Another Scary Moment!!

So I thought I would enjoy my life. Visited my dad for my tea on the Friday and then spent the weekend with the most amazing best friend ever!! We managed a carboot sale that we raised £80 for Brighton Pride at the end of the month so that was ace and on sunday I left and met up with some more amazing friends. By Sunday night, I had just got onto the motorway and I suddenly couldnt breath so raced back to Bristol and got my self into hospital. Sadly I ended up in intensive care on a non invasive ventilator with heliox being pumped into me. They told me that the best option was to b ventilated but I refused it as it is the most horrible thing imaginable.I have to say I am now ultimatly scared about going out and about on my own again. 6 days in ITU and HDU and i was finally allowed onto the respiratory ward. During the week I had some amazing visitors and company to keep my spirits up and the lovely better half had decided to come up on the train and visit me whilst in hospital. Whilst on the resp ward I had lots of input from physios who have told my I really need to slow down as my muscles can take it and neither can my lungs. My oxygen levels r dropping into the 80s when walking fast now so here is the new life of a snail. I have to say I am massively frustraited with how things r turning out. I just want me life back, I want to go exploring not be this frail young person struggling to live a little bit of a life!! On a positive note my link nurse from Birmingham rang me when I got out of hospital to check in on me and also to tell me that they are in the process of writing a very helpful letter to my local hospital to ensure my treatment becomes a hell of a lot better than what it is so I shouldnt b so scared to get help if i need it. I have also been to birmingham gastro team and they have told me I need surgery on my tummy to stop the acid burning my lungs and this will b done in rough 2 or 3 months so another thing to worry myself over for the next few months!! Well thats my rant for now TTFN XXXX