The End Is Near

The title for my post today is very relevant to a number of things, firstly, the end to this year. This year has not only been fantastic because we got Dixie, but because we got married, my wife turned 21, we have met our potential sperm donor, we have moved into our own home, we have a new nephew, ive started a new treatment and so far, this is the first year ive only landed in ITU once. The second thing that is nearing to an end is, from what it seems, the weekly trips to plymouth hospital being taught my subcut Ig infusions. Myself and my wife have pucked up and remembered the whole routine in just one session so now we are literally just reasuring ourselves and also keeping an eye on the headaches I am getting following these treatments each week. My link nurse seems to think though that shell be doing a home visit by christmas and then we will only need to go to clinic for follow ups. The third thing coming to an end this year is Dixie being in foster. Weight, dont get excited just yet as no we havnt been given a permenant home. Just sadly the lady who was fostering whilst her husband works away so that she g ad company can no longer foster because her husband is no longer working away and he wNts to decorate the house. We aremanaging to stay at my dads from christmas day untill the 6th of January but then we are stuck, we have nowhere for Dixie to go. I refuse to get rid of her. This year has literally been full of emotions being both positive and negetive. A lot of how the year has turned out has been utter crap, but it seems that no matter what is thrown at us, we have managed to pick ourselves up, carry on and see the lighter sideof things. To top of this year, I got gi en my mobity scooter. Ive been on it fir about 10 minutes at a time so far untill this week. This week has shown new beginnings, opportunities and prospect because myself and my wife were able to go for a stroll down the camel trail for 3 hours and although I was tired it was purly through fresh air and chest infection instead of the usual muscle weakness and breThlessness. I really cant bieve how so much can go on in just one persons life. May e I should write a book...though dont hold me to that as the chances of me following it through are as high a chance of me doing a skydive jump. TTFN XXXX

Death

Ironically the though of death scares me, yet given the chance i would end my life tonight.

Yes ok some people have it worse off than me, but this is my life. This isnt how i use to live and this isnt how i want to live.

Yes people who have been told they only have a few weeks to live literally want to do everything they can and see everyone to say goodbye
I guess the lucky (if u can call it lucky) thing here is that theyve been given that warning. That chance to say goodbye.
With my illness, i could literally die at any point. Without any warning and without any friends or family

I sucks.

It feels like im in prison and on deaths row. Just casually sat here waiting for it to be my time.

Why is more not being done about asthma.

Why is there no media on it. No regular press releases. No regular adverts raising awareness. We deserve that is nothing else right!?

Im not going to go into details to justify why i would end my life in a second because there are to many reasons. All you need to know is that, asthma sucks. The side effects from all these life saving lung medications suck.

Dont take your life for granted. You never know when it may abruptly come to an end.

TTFN

XXXX

Death

Ironically the though of death scares me, yet given the chance i would end my life tonight.

Yes ok some people have it worse off than me, but this is my life. This isnt how i use to live and this isnt how i want to live.

Yes people who have been told they only have a few weeks to live literally want to do everything they can and see everyone to say goodbye
I guess the lucky (if u can call it lucky) thing here is that theyve been given that warning. That chance to say goodbye.
With my illness, i could literally die at any point. Without any warning and without any friends or family

I sucks.

It feels like im in prison and on deaths row. Just casually sat here waiting for it to be my time.

Why is more not being done about asthma.

Why is there no media on it. No regular press releases. No regular adverts raising awareness. We deserve that is nothing else right!?

Im not going to go into details to justify why i would end my life in a second because there are to many reasons. All you need to know is that, asthma sucks. The side effects from all these life saving lung medications suck.

Dont take your life for granted. You never know when it may abruptly come to an end.

TTFN

XXXX

Becoming Aware

Today I received my indepth letter from the Birmingham psychologist after my appointment with her on the 5th of February. To an outside person or sombody medical like my local consultant or my potential new local psychologist this is one fantastic letter, but for me, it just hits home for how "poorly" my mind actually is. She startes that I have moderatly high post traumatic stress which is both on intrusions and avoidance and my scoring on one of the tests I had to do on the day was 59. Aparently the cut off period for the score is 33 so mine is pretty bad concidering. I still find it hard to know that there is something wrong and that if I hadnt of left it so long and tried fighting it myself then it potentially wouldnt have got tjis baf. I guess we learn from our mistakes hey!! I have tried doing some of the techniques that the psychologist taught me to do. Ive currently now drawn three pictures which are the nightmares Im getting made humorous. Ive also been doing a meditation technique called leaves on a stream. Ive had to hold back a little though because it has been getting really intense and really scaring me, making me want to cry all the time. It is also making me feel even more vunerable, and im trying my best to not let the other half see this. I dont want her to worry. I will of course let her read the three page letter if she likes, but if she wants to talk about it, itll have to ve later when her parents arnt around as I dont want them getting involved in my life. Yes they are technically now my family, but not directly, and I dont want everyone knowing my business. I am very much a private person and physically talking to people is hard. I never like the responses I get, they are either sad, cry worthy of negetive or on the other had, they are those annoying positive results which yes in reality would be good, but unless your living that particular life you will never know how hard it actually is!! Admittedly it is all starting to hit home and I am ready to break down but I dont want to make everyo.e else sad. Maybe I should start think about myself once in a while...if only it was that easy hey. Well I think that was a complete and utter bit of randomness and I bet half if it doesnt make sense...well welcome to my head ha. TTFN XXXX