal spray I ordered last week hadnt been authorised by the doctor. Its meant to take 24 hours, im currently on day 7 so now and urgent message had to be re sent to the doctor. I then went to log in to say I had arrived for my bloods - and the computer crashed, so I cued up and had to register like the good old days...the lady at reception was being so slow that by the time it was my tern, it was then showing I was ten minutes late. Not impressed. I should have my blood tests by Friday though and we will be able to see whether im going to need more medication for my phosphate. When we got home, as I was down stairs, me and the other half decided to finish the run we had built so that our three boys could finally run around again. We are so impressed with our handy work, what do you think:

After this I had to drop my other half into benardos so she could do her good deed of the week and I went home to bed as I was exhausted already...so much so I fell asleep untill she came home again which was roughlu 4.5 hours. Whoops. Its ok though, I made up good time by knitting 3 more baby hats this morning. It is coming along quickly now. Ive completed 19 altogether now and I have another potentially 2 people donating more wool to me to complete my challenge. Tonight I made my smallest hat so far, here is a picture of it next to my ventolin inhaler for a comparison:

Please continue to support me by donating just a small amount and also sharing my just giving page: https://www.justgiving.com/Charlie-Hockaday-Williams Tonight me and the lady have also put a menu together for our wedding meal and sent it back to the hotel we want to go to for pricing so hopfully by the end of next week we gave get our invites sent out. Im day as you can see has been rather scatty, but it has exhausted me so much that I am just finishing my physio and im off to try and sleep. TTFN XXXX

Cant Wait

Last night myself and my partner bidded on yet another 3 properties with in Cornwall so that we can get a place of our own. Thats 4 now in total. Im praying so hard that our dreams come true pretty pronto. The reason I say this is because my other half has reduced her happy pills (antidepresents) to one a day because as you know we are trying to start a family and these tablets at a higher dose can cause harm to the unborn child. Annoyingly though, a few things have happened over the last 24 hours to which has made here very pissed off, agitated and angry...she has told me that she has felt low and not know how to control her emotions. The reason for this annoyance is because of her parents. They still remain to treat her and me infact as a child. Not being funny but im 23 and shes nearly 21, were no wgere near children any more so we dont need to be spoken to like shit, we dont need to be asked every five minutes where we are going, what we are doing and why we are doing certain things. We need our independance. We had a great day out at a national trust place this morning where my other half kindly pushed me in my chair, Dixie splashed around in the river and then we had a picnic. We then came home and finished building our rabbit run for the three boys and then ended up spending the rest of the day in our room because in the breif 1 hour of us being amongst her parents they had stressed us out so much that we literally couldnt hack it any more. Dont get me wrong her parents are amazing just like many, but they need to stop treating us like a child. Unfortunatly we are still on the lowest banding for the council housing list so unless we are really lucky it doesnt look like we are going to be getting a place of our own any time soon. Living independently is going to push our money to the very max, but life would be happier, we could be ourselves and we can do what ever we like in our time and on our terms. Fingers crossed it happens soon. In other news, I have knitted another 4 hats today which gives me a grand total of 16. Just another 14 to go and my first NICU box is ready to be sent. Please keep donating for me. The support is very much needed. Asthma needs to have better treatments. Asthma needs a cure. https://www.justgiving.com/Charlie-Hockaday-Williams TTFN XXXX

Justgiving

In a few previous posts i have told you about a challenge i have set myself.

Because i have become a lot worse both muscles wise and lung wise i am pretty much stuck in bed unless its for an appointment and then im stuck in wheelchair.

So instead of sitting here feeling more sorry for myself i decided to set my set a challenge of knitting 4950 baby hats. 30 for every NICU unit throughout England.

I have so far knitted 12. 4 today alone.

Although they are hats for NICU units I have decided I want to raise money for a charity very close to my heart. Thisll be my second time raising money for them...

ASTHMA UK

Are my choose charity.

Your support will do me wonders. I have set up a just giving page so please please please support me by donating and sharing my page amongst your friends.

You could save my life by finding research to give me a better medication. You could chanhe my life around!!

Here is my page, keep sharing and please donate. It only has to be a small amount

Your page: http://www.justgiving.com/Charlie-Hockaday-Williams

TTFN

XXXX

Dont Jinx It

Im not sure whether itll be premature to share even more good news or not but im finally happy that things might be starting to look up a little.

This morning myself and my other half went to the doctors to discuss her tablets. The reason for this is that we want her to be as healthy as possible for getting pregnant and of course we dont want her to be on any tablets that may cause harm to the baby.

The doctor was amazing, he discussed everything. Even things concerning me and i dont even go to that practice. He adjusted my partners medication and said he wanted to see us both in a month to see how we were getting on.

Following the great doctors review, we then text our donor explaining the recent circumstances and asked whether he would still be willing to donate even though it wasnt going to be me carrying anymore. He said yes. He was also very kind to us about the situation and how it has come about which i also thought was good natured of him.

Once all this was done, i had to take my other half to her volunteering job. Yesterday she baked some cakes as it was a birthday at the shop and she made an extra one for us to eat at home. They were friggin amazing. She made the same for my birthday in february and she bettered herself. My lady really does have fantastic talent.

In other news, I had a gentleman from Asthma UK ring me to discuss fundraising ideas with him. Hes amazed at the challenge i have set myself despite my deterioration in health and has sent me all the paperwork to fil in to get started. Once all that has been sent back ill be setting up a justgiving page and im going to try my hardest to raise as much money as humanly possible. We really need to find a better treatment if not a cure for Asthma.

Ive also managed to knit another hat tonight so i have a grand total of 7 now. I fear it still may take me a along time as it really hurts my muscles and joints but i think once the task is complete im going to be so chuffed!!

Hopfully you guys would sponsor me!?

On a sad note today ive had two allergic reactions today and my skin has felt like it has literally been on fire all day. Ive been in agony. I really hope i figure out wjat an earth is causing all these reactions!!

TTFN

XXXX