Quick Update

Ok in short, im still very much depressed, if not worse, im still packing and we still have no where to live in 2.5 weeks.

To top things off, out middly rabbit has now come down with a respiratory infection so hes now onnantibiotics twice a day. Something we really didnt need right now.

There has been progress though, tomorrow at 2pm we are having an interview with the homeless team. We blinking hope that they can actually do something for us. So far they seem great though. Today after the appointment was made they faxed my GP asking for a full report about my health which sounds positive though annoyingly theyve not received the update from immunology about my new treatment which we really could of done with. Though ive left the secretary a message and i just pray they can help us out also.

TTFN

XXXX

Annoyance

Ever had so much pain ur restless!? I have. Today has been one of those days. Ive maxed out on all my pain releif and im still in complete agony with my hips. Thank goodness ive got my CT scan on the 1st, my hip consultant on the 22nd and then pain team in October. Hopfully then all this pain will start to be sorted out. Though im not looking forward to the surgery if and when they say it.

In other news, my lungs have also been crap today. I knew something was wrong when i had a rubbish nights sleep, mucus plugs and a husky voice.

So i check my oxygen levels and peak flow. Oxygen has been about 91% all day and peak flow is 50% down. Im not rushing to the GP though as im seei g my respiratory consultant on Wednesday so if he feels i need to step up the treatment then ill do so.

I also went to vauxhal this morning because i really need to trade in my car as my current car, although bloody amazing its simply just to small for me now.
Unfortunatly though they only had one of the style cars i want and it was about 5000 over my budget and the car i saw on the net last week went on friday. Typical.
The man was nice though and took all my details and is going to ring me as soon as one comes in stock and ill be getting first dibs on it. Im just praying that the dealer doesnt want another deposit as unless i take out a 2nd credit card i cant afford a few hundred on a deposit now.

Well, other than all this annoying stuff today, generally it has been a good day.

My mum got me the game scrabble at the weekened as we have been searching everywhere for a cheap first addition game to no luck. Me and my lady will be playing tomorrow if i can cope out of bed and ill be kicking her ass.

TTFN

XXXX

The Future Is Bright...The Future Is Painful

Ever considered what asrhma could be like...actually, ill better that, ever imagine what an asthma attack could feel like. So say that answer that, putva peg on your nose, put a straw in your mouth and breathe. Take it a step furtherx run up the stairs. You feeling daring, run 1500 meters. I bet you get stuck with trying to walk up the stairs let alone anything else. For me, this is pretty much how I feel on a daily basis. I stryghle to breathe with no break. To be honest, I cant actually remember what it is like to breathe "normally" so to speak. One thing that really winds me up is that many people assume that life with asthma is a few pumps of a blue inhaler and life goes on. Unfortunatly, for many there is more to that than this. For me, life with severe brittle asthma has been life changing, you could never live my life if your not use to it, believe me, its taken me four years as it is and im still not there. In America, they actually make their citizens aware of what its like to have asthma. They teach people so that there are no assumptions. This in tern im sure leads to better control and treatment. I wouldnt know for sure as insurance for me to fly out of this country is £6000. Yes you have read that right. Its this high because of all my medication, because I cant walk very far at all and also because in the last 4 years ive been to intensive care 11 times. Heres a video I found on youtube to show that America really do show you things in true light (*WARNING, IT IS EXTREME SO PLEASE ONLY WATCH IF YOU ARE PREPARED*) https://www.youtube.com/watch?v=KtiATXtIjlk Ok so now that ive had my rant about asthma because im pissed off with the way ive been treated and told that I "just" have asthma etc etc etc...I had to get it out my system as its not "just" asthma its my friggin life, and its ruining it. On the note of ruining my life, im fed up with being in pain and im fed up with this muscle weakness. I literally xant take any more pain releif and well as for my muscles, theres absolutly nothing can be done. Life shouldnt have to be like this. I should be able to live daily being carefree like everyone else. Being able to walk out the door and just worry about whether I have my purse. Keys and phone instead of this and, nebiser machine, spare nebules, epi pens, steroids, antihistamines, crutches, wheelchair, pain releif, and much more. If I wasnt so scared and had the chance to, I would end things right now. Life isnt happy when your living thiis life. Its unreliable. Unpredictable and uninspiring!! I hate it... TTFN XXXX

Mentally Down

I know, I know, ive just done a blog, but thats about my day. This is about my mind. I have severe PTSD. Im STILL waiting for CBT. Ive been abandoned by the health care system. Im feeling alone. Im feeling scared. Im feeling vunerable. Could I harm myself...ive do e it before!! That previous few lines is exactly what has been going through my head for the last few days. I really dont know what to do. What has made it worse, and what nobody seems to be seeing is that my father in law has been admitted to the same hospital that I was admitted to, two days before christmas last year. Hes been admitted to the same ward I started off in before I was rushed to ITU. Im taking the same routes to get to his bed that I was taken before I was nearly dead. No one has asked me how ive been walking back into that hospital. No one has asked me if my flash backs and panic attacks have gotten worse since stepping back into the hospital. No one has offered to stay with me for five minutes when I need a breather to sort my head out. Yes ok, I know, a member of their family is in hospital and is poorly. Im not being horrible, but his observations or stable, hes not on oxygen, not being closly monitored and the doctors arnt worried about him. Hes only now still in hospital to sort out warfrin that he is now on. This may sound very selfish to anyone reading this, but when you have been that close to death, unfortunatly you have to try and live life, and frustraitingly my life is being restricted in more ways than one and I hate it. I want my life back I want to start a family and not have them worried about all my health needs I was the flash backs to stop I just want to be me!! TTFN XXXX