Muscles

Finally we managed to go out today with our amazing friends to a place called siblyback lake.

It was amazing, the sun was shinning and it wasnt to hot so it wasnt hell to breathe.

Sadly though because life sucks when i got home i couldnt breathe. All i done was walk up the stairs instead of using the stair lift and my sats plummited to 85%. So straight on the nebs i go.

I have then slept all afternoon since.

Once i woke up, my muscles have completly gone. I literally cant sit up. I cant lift my arms at all and im generally feeling like a jellyfish.

I absolutly hate having this disease.

Its utter shit!!

TTFN

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Cant Wait

Last night myself and my partner bidded on yet another 3 properties with in Cornwall so that we can get a place of our own. Thats 4 now in total. Im praying so hard that our dreams come true pretty pronto. The reason I say this is because my other half has reduced her happy pills (antidepresents) to one a day because as you know we are trying to start a family and these tablets at a higher dose can cause harm to the unborn child. Annoyingly though, a few things have happened over the last 24 hours to which has made here very pissed off, agitated and angry...she has told me that she has felt low and not know how to control her emotions. The reason for this annoyance is because of her parents. They still remain to treat her and me infact as a child. Not being funny but im 23 and shes nearly 21, were no wgere near children any more so we dont need to be spoken to like shit, we dont need to be asked every five minutes where we are going, what we are doing and why we are doing certain things. We need our independance. We had a great day out at a national trust place this morning where my other half kindly pushed me in my chair, Dixie splashed around in the river and then we had a picnic. We then came home and finished building our rabbit run for the three boys and then ended up spending the rest of the day in our room because in the breif 1 hour of us being amongst her parents they had stressed us out so much that we literally couldnt hack it any more. Dont get me wrong her parents are amazing just like many, but they need to stop treating us like a child. Unfortunatly we are still on the lowest banding for the council housing list so unless we are really lucky it doesnt look like we are going to be getting a place of our own any time soon. Living independently is going to push our money to the very max, but life would be happier, we could be ourselves and we can do what ever we like in our time and on our terms. Fingers crossed it happens soon. In other news, I have knitted another 4 hats today which gives me a grand total of 16. Just another 14 to go and my first NICU box is ready to be sent. Please keep donating for me. The support is very much needed. Asthma needs to have better treatments. Asthma needs a cure. https://www.justgiving.com/Charlie-Hockaday-Williams TTFN XXXX

Something New

When I went to asda yesterday, I was gutted to find out that they had sold out of easter biscuits...I mean come on, its still a week away. To resolve this, my lovely girlfriend said that as shes never made them before, she would love to give them a try and blinking heck they tasted good. We have been controlled though. Weve only shared one between us for today andvwe have four more between us ove the next few days. I was mega impressed with how they turned out as shes never made them before. What do you think?! :

Even though it was only half a biscuit that I have eaten, I felt really bad so punished myself...and todays punishment is that I walked around the feild 4 times at three different stages of the day. To be ho esr, I think I have the beginnings of an obsession going on. Im so fixated on loosing weight and its now got to the point im now weighing at the beginning and end of everyday. I really dont know what to do. I think its started because I had climbed up to 16 and a half stone and so many doctors have told me that my weight would make my asthma worse. For me that was enough to scare me so I guess I have to loose it. After our second walk of the day, I was in agony so had some more morphine, snuggled with my lady and our pooch on the sofa and watched a film. Todays film was "exit himanity". Although at the beginning I though it was a really bizarre film, I soon came to liking it. Its weird because it has a narrator ever now and then. But it explained the in depths if what was going on just incase you didnt pick it out whilst it was made visually the first time. So for me its a film with a thumbs up. In crappy news...I think I have another infection brewing. Im getting a lot more puffed out, I have pain in my left lung and I am rather bubbly with my lungs. My temperature has only raised a small amount so id feel like a fraud going to the GP at this stage. Just hope it doesnt get to bad by next weekend as we r supposed to have a friend staying down and visiting is. Only time would tell I guess. TTFN XXXX

Busy Bees!!

Rise and shine...nice an early again, but this time not because of Dixie, but because we had to run around and then go to a hospital appointment. First stop though was our usual walk around the field, but we only walked around once this morning as we were running a little late. Our next stop was pets at home as we needed to get Dixie some more meat, milk and sausages. We also had a sneaky treat for her and got her the most amazing coat. Its pink and has little reflectirs on, is waterproof on the outer shell and has a fleecy lining underneath. Weve got this because weve noticed recently that she is shivering so much out on walks because shes cold. When we took her on her walk this afternoon, we put on her coat and then her new harness (which arrived in the post also today) and went for our afternoon stroll. Heres a picture:

Afters the shopping we had to quickly dash around to St Austell as the other half had a hospital appointment about her bladder. All went ok, but it turns out that she has very small wee tubes so thats why it takes her sssssoooo long to go for a wee. She has been asked to do a wee diary for a day and for this she has to measure and document every bit of fluid in and out of her body...yum Our next adventure was to Trago. If you dont know what this is, its basically a huge discount store, they sell anything you could think of at a much cheaper price. We had to come here to buy a mass load of wood and chicken wire as my girlfriends dad has kindly said he will build us a run for our three rabbits. I cant wait to see the finish product. Lastly (for running around and appointments) my lovely lady had a home vist from the cornwall carers team to see if they can provide any extra support for her because she looks after me full time. I left them to it as this was for her, not me. Lots of great thing have been suggested to her like doing this group that has been set up specifically for young carers who meet regularly and go on outings like for meals or bowling etc. I rekon this would be fantastic for her, but although sh would love to, shes worried about leaving me. Im in the midst of persuading her ill be ok for a few hours, make me a hot drink and leave it for me and im sorted ha. The lady also suggested to her and gave her forms to fill in for us to get grants to go on holiday or on outings for day trips. So weve filled them in tonight and they will be popped into the post box tomorrow. Other than all that really, weve just been chilling. I also got myself making a fruity kebab for our bird kiwi. Hes a red rumped parakeet and were currently experimenting different veggies with him to munch and play with as a boredom breaker, healthy style...ill keep you updated on that. So, finally, I have four photos here from the naming ceremony I dont the other week. Now that the family have seen them, ive been able to copywrite them and put them on my facebook page, and now ill upload them here for you to see. Let me know what you think as I love feed back, nothing is never negetive, but constructive so ill always appreciate it.

This cake by the way was made by the most amazingly talented person I know...my girlfriend!! TTFN XXXX

Something New, Something Old And Something Different

Tonights title may or may not reflect on the actual string of events that im going to tell you about, but it sounded like a good title so I stuck with it. This morning I have to say, I wanted a lie in...what was I thinking!? 0730 came, and Dixie needed a wee and once I was a wake, I just couldnt re settled so I was up, dressed and breakfasted!! We had to do a quick mad dash to the post office though because with all that went on yesterday I had completly firgit to post mums card and present, so that was the first thing on our agenda sorted. After a spot of lunch, it was decided that the rabbits needed cleaning out and put in the run again to stretch their legs. Thankfully, it was only their potties and the bottom halves of the hutches that needed doing so didnt take to long to sort. Following this I needed a rest so decided to make the rainbow sock rabbit that I purchased at the campsite on Thursady. I have to say though it is very scary and looks very much like those rabbid rabbits if you know what they are. Whilst I was doing this, the girlfriend has started making wedding invitations. Yes, ok, the date isnt set yet, but theres no harm in preperation, especially as it has taken her all afternoon to do this one. Ops. Of course as usual, we took Dixie for a good old walk around the feild twice so she could stretch her legs as after a few days camping and being on her feet constantly I didnt want her cooped up for to long. So, the meaning of the title... Something new: making the sock rabbit Something old: cleaning out the rabbits Something different: we managed to put the tent outer canvas away as the sun came out and dried up the rain!! Update on the finger following yesterdays incident-bloody sore...that sums it up really...oh, that and it still keeps bleeping on and off. At last minute tonight also, weve just managed to book a table at pizza hut in Truro for my other half mum for mothers day. Im going to try really hard not to eat bad things though as I really reallyvreally dont want to put on to much weight this week!! For now though, im shattered and off to bed...dont forget the clocks go forward!! TTFN XXXX

Stress!!

As I mentioned yesterday, I wasnt going to be doing a lot today because of having to asthma attacks yesterday, so I sat and editted the photographs I took yesterday. Ok, well, firstly we took Dixie for a walk around the feild, had some dinner and then I went up to our room and started the photo editting process. For the first two hours sorting the photos everything went swimmingly. I took 149 photos all in all, that turned out good. There was more but of course some were blurred and some people were blinking etc so the had to go leaving 149. Out of all of them I have for 70 I really like and im focusing my time on. The first lot of editing was good, cropping, sharpening, de noising and colour altering. But heres where the stressful thing started. I spent the next three hours wanting to give up. I had been given some templets to be able to group together 4 or more photos together on one page, annoyingly though my photo editting softwares didnt want me to be able to do this and no matter what I done to get it to work, the things just didnt want to work. So I have gone for plan be for adding borders and didderent effects to the appropriate shots. I still have a hell of a lot of work to do and im going to be focusing my time on it tomoorow whilst my other half is volunteering. Another adding if stress, is that I have weighed myself a day early. Well, technically I weigh myself everyday. I have sadly become very obsessive about my weight since ive been trying to loose it. Anyway, this week because ive been bad with food, I have currently put on 3pound. So like on Friday when I punished myself with swimming, today I punished my self by walking around the feild twice with Dixie. Ok, so to the average person walking around a feild twice may seem a little lame, but when you have muscles and lungs like ive got, it could be seen as a disaster waiting to happen, I dont care though, I need to loose this weight. Im just not happy with it anymore and it was driving me down along with everything else. Heres to next week though for a better amount of good thoughts and goals. Especially as its mine and my other halfs first time camping together. Yay. TTFN XXXX

I Need Your Help!!

On the 13th of February 2013 a few of us will be doing a sponsored walk in Cornwall. We are raising money for the charity Asthma UK.

My girlfriend came up with the idea a few weeks ago, and I said I will tag along to support her. This will be a massive challenge for me in particular because of my asthma and newly diagnosed muscle weakness, but I am positive about it and I will be doing it....BUT we need your support!!

Here is the just giving page, any amount can help!!

https://www.justgiving.com/sophie-hockaday

TTFN

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