Devestated

Some people may say, atleast you know whats causing your trouble and others may say, its not that bad, ive had it but for me, its really got me down.

The reason it has got me down is because its the 3 bit of crappy news ive had this year so far and were literally only half way through.

I had Taunton hospital ring me yestersay saying theyve had my MRI results back fot my right hip. It turns out i havnt been making up my pain just to get morphine as some doctors have said, but infact i have a lebral tear in my right hip meaning i need to have surgery as soon as they can get the whole team together for me.

Im having the surgery down in Truro though as it can be done key hole down here rather than open surgery that Taunton can only do. So i have to wait for my care to be transfered over first.

The reason this bit of news has devestated me, isnt just the fact that doctors wasnt believing me but its also the fact that i flat line and stop breathing everytime i have a general.

Yes im aware that i dont have to have a general, but ive not been given these option as of yet. I guess each hospital has their own policies.

Only time will tell.

TTFN

XXXX

Im Back

Im aware it has been a few days...but Im going to keep it short.

The last few days have been beyond hectic, stressful and just head hurting for me-literally.

On Thursday night, my other half had told me that both our mums were talking about me on my latest admission to hospital. Aparently the nurse who was looking after me, the respiratory consultant and the ITU consultant were all very worried. Not just because i was deteriorating with my asthma attack, but they were worried i wasnt going to be able to keep battleing on because of my muscle wasting. They said that if i were to have many more attacks like this latest one, the liklihood is i wont pull through. I just dont have the muscle strength. With my phosphate also refusing to pick up, it also means that my muscles arnt contracting in the right way so my vital organs just cant get enough oxygen. Along with this, they were worried that mentally i will keep struggling with everything thats going on so they told our mums not to tell me what they have said. My other half just couldnt keep it on on Thursdag night though. It was eating her up. And i dont blame her for telling me.

During the mddle of the night i had yet another full body allergic reaction but we have no idea what to again which is very annoying.

Friday we had to look after our nephew. His mum had an appointment which was going to be roughly an hour long so we took the pleasure in looking after him. He is such a content little boy and i really cant wait to have my own little family.

On saturday, I needed to get out the house. There was far to much negetivity and it was driving me down so we decided to take Dixie to the beach...bad move. We have now worked out that the salt wter makes Dixie violently ill. Shes done i before but it wasnt untill yesterday i actually clicked. By now though we know the drill and managed to get things under control and by today she was back to her usual self again and we even managed to give her one of the liver cakes that i made her. Dont worry, theu are dog friendly!!

Today weve literally hybernated. Ive had a migrane for the last few days and it just wouldnt shift...untill this afternoon. Praise the lord. Whilsy chilling though, in turn i have managed to finish off all the writing in our wedding invites and ive also managed to knit number 69 of the NICU hats. So im super pleased.

Well, im off to bed now. Ive planed a huge suprise for my loverly lady tomorrow and i need to be both physically and mentally strong (especially as i fell over today trying to pick up one of our rabbits)

TTFN

XXXX

Another Appointment And Another Bit Of News

Firstly I forgot to say yesterday that I had the doctor ring me to update me about what they have found about my constant low Phosphate and that being: they need to do one more blood test to rule something out but ultimatly Im going to need supplements because my low phosphate is causing ny diaphram to not contract properly which in tern is reducing the amount of oxygen ive got pumping through my body...grand something else I have to battle with.

I also had another appointment in Derriford hospital in Plymouth today. It was with the immunology and allergy clinic. Initially I though this is going to be such a waste of time, they cant tell me anymore than what I know and as a result they cant actually do any more BUT that taught me.

The doctor was lovely, she talked through everything and explained why she had been asked ny lung doctor to review me. Aparently on the bloods they have taken it has shown that I have very little to if no immune system at all...lower than what it should be for a person on steroids so they have figured it is the huge reason for why I am contantly getting infections and constantly feeling poorly.

To see if they can find a treatment, I got given an injection on the spot and I have to have more bloods taken in 6 weeks time. It takes 1 month for the bloods to process ajd then ill get the results. If the bloods r still low following todays injection, I will either have to start more tablets or have an infusion or injections regularly all depending on my results.

She also stated me on a steroid nasal spray and changed me back to my old antihistamines but doubled the dose compared to what I was on.

Sadly though she did tell me that I shouldnt now or if at all every carry children. Not only could it kill me because my body wouldnt cope but half my meds would either harm my baby or cause further complications. Im gutted, there goes our plans for me to carry our first child. I mean its ok coz my partner can carry, but lets face it, its never going to be the same and ill technically never have a child of my own with my DNA etc. Theres always a bomb shell!!

TTFN

XXXX

Chirpy, Smiling and Goodness atlast!!

Well, im not going to say everything as im not about to give the whole thing away, just incase it gets out to the wrong people as its all a big secret to EVERONE ha. So...this news thats made my day is that myself and my partner have found a sperm donor, and we are meeting up with them in a few weeks time. Weve been chatting to each other on this special website that links both sides and parties together and last week we exchanged emails and been happily chatting through there also. He seems like a very nice gentleman, and has said that he will sign a contract when we meet to say he signs over all his legal right to myself and my partner which we are also over the moon with. Not only all of the above, but he has said he doesnt want any moey, just travel expenses if he has to come to us at all, but at present, we will be visiting his end of town so no money is needed to go his way. Considering IUI or IVF in a clinic was meant to be around £3000 this is a lot cheaper and aot more comforting being able to do the deed in the comfort of our own home and not in a sterile clinic with every man and his dog exploring your vegetable patch. Fingers crossed, this time next year, myself and my partner will be mummies, and our family will start expanding. Excitment does explain it enough. TTFN XXXX

happiness vs tension

To start things off I am over the moon to tell you all that myself and my lovely lady now officially have the same surname. Some may think this is crazy, but to us its the next best thing to getting married and as we cant afford that yet, this is equally as great and both ends up with the same result. The second best thing about this is that when we eventually start a family, we will all now have the same surname, we will be more like a joint family Excited at last!! Where there us good news though, there is always bad news. My other halfs sister got really horrible about the fact we didnt tell her we were planning on changing our names, she also said it was pathetic that we done it. As well as this, she then started getting pissy about some of the statuses we put on facebook - erm excuse me, but is it not my facebook!? If you dont like it, delete me!! This caused a huge argument within the house and really didnt help situations. In other news, things are still very much the same with regards to the puppies, my girlfriends mum and her general attitude daily. The atmospher as a result is crap, theres no longer nice jolly daily conversations, just constant bitching, jealouse and snappy talking. I hate it, i moved out from my mum because of things like this, I dont need it again. Im just really pleased that it hasnt come between me and my girlfriend as that would be really decestating. Well im off, got an appointment tomorrow at plymouth for my lungs so another busy day!! TTFN XXXX