New Beginnings

Before I go onto the main subject of the post i thought i would share with you all that last monday i finally got that lump that was growing pretty quickly in my mouth removed. I had to have surgery to have this done and i was awake throughout it all. It was not nice at all but its gone so im please. Sadly though because the surgeon had to remove soooo much tissue because of the size of the lump, there then wasnt enough tissue left to stitch the two sides together so i now have a huge lump in the floor of my mouth. Its weird as i can stick my tongue in it lol.

On other notes though, and back to the title, as of 1330 pm on Thursday 13th November,my self and my girlfriend offically became married. It was absoulty amazing and everythibg went as planned. I was so please and happy.

We stayed in a 4 star hotel for 4 nices and blinking heck we wasnt use to it. It was so strange saying can you add the meal to our tab etc instead of paying straight away. Weve decided though that we must go back. The treatment there was amazing and we went swimming aswell as it was all included in the price.

Our next big suprise is my wifes 21st birthday. All her presents are wrapped and ready, Now we just need the big day to arrive.

TTFN

XXXX

The Joys Of An Asthmatics Life

Ventolin, salbutamol, puffer, inhaler, reliever. Recognise these words!? Im sure you have!! These are just what asthmatics use because they get out of breath right!? Overweight and dont exercise so use their "puffer" and carry on as if life never stopped. WAIT!!!!!!!!!!!!!!!!!!!!! Blinking heck well I have a shock for you. If you think that this is asthma defined you need to spend a day in my shoes, actually scrap that, ill give you the morning or the afternoon, you pick as you wouldnt cope a day. Asthma is not a few puffs of the blue and carry on where you left off. My life has been destroyed by asthma. My asthma is very different and suprisingly not many people have it which is why its not as well known. I have severe brittle asthma. I could be sat watching telly and then within a split second my lungs could decide that actually they didnt like that cold air that ive now started breathing in because of the winter months. Within that split second my oxygen levels will plummet, my co2 levels will rise to dangerous levels, I will become exhausted, tired, confused, SCARED. My life is hanging in the balance once again. I need drugs wuick. Quicker than quick infact. I need an ambulance, shit wheres the phone, shit I cant talk. Phew my girlfriend has walked into the room, 999 "ambulance"...amazing paramedics come within minutes because ive an emergency flag on my address alerting them of my asthma. They put a needle in my veins, they push drugs into my blood stream, they put and oxygen mask on my face with more nebulisers. The get me into the back of the ambulance, hook me up to all the monitors, the pre call the emergency room, blue lights go on, sirens blaring, 90mph down the dual carriageway, arrive in resus, consultant;nurses;junior doctors;itu team all waiting form my arrive, fuck where they taking my girlfriend please dont leave me on my own, doctors listen to my chest, its silent and no air is shifting, the stab a needle into the artery in my wrist to draw special blood, they test the blood and get instant result, results arnt good, more iv drugs being pumped into my system, muscles working harder than they should, doctors start getting really concerened, I move from resus to intensive care, they stab my artery again with a more perminant lline, they attatch a tighter fitting mask to my face, I remain like this for hours, finally drugs start kicking in, it becomes easier to breathe, my life is coming back to me. Ive survived another. Attack!! I guess me going through a breif outline of my life is like trying explain to a man the real pain women go through with Labour and sadly they will never know for real. For you, there is a very similar way to know how I feel, tape up ur nose so u cant breathe through it, put a normal average size drinking straw between your lips, now tape up the rest of your mouth so no air can get in other than through that straw. Struggling yet!? No, ok, now go and run for 20 minutes flat. You wish. You wouldnt make it 2 minutes!! Thats how I feel daily and when an attack shows its ugly face this struggling and fighting for breath feel intensifies. Ontop of this, I take many medications. These have side effects. I need to devide, do I want these side effects ir do I want to breathe!? Im not an idiot, I choose to breathe. Unfortunatly though this brings me to todays appoinyment with the doctor. One of the side effects from my medications is a muscle wasting disease. Ive now been told that theyve looked into my case. Theyve assessed everything. Theyve looked at alternative drugs. THERES NOTHING THEY CAN DO. My muscle disease I am told today will get worse. The only way it can remotely get better is by coming off the medications, but like I say, I dont and I cant breathe without these drugs. Currently its getting to the stage im struggling even more to hold my head up. Ive been given exercises to try and strengthen my neck muscles but im told not to do them too iften as I can rip them and then they are permanently damaged beyond repair. Inevitably I will end up like a newborn, I will not be able to hold my head up. So, back to my earlier question, do you want to spend a day in my shoes!? TTFN XXXX

Skywire

So being subborn and not letting my health control my life, I saw a voucher on Groupon to go on a Skywire. This particular one is at the Eden Project and is 660m long and goes 60mph. perfection. it was amazing. I felt free and unrestricted. though I had to have help because of my rubbish muscles because I couldnt get into the Harness very well. I hope the video works as it was great and if you ever get the chance you should do it

TTFN XXXX

knee And More

We had a nice early start this morning. Not. I had to go back to Truro to see the consultant about my knee. Sadly he has told me that i have damaged my maniscus. He is giving me two more week to rest and allow the swelling to go down and the pain the get better. If things are all the same then i have to have either one or both of the following things, an MRI and or seeing a knee surgeon. As a treat we then went over to costa. Weve not had very much time on our own recently out and about so we took the opportunity whilst we can...and it seems costa were mocking.me c; Once we got home, the weather was being great to us so we took the opportunity to let our butterflies that weve grown out into the wild. It was amazing. We held them first and really got to have a nice close look at them...it is something that we will be doing again. 100%. To have seen them go from tiny caterpillars right through to stunning butterflies was fantastic to watch. Youve got to love nature Following this, we picked up Dixie and i drove us to the feild just up the road where we let her off the lead and chucked the ball around the place and gave her a great run around. It was fab to see our little pooch out and about again as ive not been able to do it in ages. Ive also decided that me and my girlfriend havnt had a date daya in FOREVER. So weve arranged it for tomorrow where we aret off to the cinema to watch malificent. I have also completed hat number 79 today. Yay. Ps...my internet is being mega slow so as soon as its come back to the 21st century, i will be adding photos to go with this post. TTFN XXXX

Always Something

Up nice and early today...but then we all fell asleep again after Dixie had breakfast, till roughly 0930 which for us is rediculoudly late since having a puppy. We done our usual routine first off, and then decided Dixie needed a walk...or I needed it because I put on 2 and 3/4 pounds in the last week. Im personally blaming my increase of steroids plus I have eaten a fair few bad things. We also took Dixie for a walk this evening, for her fun but for me, punishment!! We had to leave at 1130 though to get my other half off for her volunteering job. Once I done that, I had to run off to lidl and asda to get our food for going away tomorrow. Following this (goodness ive been busy) I then had to get my other half to our local hospital as she had an appointment with her ears because of her hearing loss. All is ok, but sadly, the type of hearing loss she has cant be treated with hearing aids, its a weird link between her ears and brain that loses the wavelengths of words and noises which jumble things up and make it harder to hear and understand words. My heart aches for her because its not something that can be sorted. As a result she now struggles to hear generally. I on the other hand have to learn to talk slower and with less of my Bristolian twang ha. Testing my cooking skills (under supervision because of my muscles) I cooked the most amazing tomato soup ready for when we get back for our lunch time meals for when we get. I know a soup is mega simple, but for someone with my disabilities, its blinking hard, and depressing because of needing supervision. In good news, I managed to complete the editing process from Saturdays photos. I managed to get 124 that I absolutly love and im super proud of. Oh and, I got another silver award on a photography I submitted to a competition a few weeks ago, im so proud of how far ive come, I just hope I can keep it up. Excitingly I am off camping with my beautiful girl tomoorow and our puppy. Were only going to Padstow just incase something was to go wrong, but its our first little holiday together as a little family. The memories that will be made are ones that im really looking forward to. I just hope it goes smoothly as weve got our next camping holiday booked for May already ha. So, im not going to be blogging for the next few days, will probably be either Friday or Saturday night, deoending on how tired I am. TTFN XXXX Ps, I forgot to mention, after I sent my sputumn sample last week, I had the doctor ring me today and as I thought ive got a bug in my lungs, its a yeast based fungi that is resistant to all antibiotics so were waiting to hear from my cons about what week can do. Fab hey