Fresh Air

With the weather being a little better today with respect to not actually raining we decided to do a random day out.

Our first port of call was to the Looe Food Festival. Our friend randomly told us about it last night so we decided why not. We purchased some pina colada curd (which we got around christmas from the same company and its REALLY good so we had to get more), we also got 1 apple and walnut bun. Its basically like a chelsea bun but dofferent flavours and because it was literally the size of my head we got one and shared it. Didnt want to eat more for the hell of it.
We also got a crepe each, but because we are cute, we got one sweet and one savory and shared them. Saves on money and calories ha.

Following the festival, we found a carboot sale so decided to make an random stop to have a nosey. We didnt get anything though as it was all a little cruddy.

As we had Dixie with us we decided to tae her to a place called Respryn which is part of a national trust place. She loves ot here as she can run in and out of the river and of her lead. Though my girlfriend spoke to soon. Just as she said "im so proud of Dixie, swimming and being so good in the water" - Dixie got stuck on a branch in a current by her harness. Thankfully she managed to wriggle out of her harness and get away. As i saw the harness still on the branch, i took of my shoes and socks and trousers and jumped (not literally) in the river to retrieve her harness. But by the time i got there it had literally vanished so a new harness has just been ordered. Typical!!

After all this though, i was so exhausted and have literally slept from the minute i got back which was about 3pm untill about an hour ago.

A bit or normality and im pooped!!

TTFN

XXXX

Frown Isnt Upside Down!!

Ok so im still strunning to see light at the end of the tunnel.

Everytime i think something fantastic is happening, I get knocked back down!!

I had the doc ring me up on Thursday because it seems we are having the same battle as last time for keeping my aminophylline levels up so i am now on 600mg a day to see if that does the trick.

Today my other halfs sister arrived back in the UK after a week abroad on holiday...next thing we know weve got a text stating they have our invitation and she then starts getting nasty that weve not invited them to the ceremony. 10 minutes later i get a facebook message from her girlfriend saying shes not coming to the meal weve invited to because she cant see the justification in taking time off work to come down for a meal they have to pay for, so i reminded her that there doesnt need to be a justification, we just wanted our family to celebrate our day with us...i guess for some thats a hard concept to grasp!? I wonder if i could tell them that i dont see the justification in doing their wedding photography for their wedding next june!? I wont because im not nasty. I want to be there for their big day even though it means travelling 300miles and 4 hours to get there, then paying out for a hotel and then travelling back...never mind the fact that i am disabled and struggle to drive 20 minutes!!

Anyway, rant over for now.

In other news, im a little concerned about my muscles. To those that dont know, ive been diagnosed with proximal myopathy which basically is a muscle wasting illness from being on long term steroids for my asthma. Its now getting to the point that im struggling to hold my head up, my neck musclsa are really starting to struggle and im having to wrap my V pillow over my shoulders and under my head to support myself. This is the last thing i want. This is another kick in the teeth for being disabled. I know my consultants had warned me but they said years to come like 10 years...not 10 months down the line.

Im currently at mums now though. We needed to get out the house. The stress is getting to much and its making me even more depressed. It also helps mum and my sister out as she was meant to be dog sitting for our mum whilst shes at a friends wedding but with her being 31 weeks pregnant, having a hyper dog running round your feet isnt wise, so weve braught Dixie with us and were looking after the 2 dogs.

Well, im off to sleep now as yesterday anoth migraine set in and its hanging around again.

TTFN

XXXX