Showing posts with label Muscle wasting. Show all posts
Showing posts with label Muscle wasting. Show all posts
Sunday, 4 October 2015
slowly Returning
So, after many many many months of not blogging, i am back.
Not really sure what my latest blog was or what you all know but in short, in January this year i had a severe asthma attack that woke me up early in the morning. Got blue lighted to resus where i aparently had the ITU consultant bagging me untill they could get the COAL machine down from the unit. After spending a few days there, i went to the respiratory ward to need the crash team coming to my bed side as i rapidly deteriorated again. A few days after this my body decided enough was enough it needed to rest and recover so went unconcious for just under 24 hours. Horribly i woke up with breathing tubes down my throat and bang my severe complex ptsd is nade 10000000 times worse.
On the 11th february (my birthday) i got moved to a secure mental health unit when i was put on observations for 2 months because my self harming had increased and i wanted to commit suicide.
My lungs were and still are deteriorating rapidly. My lung function is now only 35%. My proximal myopathy has left me wheelchair bound and unable to stand. As i said previously my ptsd has gone wild and i am now being tested to see if i have a neuromuscular disease like MS.
After 7 months in hospital i came home on the 4th july. I am having community support teams visitng once sometimes twice a weeks to give me help and i also have my wife looking after me full time.
I am doing ok, trying to find things to do thats adapted to a life in a wheelchair and im trying to make new friends.
I will try my best to keep blogging, but for now, please keep me in your prayers that things will get better.
TTFN
XXXX
Monday, 19 November 2012
What A Blinking Day Hey!!
When I woke up this morning, I was in a good mood, I was happy, cheery and ready for the day a head...and then I went down stairs, bad move I say!!
My now ex stepdad was sat in the lounge with mum, and as he was getting ready to sod off to work, he was ranting away...about me!!
He told my mum how its my fault he is in debt, because he has had to spend out extra money on food and bills etc and im not paying him anything. (may I add here that I still get no finacial help, Im still not allowed to work, and when I do have a bit of money, I get my own bit of food and I always give mum any spare bit of cash I have) so yes this majorly upset me as hes not my dad, I have a perfectly good dad but u fortunatly he lives 50miles away from me and works all hours so it wasnt suitable for me to move in with him!!
Once he had said this, he then blames the above situation on not being able to pay mum back!!
He also then went on to say he is spending much needed cash on hospital car parks...for one im sorry I have to go to so many clinics and my asthma is so uncontrolled at the minute, and secondly, he has never once visited me whilst I have been an inpatient so I dont have a clue what he is yabbing about!!
Todays second horrid moment was when I got to physio, they discharged me from the knee clinic from the injury I sustained, but have admitted me to the muscle weakness section. my physiotherapist has express large concerns about my lack of muscle mass. He has said that the steroids are having a huge effect on them and said my muscles are basically none existant!! I now have to go weekly for the next six weeks. He didnt even want me to wait till my appointment in Birmingham on Wednesday. Though he also mentioned that the physio may not actually do much whilst im still on the steroids, if anything what may happen is the wasting will just slow down a little. My response to that-its better than nothing being done at all!!
The third and final cruddy moment for today is that when I get back from physio, the prat I mentioned above decided to say to me "so you actual found your muscles now and stop being lazy". This really hurt me, as I havnt chosen to be like this, yes it has made me whole I am today but if i had healthy lungs and could be like any other 21 year old, I would certainly choose that path!!
Just because him and my mum have split, does it really give him the right to treat me this way, talk to me like he does and actually make me feel rubbish!? because in my eyes, no one should make anyone feel like that!!
On a good note, Birmingham on Wednesday, with a trip around the German market!! Quality time with the mother!!
TTFN
XXXX
My now ex stepdad was sat in the lounge with mum, and as he was getting ready to sod off to work, he was ranting away...about me!!
He told my mum how its my fault he is in debt, because he has had to spend out extra money on food and bills etc and im not paying him anything. (may I add here that I still get no finacial help, Im still not allowed to work, and when I do have a bit of money, I get my own bit of food and I always give mum any spare bit of cash I have) so yes this majorly upset me as hes not my dad, I have a perfectly good dad but u fortunatly he lives 50miles away from me and works all hours so it wasnt suitable for me to move in with him!!
Once he had said this, he then blames the above situation on not being able to pay mum back!!
He also then went on to say he is spending much needed cash on hospital car parks...for one im sorry I have to go to so many clinics and my asthma is so uncontrolled at the minute, and secondly, he has never once visited me whilst I have been an inpatient so I dont have a clue what he is yabbing about!!
Todays second horrid moment was when I got to physio, they discharged me from the knee clinic from the injury I sustained, but have admitted me to the muscle weakness section. my physiotherapist has express large concerns about my lack of muscle mass. He has said that the steroids are having a huge effect on them and said my muscles are basically none existant!! I now have to go weekly for the next six weeks. He didnt even want me to wait till my appointment in Birmingham on Wednesday. Though he also mentioned that the physio may not actually do much whilst im still on the steroids, if anything what may happen is the wasting will just slow down a little. My response to that-its better than nothing being done at all!!
The third and final cruddy moment for today is that when I get back from physio, the prat I mentioned above decided to say to me "so you actual found your muscles now and stop being lazy". This really hurt me, as I havnt chosen to be like this, yes it has made me whole I am today but if i had healthy lungs and could be like any other 21 year old, I would certainly choose that path!!
Just because him and my mum have split, does it really give him the right to treat me this way, talk to me like he does and actually make me feel rubbish!? because in my eyes, no one should make anyone feel like that!!
On a good note, Birmingham on Wednesday, with a trip around the German market!! Quality time with the mother!!
TTFN
XXXX
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