Battle Through

My intentions today were to continue in bed trying to fight off this flu, unfortunatly though, my other half had volunteering at lunch time and work up extremly worried and scared because she had never been on a Thursday and didnt know anyone (she sufferes from depression, anxiety and panic attacks). So I decided that I would take her in for 12, hang around town for an hour and then be right outside for her at one. If she needed me before hand then she could ring and I would be there in se onds. I figured this was the least I could do after how shes looked after me this week. Whilst in town, I found these amazing bright orange wellies, so I got them for my partner. Because of the weather, the feild by us as become very wet and muddy abd it was ruining her trainers so she said she wanted dog walking wellies...and low and behold, whilst charity shop shopping, these were staring right at me. When my other half saw them after she had finished volunteering her face was beaming at the sight of them. I think its safe to say I chose good. After all of this, we decided to go to our usual cafe and have a coffee date. We use to do this regularly before we got a little short in money so it was lush being able to do that again. Instead of going home to rest, I then decided we should take the pup for a walk around the feild (and of course to test these wellies ha). We didnt walk far, or shall I say I didnt. My other half though ran half way across the feild, we took her off the lead and we started calling her name between us both, so not only was she gettig a good run around but she was also learning her call back. Might I add she done blinking amazing. Finally we got home, and I collapsed on the sofa...literally. we figured it was ti.e for a well earnt dvd, so put on the woman in black...and within minutes I fell asleep...oops It has been a busy couple of hours throughout the day, and looking back now I have yet again pushed my self to far, but I guess I cant laze around all the time. We also purchased a little owl book today where we have started writing a journal for our process with the baby so that when they are older, they have something they can read to look back on their journey. Hope it works as well as what it does in our heads. for now though, crufts is calling TTFN XXXX

Life Recent Events

Thankfully life is doing fantastically at my other halfs in Cornwall and her family are fantastic, they are so supportive and just want to help me with everything. Im not used to all this care and help.

Ive had an appointment at my old local hospital and shes pleased with how things are going, and she said she will contact Plymouth hospital to see if they will take on my care as she knows the consultant there and aparently he manages difficult asthma also. Though this doesnt mean that Im going to stop going to Birmingham as they have been amazing.

Talking of Birmingham, I have also been to see them. Physio saw me first and done a few tests on me and confirmed that I dont have dyafunctional breathing nor do I have hyperventilation syndrome so I am absolutly over the moon with that. She also taught me a few more gunk moving chest physio moves which is super helpful. She also said that if this doesnt work by the time she rings me in a few weeks, she will see about getting me a device to help increase my lung function and shift a bit more gunk!!

Dr M is please that I have managed to stay on 10mg of pred, though when I asked if I could reduce it more or come off it altogether he said no, so thats a bit of a downer. He also says that im not allowed to reduce any of my other maintenance meds either. I guess the only good way of looking at this positivly is that I dont need any more meds currently. He wants to see me again in 3 months time to keep a close eye on me.

So life has been full of hospital appointments and driving up and down the country.

Im still waiting for an "urgent" mri scan at the request of my hip consultant to see how advanced my avascular necrosis is...who knows how long thatll be!!

Im travelling back to Cornwall tomorrow as I have an appointment at my new GP surgery to fill them in about me.

I am so shatterdd though, I tried driving today after going to Birmingham today and my legs just didnt want to work, theu were shaking all over the place, I really do hate the way things have ended up!!

Well thats my bit of excitement for the last week!!

TTFN

XXXX