Showing posts with label myopathy. Show all posts
Showing posts with label myopathy. Show all posts

Monday, 17 March 2014

Such A Nit Wit

As you can tell from the title, I still havnt learnt from my mistakes. Last night I had to put my steroids up because I was struggling so much, and today my lung function still isnt good, but that still didnt get me to sit on my arse and chill. I had to take my other half to volunteering at lunch time, but because we wetevearly, we decided to walk around the local park with the puppy. That initially killed me espevially as I decided to walk tjis time instead of using my wheelchair. Once I got back home, I had to sort all the pets foods out and get the rabbits in the run. I then had to have some dinner, do my meds and then try and sort my pc out, all before I had to then go pick the other half from work. Stupidly though, I promise my other half that we could go to a place called Cardinham woods and go for a walk with the pup and also have a 'naughty hot chocolate' because it is so hilly though I refused to have someone push me in my chair so ended up walking again. Safly though we only got about 5 minutes in and my legs were giving way and I couldnt breathe, so we had to turn around and go sit gown. I was gutted. Steroid myopathy and brittle asthma are so dibitating and is slowly killing my independance and freedom. My flash back are also flaring back up again. More than the usual daily stuff. I think its because my body is struggling again and its scaring me for what might happen. Im hoping they will settle down again soon!! My pain has also gone ridiculous. This is my fault though. Because of trying for a baby, I have stopped taking my morphine as I dont want it risking causing any harm to the foetus at all. Im considering asking my GP to refer me to rhe pain team to get things back under control. In happy news though, this week I lost another pound in weight. That means I have one pound and three quaters to loose and ive lost another stone in weight which totaled up, thats three stone since last August, im so chuffed with regards to that!! Well, sorry for the depressing post, I just had to talk to someone and you guys seem perfect. TTFN XXXX

Thursday, 9 January 2014

Todays Activities!!

With starting to crack down on my weight this week (to which was spurred on by my 2 stone weight loss last year) I have totally changed my diet and reduced my meal portions by half.

Annoyingly though because of my muscles, joints & lungs I cant do a lot of exercise. Actually pretty much none. So today, me and the other half plus her mum decided to bite the bullet and go swimming. This swimming pool is fantastic, you pay £3 each (which is rediculously cheap) and we seem to always be there on our own which is lush also.

I only managed 8 lengths and then sat there kicking my legs. But the other two enjoyed their selves and done a lot more lengths.

Im hoping that with having a bit  of exercise in my life now, itll help to maintain my muscles and also help to burn this extra bagadge that im carrying around.

Watch this space though, I could be in agony tomorrow and not be able to move anywhere.

For now...

TTFN

XXXX