Not The Best

Yesterday I had an appointment to see a hip surgeon to see whether or not he qas brave enough to operate on my stupid hip. The night before i was shitting my pants as ive stopped breathing on the last 2 surgeries ive had and they struggled to bring me back so i was meantally working out whether this is a wise choice.

My other half didnt come with me as i said there was no point in her not going to her volunteering as i knew what was wrong with my hip so it was just a yes or no to surgery.

Boy was i wrong.

The consultant asked me what I knew about my hip and what i had done so i said i had a plain xray that stated i had deterioration of my femeral hip AKA AVN. I then had a plain MRI that showed nothing more so they gave me a steroid injection into my hip in theatre. This increased my pain so they done an MRI that showed I had a laberal tear in my joint. And then i got told i needed surgery and here we are.

His face dropped...and then i started to worry.

He then said he was sorry but i havnt been told the full degree or extent of my hip. He then went onto inform me that i had an inpingement. I thought thats ok, wheres the worry in that I had one in my shoulder, i still have it as i refused shoulder...i can live with that.

But that wasnt all of it...

He then went onto explain that not only do i have the other 3 problems but i also have backwards hips. In other words, they are facing the wrong way. Erm hello, why is it i am 23 and this has never been picked up on before!?

Thats not all, he then went onto explain that along with the other 4 issues, my femurs are also protruding into my pelvis.

Fuck...i just wanted to cry...but sadly he had more to tell me.

He explained that my AVN is minor at the moment so hes not all that concerned and itll be a while before that needs surgical intervention ...  amazing, finally some good news!!

WRONG!!

As i also need surgery on my backwards facing femur proturding hip. He has orgered an urgebt CT scan to see how much bone is actually in the wrong place. I will then be seeing him in 8 weeks which is September 22nd because depending on how much bone is deformed will decided on how quickly and where i have surgery. He is about 80% sure though that i will needs the specialist surgery which he cant do as its to complex for him and hes never seen it in someone of my age before. So he will be refering me to the specialist. Wait for it...who is in London. I will have to go to the other side of the UK from where i live to have surgery.

But wait, theres still more...he also told me, my left hip is identical to the right hip (which is the painful one) so very soon i will be in extreme pain with that hip too and i will need surgery on this hip also.

im gutted. Not only should this have been picked up on at birth but i will be alone on the day of my surgery unless we cam save up a hell of a lot of money to pay for my other half to be in a hotel the whole time im in hospital.

Im absolutly devested and pissed off all on one.

I dont get why the last hospital i was under didnt tell me that my hips were facing the wrong wag and that my femurs were sat in my pelvis. Why didnt they see this as an urgent thing like this consultant in Cornwall has.

I got told in april that the pain is in my head and that there was nothing wrong...yet actually there is severe problems wrong.

I potentially cant have anyone with me during my surgery. What if this time they cant actually get my breathing going again!?

I cant wait for all this medical shit to leave me alone. I want it all to stop. I dont think i cant cope with much more

TTFN

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Another Appointment And Another Bit Of News

Firstly I forgot to say yesterday that I had the doctor ring me to update me about what they have found about my constant low Phosphate and that being: they need to do one more blood test to rule something out but ultimatly Im going to need supplements because my low phosphate is causing ny diaphram to not contract properly which in tern is reducing the amount of oxygen ive got pumping through my body...grand something else I have to battle with.

I also had another appointment in Derriford hospital in Plymouth today. It was with the immunology and allergy clinic. Initially I though this is going to be such a waste of time, they cant tell me anymore than what I know and as a result they cant actually do any more BUT that taught me.

The doctor was lovely, she talked through everything and explained why she had been asked ny lung doctor to review me. Aparently on the bloods they have taken it has shown that I have very little to if no immune system at all...lower than what it should be for a person on steroids so they have figured it is the huge reason for why I am contantly getting infections and constantly feeling poorly.

To see if they can find a treatment, I got given an injection on the spot and I have to have more bloods taken in 6 weeks time. It takes 1 month for the bloods to process ajd then ill get the results. If the bloods r still low following todays injection, I will either have to start more tablets or have an infusion or injections regularly all depending on my results.

She also stated me on a steroid nasal spray and changed me back to my old antihistamines but doubled the dose compared to what I was on.

Sadly though she did tell me that I shouldnt now or if at all every carry children. Not only could it kill me because my body wouldnt cope but half my meds would either harm my baby or cause further complications. Im gutted, there goes our plans for me to carry our first child. I mean its ok coz my partner can carry, but lets face it, its never going to be the same and ill technically never have a child of my own with my DNA etc. Theres always a bomb shell!!

TTFN

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