My Adventure To Birmingham

Birmingham was on Wednesday, and wow what an adventure it was.

We didnt think at first that we would make it, with all the rain we had just missed the flooding in the next town down and within 2 junctions we had just passed 3 smashed up cars. With setting off at 8 AM *yawn* we made it to Birmingham by about 11ish I think...thank goodness for my road trip selection on the ipod.

The craft section of the German market we decided to visit was lush. Mum got a bag with her birthday money from nan, and I got some super ace rose lights. Sadly though as I took so long with walking we had to leave the rest and go to my appointment at Heartlands, but mum was cool and took me back for the rest after...which took we even longer to walk around. I got some amazeballs gingerbread, pretzles and nuts though mmmmmmmm.

My Sexy Rose Lights

My ubber lush pretzle

Fantastic Lights

Ok so the main point of this blog: Heartlands. A bit of mixed emotions about it if I must say. Not sure whether its good or bad really!!

Long story short, they basically wont let me stop any medications still, but have increased my antihistamine yet again and started more antibiotics. They are refusing to let me have surgery on my stomach to stop my reflux untill my lung function is a lot better. Im being tested for something called steroid myopathy so that could be interesting. Want me to send off yet more gunk to see if they can grow anything. Im also being told they are keeping a close eye on me so I have to go back again within 8 weeks-oh and my observatios where shocking and they wouldnt take me just walking ip the stairs as an excuse, damn . (Atleast theres and excuse to go shopping in Birmingham hey!!)

I think thats what they mainly said, its still a little muffled in my brain with it being to much to take in again.

TTFN

XXXX

What A Blinking Day Hey!!

When I woke up this morning, I was in a good mood, I was happy, cheery and ready for the day a head...and then I went down stairs, bad move I say!!

My now ex stepdad was sat in the lounge with mum, and as he was getting ready to sod off to work, he was ranting away...about me!!

He told my mum how its my fault he is in debt, because he has had to spend out extra money on food and bills etc and im not paying him anything. (may I add here that I still get no finacial help, Im still not allowed to work, and when I do have a bit of money, I get my own bit of food and I always give mum any spare bit of cash I have) so yes this majorly upset me as hes not my dad, I have a perfectly good dad but u fortunatly he lives 50miles away from me and works all hours so it wasnt suitable for me to move in with him!!
Once he had said this, he then blames the above situation on not being able to pay mum back!!
He also then went on to say he is spending much needed cash on hospital car parks...for one im sorry I have to go to so many clinics and my asthma is so uncontrolled at the minute, and secondly, he has never once visited me whilst I have been an inpatient so I dont have a clue what he is yabbing about!!

Todays second horrid moment was when I got to physio, they discharged me from the knee clinic from the injury I sustained, but have admitted me to the muscle weakness section. my physiotherapist has express large concerns about my lack of muscle mass. He has said that the steroids are having a huge effect on them and said my muscles are basically none existant!! I now have to go weekly for the next six weeks. He didnt even want me to wait till my appointment in Birmingham on Wednesday. Though he also mentioned that the physio may not actually do much whilst im still on the steroids, if anything what may happen is the wasting will just slow down a little. My response to that-its better than nothing being done at all!!

The third and final cruddy moment for today is that when I get back from physio, the prat I mentioned above decided to say to me "so you actual found your muscles now and stop being lazy". This really hurt me, as I havnt chosen to be like this, yes it has made me whole I am today but if i had healthy lungs and could be like any other 21 year old, I would certainly choose that path!!

 Just because him and my mum have split, does it really give him the right to treat me this way, talk to me like he does and actually make me feel rubbish!?  because in my eyes, no one should make anyone feel like that!!

On a good note, Birmingham on Wednesday, with a trip around the German market!! Quality time with the mother!!

TTFN

XXXX