Showing posts with label review. Show all posts
Showing posts with label review. Show all posts

Friday, 31 October 2014

The Joys Of An Asthmatics Life

Ventolin, salbutamol, puffer, inhaler, reliever. Recognise these words!? Im sure you have!! These are just what asthmatics use because they get out of breath right!? Overweight and dont exercise so use their "puffer" and carry on as if life never stopped. WAIT!!!!!!!!!!!!!!!!!!!!! Blinking heck well I have a shock for you. If you think that this is asthma defined you need to spend a day in my shoes, actually scrap that, ill give you the morning or the afternoon, you pick as you wouldnt cope a day. Asthma is not a few puffs of the blue and carry on where you left off. My life has been destroyed by asthma. My asthma is very different and suprisingly not many people have it which is why its not as well known. I have severe brittle asthma. I could be sat watching telly and then within a split second my lungs could decide that actually they didnt like that cold air that ive now started breathing in because of the winter months. Within that split second my oxygen levels will plummet, my co2 levels will rise to dangerous levels, I will become exhausted, tired, confused, SCARED. My life is hanging in the balance once again. I need drugs wuick. Quicker than quick infact. I need an ambulance, shit wheres the phone, shit I cant talk. Phew my girlfriend has walked into the room, 999 "ambulance"...amazing paramedics come within minutes because ive an emergency flag on my address alerting them of my asthma. They put a needle in my veins, they push drugs into my blood stream, they put and oxygen mask on my face with more nebulisers. The get me into the back of the ambulance, hook me up to all the monitors, the pre call the emergency room, blue lights go on, sirens blaring, 90mph down the dual carriageway, arrive in resus, consultant;nurses;junior doctors;itu team all waiting form my arrive, fuck where they taking my girlfriend please dont leave me on my own, doctors listen to my chest, its silent and no air is shifting, the stab a needle into the artery in my wrist to draw special blood, they test the blood and get instant result, results arnt good, more iv drugs being pumped into my system, muscles working harder than they should, doctors start getting really concerened, I move from resus to intensive care, they stab my artery again with a more perminant lline, they attatch a tighter fitting mask to my face, I remain like this for hours, finally drugs start kicking in, it becomes easier to breathe, my life is coming back to me. Ive survived another. Attack!! I guess me going through a breif outline of my life is like trying explain to a man the real pain women go through with Labour and sadly they will never know for real. For you, there is a very similar way to know how I feel, tape up ur nose so u cant breathe through it, put a normal average size drinking straw between your lips, now tape up the rest of your mouth so no air can get in other than through that straw. Struggling yet!? No, ok, now go and run for 20 minutes flat. You wish. You wouldnt make it 2 minutes!! Thats how I feel daily and when an attack shows its ugly face this struggling and fighting for breath feel intensifies. Ontop of this, I take many medications. These have side effects. I need to devide, do I want these side effects ir do I want to breathe!? Im not an idiot, I choose to breathe. Unfortunatly though this brings me to todays appoinyment with the doctor. One of the side effects from my medications is a muscle wasting disease. Ive now been told that theyve looked into my case. Theyve assessed everything. Theyve looked at alternative drugs. THERES NOTHING THEY CAN DO. My muscle disease I am told today will get worse. The only way it can remotely get better is by coming off the medications, but like I say, I dont and I cant breathe without these drugs. Currently its getting to the stage im struggling even more to hold my head up. Ive been given exercises to try and strengthen my neck muscles but im told not to do them too iften as I can rip them and then they are permanently damaged beyond repair. Inevitably I will end up like a newborn, I will not be able to hold my head up. So, back to my earlier question, do you want to spend a day in my shoes!? TTFN XXXX

Monday, 12 May 2014

Dont Jinx It

Im not sure whether itll be premature to share even more good news or not but im finally happy that things might be starting to look up a little.

This morning myself and my other half went to the doctors to discuss her tablets. The reason for this is that we want her to be as healthy as possible for getting pregnant and of course we dont want her to be on any tablets that may cause harm to the baby.

The doctor was amazing, he discussed everything. Even things concerning me and i dont even go to that practice. He adjusted my partners medication and said he wanted to see us both in a month to see how we were getting on.

Following the great doctors review, we then text our donor explaining the recent circumstances and asked whether he would still be willing to donate even though it wasnt going to be me carrying anymore. He said yes. He was also very kind to us about the situation and how it has come about which i also thought was good natured of him.

Once all this was done, i had to take my other half to her volunteering job. Yesterday she baked some cakes as it was a birthday at the shop and she made an extra one for us to eat at home. They were friggin amazing. She made the same for my birthday in february and she bettered herself. My lady really does have fantastic talent.

In other news, I had a gentleman from Asthma UK ring me to discuss fundraising ideas with him. Hes amazed at the challenge i have set myself despite my deterioration in health and has sent me all the paperwork to fil in to get started. Once all that has been sent back ill be setting up a justgiving page and im going to try my hardest to raise as much money as humanly possible. We really need to find a better treatment if not a cure for Asthma.

Ive also managed to knit another hat tonight so i have a grand total of 7 now. I fear it still may take me a along time as it really hurts my muscles and joints but i think once the task is complete im going to be so chuffed!!

Hopfully you guys would sponsor me!?

On a sad note today ive had two allergic reactions today and my skin has felt like it has literally been on fire all day. Ive been in agony. I really hope i figure out wjat an earth is causing all these reactions!!

TTFN

XXXX