Finally we managed to go out today with our amazing friends to a place called siblyback lake.
It was amazing, the sun was shinning and it wasnt to hot so it wasnt hell to breathe.
Sadly though because life sucks when i got home i couldnt breathe. All i done was walk up the stairs instead of using the stair lift and my sats plummited to 85%. So straight on the nebs i go.
I have then slept all afternoon since.
Once i woke up, my muscles have completly gone. I literally cant sit up. I cant lift my arms at all and im generally feeling like a jellyfish.
I absolutly hate having this disease.
Its utter shit!!
TTFN
XXXX
