Anything Else Want To Come My Way?!

Sorry for not posting yesterday but I was so overwhelmed with information I just couldnt bring myself to sharing it.

I was at Musgrove park hospital in Taunton for a MRI on my hip.

I had to be there for 0920 in the morning as first up i had to have a massive needle poked into my hip joint again to have dye pumped straight into it. This was done under xray guidance. Initially all was going ok, then suddenly I felt very sick, went mega dizzy and from what i can gather, the colour drained from me and i went spaced out. Next thing i know both the nurse at my head and the consultant injecting me was asking if i was ok.

The whole team on this first stage was fantastic.

Following this i then went round to the MRI scanner. I got told that i would only be about 10 minutes...2 and a half hours later im finally back with my other half who had been going frantic and worrying mega because i had been so long.

off we toddled to the cafe though where i had a coffee to wake me up again for the journey back home. Fingers crossed itll only be a few weeks and ill have the result and find out what treatment i need.

Once home i had to ring my GP to update them on the new drugs ive started and i also wanted to check both my sputum and blood tests that i had done on Monday.

I was so pissed. The receptionst told me that yes the result were in but i had to physically come in to see the doc to discuss the result...and the next nearest appointment was 3 weeks away. I obviously refused this and said ill sort something, but in the meantime could the doctor ring me so i can tell them about my new medications...cheeky me then mentioned the blood results to the doctor when they rang me back and bloody hell im friggin glad i did. It was with regards to my phosphate again...and it remain critically low. Ulyour levels are meant to be 2.4 and above...mine was 0.6 so its no wonder im struggling so much so ive now been started on phosphate supplements and need regualr blood tests

As youve probable guessed following all this had 100% exhausted me so i went off to sleep...only to be woken up at midnight having a massive allergic reaction...gradually throughout the day i had been getting itchier and itchier and then by midnight i also had a full body rash. I could put my finger on what was causing it annd initially i thought it might have been the uniphylin...with taking this mornings dose and having no reaction it then clicked, it started straight after i had the dye put in my hip...and had been getting worse throughout the evening making me feel shit, so i guess thats another drug i can no longer have. Perfect.

I woke up this morning in agony though. I know the consultant warned me that with certain people, depending on what hip injury they have they can have bad pains through out the whole leg for the next few days..mand boy was he right. I could barly walk to day and i cant bend my knee without crying out in pain. I just hope it doesnt hang around.

Today i have officially made 35 baby hats so my first NICU box is complete. Im going to do another fair few amounts of hats though before i send them off as i want to get a great picture to send into asthma uk to show them the progress...please look through my previous blogs to find my just giving page...we really need more donation!!

TTFN

XXXX

Vets, Pain and Feeling sad.

This morning was a blinking early start but sadly it had to be done. Our little girlie Dixie had to go to vets for her third lot of injections and also to be micro chipped. I was already worried about the pain it would cause her because of when I went with mum when she had a puppy. My partners mum went in with the nurse first and came out as if nothing happened so I guessed it may not be as bad now a days. In we both go with our pooch being optimistic about it all. First up was the injection, the needle itself didnt actually hurt her but the fluid did when it was going in. She wimpered and shuffled across the table to us both. We just looked at each other feeling helpless. Next up was the microchip. Looking at the needle, to me it just looked like an average size needle that I get stuck in me when I go into hospital. Again, the needle didnt hurt Dixie, but when they slid in the chip she yelled...and everyone in the pets at home store heard her aswell. We both looked at each other again, gave her lots if hugs and attention, and gave her the treat we braught with us. She bled a lot, which we are also super suprised by. The good thing is, that she does need any more needles being stabbed into her untill next year, and as of today she is now allowed on walks in the public. We are excited about going to the beach, this is great as shes a huge digger so will be right in her element and also gets to go in the sea. After our big ordeal at the vets, we decided that taking her for a walk this affternoon would be to much, so we settled down and watched a film. Myself and the other half snuggled on the sofa like the goid old days, these moments remind me just how much I love her. On the other hand, there are still massive issue with her mum and her attitude. She always has to be right, even though shes blatently wrong. She is insiting on cooking first every meal time which is also pissing us off. I change my nebs to 1730 because she would always cook from around 1800 -1830. Which generally meant we were having to eat stupidly late which wasnt helping our weightloss. But low and behold, the minute we change our arrangements, she changes hers, uses every pan we were going to use and then doesnt clean it up, so we are delayed even more. Like tonight, she cooked, then we had to, and whilst we were finishing off, she barged into the kitchen and started doing her pudding. Bearing in mind, the kitchen is bloody tiny and theres no room to swing a cat, let alone have three peaople cooking whilst also juggling 2 puppies. She then gets pissy at my other half about simple things like not scratching her mums bad on demand and also not looking after her pup whilst she has her pudding...even though weve not even started our tea. Everything else in life is plodding on...but bloody hell, her mum is doing my freaking head in, and I fear the stress may actually make it extremely hard for us to get pregnant. Oh well, only time will tell. TTFN XXXX

I Forgot To Mention!!

So ive been thinking again tonight and this time its about my hip.

As you all know I went back to see the third consultant two weeks ago to find out about my hip. Whilst in clinic he said he would do injections under xray guidance to try and treat my condition.

I got my clinic letter yesterday and in it, it explains that these injection wont actually be treating it at all, its being done to try and manage my pain.

Now, my thoughts are, do I bother going through the agonising pain of havibg a huge needle being stabbed into my hip ball and socket joint to have more pain when the drug gets squirted into it, or do I just continue with my paracetamol, codein, tramadol and oramorph!?

Im stuck, he admits in the letter I am going to be very difficult to trwat vecause of my lungs.

I dont know what to do!!

TTFN

XXXX

About Time It Got Better Dont You Think!?

For me it is more gutting news. Ok so I slightly already new it in the back of my mind or maybe thought it could be that but now it is official. The doctors have diagnosed me and are treating me...I have Steroid Myopathy and I hate the fact it is now reality. For those of you who dont know, Steroid Myopathy is a muscle wasting disease caused by steroids. I have to try everything in my power to keep what little muscle strength I have else i will be wheel chair bound. I am considering a wheel chair now but still debating it as my legs technically still work and im sure if I were to use a wheel chair perminatly what muscle I currently have will be gone for good, and thats the last thing I want. I also have to start a new drug which is similar to steroids but it has no side effects like the steroids. Sadly though this doesnt mean that I never need to take steroids again, every asthma flare up I have, I have to have a big dose again yo get me through. Perfect.

Also as mentiobed before I have been having problems with my hip, well today I had an injection in it in the hope itll sort it out. I have to give it 2 weeks to see if it has made a difference. If not I am being refered to orthopeadics.

Is life ever going to get better, or am I going to have to suffer more and more with these shitty side effects.

I guess on a positive note, I can officially marry my amazing girlfriend who has been my rock these last few weeks. Love you so much!!

TTFN

XXXX