Wedding

For our special day we sent out the invites last month and asked for replies by 31st july which is today.

All of my family have replies which is lush but sadly only 3 people had replied from my other halfs so we sent out another messagse to people asking what they were doing.

My other halfs sister is still being mega pathetic and has said shes not coming and one of her brothers have said he has issues with how we are doing our special day so hes not coming either.
So out of the 3 siblings my other half has got, none are coming.

I feel gutted for her. Its totally unfair. All her mothers answer to it was, well its not really a wedding is it do you cant expect people to travel all that way for just a meal. Well lets just say i had had enough of their nastiness and i finally snapped explaining that it is a real wedding. We are legaally becoming mrs and mrs. We are devoting our lives to each other. Were just not inviting everyone to that particular part of the day and we dont want a party. Anyone that knows us both will know straight away a party is not us one bit so were not wasting money.

I just wish people, in particular would grow up and respect that this is how we want to get married.

In the end i had had such a shit time of their potty mouth that i walked out and took dixie for a stroll. Supidly though i went out for an hour and 20 minutes and then ate a family pack of chocolate.

To put it plainly i fucking hate them for what they are doing to us and how they are treating us.

TTFN

XXXX

Hiding Away

Ok apologies for not having been here for a while.

On Thursday after my mobily scooter assessment (which was a-maze-ing) i was really poorly. I had yet another migraine plus my belly become extremly swollen and i was in agony. So i curled up in a ball and shut the world out.

Back to my scooter assessment though, weve found the perfect scooter and my other half has been taught how to take it apart and reassemble it. Sadly though its going to cost £1249 so unless i cant get the grants from charities im not going to be having it. It felt so amazing on it. i had freedom. I was my independant self again.

Friday was pretty pants. We were running around, going to doctors, posting parcels and my other half went to the gym. I was shattered and suprise suprise, by the end of the morning i had yet another migraine.

Uve decided that im going to the doctors on monday about my migraines as ive been on my increase tablets for a month now with no such luck so something needs to be done.

All weekend ive basically just chilled. We had a BBQ on friday which was nice thougj even at 6pm the heat was to much so i had to go back to bed and sit infront of the fan.

Today we are off to a place called Sibly back lake with Dixie and we are meeting up with 2 friends and their son. At tue moment it looks nice an overcast so im hoping that i wont get a migraine with sitting in my chair not getting away from the sun.

the stress of my other halfs parents have increased yet again and they were in the middle of slagging me off when they realied i could hear everyword as i was stood outside of the window. I felt gutted. Aparently its all my fault that their daughter is now selfish and never spends anytime with them. Im sorry but monday she volunteers at bernardos. Tuesday she goea to the gym. Wednesday she does to yoga. Thursday she goes to the gym and friday we go swimming. Not forgetting caring for me, baking cakes for her business and also taking Dixie for walks. I feel deflated. I dont know what ive done.

TTFN

XXXX

The Future Is Bright...The Future Is Painful

Ever considered what asrhma could be like...actually, ill better that, ever imagine what an asthma attack could feel like. So say that answer that, putva peg on your nose, put a straw in your mouth and breathe. Take it a step furtherx run up the stairs. You feeling daring, run 1500 meters. I bet you get stuck with trying to walk up the stairs let alone anything else. For me, this is pretty much how I feel on a daily basis. I stryghle to breathe with no break. To be honest, I cant actually remember what it is like to breathe "normally" so to speak. One thing that really winds me up is that many people assume that life with asthma is a few pumps of a blue inhaler and life goes on. Unfortunatly, for many there is more to that than this. For me, life with severe brittle asthma has been life changing, you could never live my life if your not use to it, believe me, its taken me four years as it is and im still not there. In America, they actually make their citizens aware of what its like to have asthma. They teach people so that there are no assumptions. This in tern im sure leads to better control and treatment. I wouldnt know for sure as insurance for me to fly out of this country is £6000. Yes you have read that right. Its this high because of all my medication, because I cant walk very far at all and also because in the last 4 years ive been to intensive care 11 times. Heres a video I found on youtube to show that America really do show you things in true light (*WARNING, IT IS EXTREME SO PLEASE ONLY WATCH IF YOU ARE PREPARED*) https://www.youtube.com/watch?v=KtiATXtIjlk Ok so now that ive had my rant about asthma because im pissed off with the way ive been treated and told that I "just" have asthma etc etc etc...I had to get it out my system as its not "just" asthma its my friggin life, and its ruining it. On the note of ruining my life, im fed up with being in pain and im fed up with this muscle weakness. I literally xant take any more pain releif and well as for my muscles, theres absolutly nothing can be done. Life shouldnt have to be like this. I should be able to live daily being carefree like everyone else. Being able to walk out the door and just worry about whether I have my purse. Keys and phone instead of this and, nebiser machine, spare nebules, epi pens, steroids, antihistamines, crutches, wheelchair, pain releif, and much more. If I wasnt so scared and had the chance to, I would end things right now. Life isnt happy when your living thiis life. Its unreliable. Unpredictable and uninspiring!! I hate it... TTFN XXXX

Why Cant One Day Be Simple!?

With an intentional early rise this morning, who knew that the day could turn out so god damn shit!! First off, we were intending on going swimming, but both my other half and her dad had to go to the doctors. My lady has been refered to someone a little more specialist to help out with a new problem that shes got (I say new, but weve been back and forth to the GP so many times over the last year, but theyve only just decided they cant control things any more). Sadly though, with her pops, I ended up having to drive him to hospital on the GPs orders. Hes had an increase in his shortness of breath over the last two days that his inhaler wasnt sorting and was getting a lot of chest pain. An update on him as of an hour ago after an xray, ecg and blood work, he may have a possible small PE. As a result, he is being kept in overnight just incase. I hope its nothing to bad, but on the other hand, maybe this could be a wake up call for my other halfs parents crappy diets and lack of exercise. But, will update you more on what is going on when we know more. I have to go pick up my mother in law who is currently still at hospital, im just hoping its pretty darn soon as im normally in bed by now. The other shit oart of today is that we had the council man come around today after he refused to put in a stair lift for me two which two medical professions told him I need and boy didnt I have yet another go at him. On a good note though, we are now getting a stair lift. On a bad note, hes only doing this for the mean time because he is basically kicking the four of us out. As aparently there are no homes in cornwall with two large double bedrooms either, me and my other half now need to venture on our own. Weve been told we have to sign up to home choice and start bidfing on properties. The council man also told us that they cant help us out anymore financially (because we told him were struggli.g to live off the parents on our income of benefits), he then also told us that the homes come unfurnished and that he also cant help us there either ( which im pissed about as ive just sold all my storage kit to which held my first flats living stuff. We are well and truly screwed. I went straight upstairs and just cried. We cant afford to live on our own, and the chance of me now getting a home that is suitable for my needs is zero to none. The council man ill just add said that if my other halfs parents got a house first, we would have to leave at the same time whether we had a home or not. So this twat is willing to make an ill and disabled person homeless. What the heck is the world come to. More stress to add to my life. I just want one day where I xan sit, chill and be my self. When do you think that may be!? TTFN XXXX

What A Year So Far!!

I seem to be lacking on the posting front yet again, whoops...lets see what I cant remember!!

To start with, because I have no money ive not been able to see the lovely other half and that sucks!!

Ive also been admitted to hospital but instead of it being for my asthma, it was for tummy pain, and I was there for 10 days. Sadly they couldnt operate though to sort the problem because of my lungs so they sent me home on pain relief...but the pain is still there and its horrid.

On other notes, Ive had my Uni interview which went ok. Not heard anything yet, so no news is good news right!?

This week I am back it Birmingham and I also have my DLA Tribunal so fingers crossed something positive will come out of those two!!

On crappy notes, my EX step dad is being the biggest A hole imaginable and told me and mum that we have to get out. As we have been told by the solicitor that we have to stay untill he gives us money we are literally being treated like shit and I really do hate having to sit here through it!!

Im pretty sure thats most of the last few weeks, if not watch this space c;

XXXX