The Future Is Bright...The Future Is Painful

Ever considered what asrhma could be like...actually, ill better that, ever imagine what an asthma attack could feel like. So say that answer that, putva peg on your nose, put a straw in your mouth and breathe. Take it a step furtherx run up the stairs. You feeling daring, run 1500 meters. I bet you get stuck with trying to walk up the stairs let alone anything else. For me, this is pretty much how I feel on a daily basis. I stryghle to breathe with no break. To be honest, I cant actually remember what it is like to breathe "normally" so to speak. One thing that really winds me up is that many people assume that life with asthma is a few pumps of a blue inhaler and life goes on. Unfortunatly, for many there is more to that than this. For me, life with severe brittle asthma has been life changing, you could never live my life if your not use to it, believe me, its taken me four years as it is and im still not there. In America, they actually make their citizens aware of what its like to have asthma. They teach people so that there are no assumptions. This in tern im sure leads to better control and treatment. I wouldnt know for sure as insurance for me to fly out of this country is £6000. Yes you have read that right. Its this high because of all my medication, because I cant walk very far at all and also because in the last 4 years ive been to intensive care 11 times. Heres a video I found on youtube to show that America really do show you things in true light (*WARNING, IT IS EXTREME SO PLEASE ONLY WATCH IF YOU ARE PREPARED*) https://www.youtube.com/watch?v=KtiATXtIjlk Ok so now that ive had my rant about asthma because im pissed off with the way ive been treated and told that I "just" have asthma etc etc etc...I had to get it out my system as its not "just" asthma its my friggin life, and its ruining it. On the note of ruining my life, im fed up with being in pain and im fed up with this muscle weakness. I literally xant take any more pain releif and well as for my muscles, theres absolutly nothing can be done. Life shouldnt have to be like this. I should be able to live daily being carefree like everyone else. Being able to walk out the door and just worry about whether I have my purse. Keys and phone instead of this and, nebiser machine, spare nebules, epi pens, steroids, antihistamines, crutches, wheelchair, pain releif, and much more. If I wasnt so scared and had the chance to, I would end things right now. Life isnt happy when your living thiis life. Its unreliable. Unpredictable and uninspiring!! I hate it... TTFN XXXX

Really!?

Could you ever imagine what a day in my life could be like!? Well here is yet another day of being turned upside down. Latly now because of getting up so early, my body clock now seems to think 0730 is the perfect time for me to be awake. Fun. I guess with being up so early the day may aswell have been started, so after my.morning medications we toddled off to the feild. Annoyingly though we had to bring my mother in laws dog with us. We only managed to walk around the feild twice though as I was bloody shattered. After all of that walking we then had to do a mad dash to the post ofgice as the post man is starting to get rediculous again with not posting our parcels. It seems as though I am now instantly the person that has to run everyone around. With having to take my father in law to hospital we had to leave his car at the doctors surgery, and because my mother in law was having a stress that it may have got damaged, she rang the rac and through mobility she got it driven home. Thats fine, I dont mind helping with that to some extent because you cant help being poorly, but what hacks me off is, my mother in law can infact actually drive and is insured to drive their car, she just doesnt want to. I stead I am being made to run around. All in all to dat, I have driven from home, to Bodmin, to Wadebridge, to home, to Truro, to St Austell and then back home again. I had to miss my lunch time medication because of being in the middle of driving which cause my lungs to get pissed off and it also meant I couldnt have any pain relief because of the drowsiness it cause which it turn has left me crippled in pain. Thankfully because of my amazing girlfriend, as soonas we got home she dosed me high with drugs and cooked me a lovely tea. After about 2 hours I was now in less pain than before. Enough that I could walk a little and decided to quickly dash around the feild again with Dixie as its really unfair for her to miss out hust coz my body is screwed up. Im praying that I dont have to run everyone around tomorrow as I really cant cope with it. On other notes, my father in law had a CT scan with dye to find out what was causing his breathlessness and it turns put he has clots in both lungs. He sadly though is adiment that its his diabetes that has caused this, no matter how many times we tell him different. He says that just hecause he is 19stone and immobile (to some degree) that that wouldnt have caused the clots. I guess this is a little sadening as it means he wont change his lifestyle. Some might say that this could be a warning to him. I guess if hes not willing to accept that his lifestyle isnt the factor for his stint in hospital then hes not going to get that reality check for his life. Sad really. TTFN XXXX